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Meet Lydia, a vibrant 10-year-old whose life was completely transformed after being diagnosed with #CVID in early 2024. Before starting #SubQ IgG therapy, Lydia struggled with extreme fatigue—simple tasks drained her energy, and daily life felt overwhelming. Since beginning

A Nature publication

🌍 This week, we lift the blindfold — literally & symbolically — to face what’s often left unseen: life with a PID. 📽️Join us in showing support for people living with primary immunodeficiencies. #WorldPIWeek2025 #IPOPI #SeeTheUnseen youtu.be/JMkbemkwtb4

💥 It’s ON! IPOPI is kicking off the World PI Week Flash Mob! 💥 Here we are — IPOPI’s staff and board — united to raise voices, smiles, and commitment to make Primary Immunodeficiencies visible. 💙🌍 We want the world to see the daily challenges, the diagnostic delays, the

Living with primary immunodeficiency (PI) can feel like an uphill battle against a misunderstood condition. This week we're raising awareness for PI and ensuring access to diagnosis and treatment for every person diagnosed. #WorldPIWeek

🌍✨ #WorldPIWeek is here! ✨🌍 From April 22–29, we’re celebrating the power of community, advocacy, and awareness for #PrimaryImmunodeficiency (PI). Swipe through to learn: 1️⃣ What WPIW is all about 2️⃣ The incredible history behind it 3️⃣ How we honor the inspiring legacies of

From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi Jeffrey Modell Foundation (JMF)

Meet Jodi Taub — a Primary Immunodeficiency (PI) patient and licensed psychotherapist who specializes in chronic illness and rare disease. 💬 In honor of #WorldPIWeek, Jodi wrote a powerful blog for us—answering the most common (and often misunderstood) questions she gets about

Human #InbornErrorsOfImmunity: 2024 update on the classification from the International Union of Immunological Societies Expert Committee: hubs.la/Q03hwC6N0 See also the accompanying diagnostic guide by Bousfiha et al.: hubs.la/Q03hwHLC0

As we observe World Primary Immunodeficiency Week 2025, we are pleased to see IPOPI's Executive Director, Johan Prevot, featured in an article by rare disease advocate Tom Larmondra, highlighting the critical role of newborn screening (NBS) in improving outcomes for children born with Severe Combined

This World PI Week, we’re raising funds for our Roots & Wings program — and we need your support. 💙 Roots & Wings provides travel (the “Wings) and related support (the “Roots”) to families whose child has been identified with a potentially life-threatening Primary

During #worldpiweek, let’s highlight the importance of registering our patients. We are proud to share the LASID registry! This not only helps us understand our patients better, but also helps us to fight for their access to treatment. In other words, see the unseen!

Big things take time. Diagnoses shouldn’t.

💙 Thank You for an Incredible World Primary Immunodeficiency Week 2025! 💚 To all our NMOs, partners, and community members around the world — thank you for making this year’s World PI Week truly special! We’re deeply grateful for your dedication, creativity, and passion. From impactful activities

World PI Week is over (thank you for your photos, posts and contributions!) but our webinars are certainly not! Don’t miss today’s webinar as we make our way to the LASID conference in October 2025 in Buenos Aires! Connect through this link: us06web.zoom.us/webinar/regist…

⁦CIS⁩ summer school reunion

Support science and NIH! CIS LASID

✨ Are you driven to advance research in immunodeficiencies? Seize the opportunity with the IPOPI Research Grant Programme! 💡 Scope: Projects should be patient-centred and knowledge-generating. 🌍 Who can apply: Researchers, clinicians, nurses, HCPs, and patient organizations

Complete First Issue of Journal of Human Immunity is here! JHI is the official #OpenAccess journal of the International Alliance for Primary Immunodeficiency Societies #IAPIDS. Explore new research and the inaugural editorial from our EiC Casanova Lab 👉 hubs.la/Q03l62BG0