(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more. These findings reflect the lived experience of thousands of #pwME. Thanks to all our participants & supporters who made this possible! Read a summary of our results:  shorturl.at/pgsjk

(2/2)

Covid is wrecking T-cells in study after study, yet people still act like it’s just a cold. This virus doesn’t care if you “believe” in it, denial doesn’t erase T-cell depletion or immune dysfunction.

If you use death as the only metric to judge severity of illness & create all policy around that, you lose sight of all the other horrendous pain & suffering it carries. Yet that’s exactly what’s happened with Covid. Doesn’t kill you? Must be ok then.

This September will be 2 years of becoming chronically ill from my Covid infection. I can’t believe how it has been that long. I can’t believe I have been in pain every single day for nearly 2 years. #longcovid #covid #chronicillness

COVID linked to heart problem in women, study reveals trib.al/2Mq1tFk

In hamsters infected with SARS-CoV-2, no symptoms were seen after 10 days, yet by 80 days they showed memory problems and mood changes. Viral RNA persisted in the brainstem, hinting at a mechanism for long COVID. nature.com/articles/s4168…

The Conversation: Long COVID is more than fatigue. Our new study suggests its impact is similar to a stroke or Parkinson’s 'All this requires people with long COVID to be thoughtfully assessed & treated. Listening to patients & valuing their experience..' theconversation.com/long-covid-is-…

Decades of research and medical neglect means that ME, and now Long COVID, still have zero FDA-approved treatments 💊❌ Zero. By contrast, other major diseases (now with lower total disease burdens) have dozens. Hard to recover without treatment... #MECFS #LongCovid #IACI

“This cohort of 121 individuals with #LongCovid had ‘higher levels of disability than 98% of the general population’, according to the study” “a heavily-reduced quality of life similar to levels seen in Parkinson’s or stroke survivors”

🧡 Returning to the classroom & looking for information on how to manage with Long Covid ? We’ve got you covered. Our website is full of resources - all created with lived experience and expert input at the heart. 💻 longcovidkids.org #BackToSchool #Support #University

Today Long Covid Kids Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 & Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 have written again to Health, Social Care and Sport Committee to call for a parliamentary investigation into the collapse of Scotland’s Long Covid Strategic Network. Children are still suffering. This cannot be ignored. 🧵 #longcovidkids #longcovid Scottish Parliament John Swinney

📢We are proud to announce the LCK Poster Design Competition winners 2025! 🏆 Overall Winner: Michael J, Age 17 “I’m Not Fine,” immediately caught the attention of our judges- a bold visual style and powerful message, showing that even when someone looks fine, they may not be

🖼️ View Michael’s winning poster and all 35 creative entries in our gallery in the link below. #LongCovidKids #PosterWinner #ImNotFine #MichaelJ #TeenAdvocacy #LongCovidAwareness #CreativeHealth #LCK2025 #YouthVoices #ChronicIllnessAwareness longcovidkids.org/post/the-winne…

The Long Covid Strategy Guide for Talking to Doctors Your appointment was at 2:30. You’ve been sitting in this waiting room since 2:15, which means you’ve already burned through half your energy reserves for the day. You’re clutching a carefully written list of symptoms that

Has the Church confirmed how they'll be keeping them safe from infection from #Covid if they return? #CleanAir? #Ventilation #LongCovid

Please avoid clicking on the link. This deals with the topic of brain retraining. Please see our response regarding this article. #LongCOVID

Great to see ppl in the spotlight setting the example of masking (part. during #Covid surge) Thank you Sarah Michelle for modelling sensible behaviour. Masks reduces the speed of Covid & ALL airborne infections Keeping ppl from getting sick when we can IS COMMON SENSE! #LongCOVID

Our next Patient Support Meeting is on Monday, Sept 8th at 7PM 🗓️ Open to Parents of children with LC, Patients with ME and those outside Ireland All are welcome 💙 #LongCovid

🗣️ Have you attended the physio section of the Beaumont Long Covid Clinic in Dublin? We’d like to hear about your experience. It will be confidential. 📩 Email us at [email protected] #LongCovid #Ireland