LongCOVIDCampaign
@lccampaign
Nonpartisan & patient-focused, Long COVID Campaign (LCC) works for accelerated research, affordable treatment & expanded support in the U.S. & globally.
ID: 1778170810395488256
http://www.longcovidcampaign.org 10-04-2024 21:19:54
459 Tweet
877 Followers
436 Following
Not over yet, & nobody wants it #COVID19. Risk Reduction, Prevention essential, & Protection of Vulnerable People & Patient rights #Wexford independent.ie/regionals/wexf… HSE Ireland Irish Nurses & Midwives Organisation Covid Women's Voices Long Covid Advocacy Ireland LongCOVIDCampaign Liz Kennerley #LongCOVID #RareDisease Patient Advocacy Service RTÉ News Wexford General Hospital RTÉ
I created a survey on LDN use in Long COVID. If you’ve tried it, please fill it out. I’ll share anonymized results later. My daughter’s experience wasn’t good, but I still filled it out, we need to learn from all cases. Please share to reach more people🙏🏻 docs.google.com/forms/d/e/1FAI…
FREE WASHINGTON DC EVENT SATURDAY JULY 19: Are you living with #LongCOVID, a loved one, caretaker or healthcare provider? Join celebrated cellist & Long COVID patient-advocate Joshua Roman's community The Kennedy Center performance of his "IMMUNITY", register here: kennedy-center.org/whats-on/explo…
A big thanks to #Keystone Scientific Organizer Prof. Akiko Iwasaki for all your care & intention in today's opening session on reenforcing importance of masking, testing & welcoming #LongCOVID patients to the symposium. Grateful for your leadership & thoughtfulness to the community.
Thank you Michael Peluso, MD for closing your #Keystone Long COVID opening keynote by highlighting the crucial role of collective community #LongCOVID advocacy efforts & sharing a call to action LongCOVIDCampaign shared: the urgent, critical need for a "Global Long COVID Roadmap" 1/x
Michael Peluso, MD LongCOVIDCampaign @LCCamapign call to action: "Clinicians, researchers, nonprofit partners, donors, regulators, patients & advocates around the world need to gather to develop a specific, time-bound 'Global Long COVID Roadmap', w/funding goals, scientific goalposts & clear multi-year strategy" 2/x
Michael Peluso, MD LongCOVIDCampaign As Michael Peluso, MD shared: "We need to plan for the long game." LongCOVIDCampaign believes #LongCOVID advocacy must now organize to GO GLOBAL, as otherwise, work will continue to be delayed & diffused, when we need acceleration & efficiency to best serve ALL patients & communities 3/x
Michael Peluso, MD LongCOVIDCampaign One government & a handful of donors won't solve #LongCOVID. From EU to Gulf States donors, UN to G20, multilateral funds to traditional global health foundations who haven't yet come to the table—our Long COVID advocacy must be a GLOBAL call for GLOBAL strategy & solution. 4/x
Michael Peluso, MD LongCOVIDCampaign Again, deep gratitude to Michael Peluso, MD for your constant research for & engagement with the patient community. To donors: this is a critical moment to sustain & grow #LongCOVID advocacy. Let's help patient advocates move from bootstrapping to global collaboration at scale. 5/5
📣#LongCOVID patients who want #KeystoneSymposia livestream access: Just spoke with conveners & LongCOVIDCampaign able to fund up to 20 patient stream passes. If you'd like access, please email: first & last name & email address to: [email protected] so can register you ASAP📣
A big thank you to Prof. Akiko Iwasaki for speaking with me about increasing #KeystoneSymposia patient livestream access & working with us at LongCOVIDCampaign to make this possible.
📣UPDATE📣 We just awarded our last #KeystoneSymposia free patient livestream pass of the 20 LongCOVIDCampaign was able to fund. We're continuing to speak w/organizers on any opportunity for talks access post-conference at no cost or for limited time. Thanks for the community response!
