Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile
Loeys-Dietz Syndrome

@ldsfoundation

Encouraging education, fostering research, and providing support for the Loeys-Dietz community.

ID: 321674150

linkhttp://linktr.ee/loeysdietz calendar_today21-06-2011 23:29:32

6,6K Tweet

906 Followers

80 Following

Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Have you shared the main characteristics of Loeys-Dietz syndrome with your colleagues? loeysdietz.org/en/medical-inf… #loeysdietz #loeysdietzsyndrome #medtwitter

Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Get to know your treatment options for Loeys-Dietz syndrome: loeysdietz.org/en/medical-inf… #loeysdietz #loeysdietzsyndrome #raredisease

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Who has an emergency alert card? Did you know we have one you can download? loeysdietz.org/en/resources/#… #loeysdietz #loeysdietzsyndrome

Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Want to teach your patient about their Loeys-Dietz diagnosis? Use our resources: loeysdietz.org/en/medical-inf… #loeysdietz #loeysdietzsyndrome #medtwitter

Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Thinking about participating in a research study? Check out current studies: loeysdietz.org/en/science-and… #loeysdietz #loeysdietzsyndrome

Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Share your story! What's your real? What do you want people to know about life with LDS? It's easy to spread awareness, just click. vocalvideo.com/c/loeys-dietz-… #loeysdietzsyndrome #loeysdietzawareness #loeysdietz #rareconditions #loeysdietzawarenessmont

Share your story! What's your real? What do you want people to know about life with LDS? It's easy to spread awareness, just click. vocalvideo.com/c/loeys-dietz-… #loeysdietzsyndrome #loeysdietzawareness #loeysdietz #rareconditions #loeysdietzawarenessmont
Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Congratulations to the adult and child community artwork contest winners, Stephanie Morales and Ariele Damaa. Their unique, creative designs are featured on select LDS Awareness Month merchandise. Get yours! bit.ly/3KxU2mF

Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

"You should always trust your instincts. The doctors did not believe that I had anything...I knew something was wrong." That's Nicole's real about life with LDS. bit.ly/3KUpA6F #loeysdietzrealreels #loeysdietzawarenessmonth #loeysdietzsyndrome

Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Download this free Kids Activity Booklet to celebrate Loeys-Dietz Awareness Month 2024. bit.ly/3yRlZDn #loeysdietzawarenessmonth #loeysdietz #loeysdietzsyndrome #kids

Download this free Kids Activity Booklet to celebrate Loeys-Dietz Awareness Month 2024. bit.ly/3yRlZDn #loeysdietzawarenessmonth #loeysdietz #loeysdietzsyndrome #kids
Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Today's the big day! Support our 2024 Loeys-Dietz Day of Giving. There are just 8 hours left to make a big difference! 81 cents of every dollar you give supports the mission you love! Thank you! bit.ly/3VAWsat #loeysdietz

Today's the big day! Support our 2024 Loeys-Dietz Day of Giving. There are just 8 hours left to make a big difference! 81 cents of every dollar you give supports the mission you love! Thank you! bit.ly/3VAWsat #loeysdietz
Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

Congratulations and THANK YOU from the bottom of our hearts! Our community REALLY showed up yesterday for LDS Day of Giving. We raised over $16K and counting...do we want to try to get to $20K by the weekend? There is still time to make a gift: bit.ly/3VAWsat

Congratulations and THANK YOU from the bottom of our hearts! Our community REALLY showed up yesterday for LDS Day of Giving. We raised over $16K and counting...do we want to try to get to $20K by the weekend? There is still time to make a gift: bit.ly/3VAWsat
Loeys-Dietz Syndrome (@ldsfoundation) 's Twitter Profile Photo

"It makes us part of something." Marta of Lisbon, Portugal -- who lives with #Loeysdietzsyndrome -- shares how our 2024 Global Virtual Conference is helping her and her family access expert knowledge and community. Register now: bit.ly/3EPmQEO bit.ly/4b065UD