LUPUSUK 💙 (@lupusuk) 's Twitter Profile
LUPUSUK 💙

@lupusuk

LUPUS UK is the only national registered charity supporting people affected by #lupus and assisting those approaching diagnosis.

Reg Charity: 1200671

ID: 111548466

linkhttps://lnk.bio/LUPUSUK calendar_today05-02-2010 09:24:37

12,12K Tweet

10,10K Followers

655 Following

LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

We have one filming slot available for our upcoming clinical trial video, aimed to help people better understand what’s involved in them. Please share with anyone who may be interested! For more information, contact [email protected] #ClinicalTrial #Lupus #Research #SLE

LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Today marks the start of #LupusAwarenessMonth 💜 This important month takes place during October every year in the UK and gives us the opportunity to raise awareness of #lupus amongst the public and medical profession. Get involved here: lupusuk.org.uk/lupus-awarenes…

Today marks the start of #LupusAwarenessMonth 💜

This important month takes place during October every year in the UK and gives us the opportunity to raise awareness of #lupus amongst the public and medical profession.

Get involved here: lupusuk.org.uk/lupus-awarenes…
Bath Institute for Rheumatic Diseases (BIRD) (@birdbathcharity) 's Twitter Profile Photo

October is #LupusAwarenessMonth Visit Lupus UK for advice and support. BIRD also has a series of #Lupus podcasts recorded with experts from the RNHRD RUH Bath 🏥. Find them here: birdbath.org.uk/lupus-podcasts

Md Yuzaiful Md Yusof (@yuz6yusof) 's Twitter Profile Photo

It’s #Lupus Awareness Month in the UK 🦋. What a better way to celebrate and increase awareness by exchanging knowledge and experience. Thank you Lupus UK for inviting me to deliver a talk on clinical trials update and new treatment 🫶🏼. In Purple too 🟣 for extra awareness 😃

It’s #Lupus Awareness Month in the UK 🦋. What a better way to celebrate and increase awareness by exchanging knowledge and experience. Thank you <a href="/LUPUSUK/">Lupus UK</a> for inviting me to deliver a talk on clinical trials update and new treatment 🫶🏼. In Purple too 🟣 for extra awareness 😃
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Musculoskeletal (MSK) health is essential for a healthy, productive life. On World Arthritis Day, we are advocating for more collaboration health and social care to prevent and manage MSK conditions more effectively. #WAD #JoinedUpForJoints #WorldArthritisDay ARMA

Musculoskeletal (MSK) health is essential for a healthy, productive life. On World Arthritis Day, we are advocating for more collaboration health and social care to prevent and manage MSK conditions more effectively. #WAD #JoinedUpForJoints #WorldArthritisDay <a href="/WeAreARMA/">ARMA</a>
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

It’s #BoneAndJointWeek and we’re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety & depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints

It’s #BoneAndJointWeek and we’re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety &amp; depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints
Dalila (@dalilatm) 's Twitter Profile Photo

🤩 Since our 1st meeting in 2019, time has flown by! Fast forward to today’s meeting with 2️⃣ wonderful guest speakers helping us understand roles & holistic care in #lupus Melissa Chieza 🙌 Thanks everyone who has joined us on this journey & shared the many faces of lupus! #Cardiff

🤩 Since our 1st meeting in 2019, time has flown by! Fast forward to today’s meeting with 2️⃣ wonderful guest speakers helping us understand roles &amp; holistic care in #lupus <a href="/mel_chieza/">Melissa Chieza</a> 🙌 Thanks everyone who has joined us on this journey &amp; shared the many faces of lupus! #Cardiff
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

What is CAR-T cell therapy and what does it mean for people with lupus? You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post: lupusuk.org.uk/2024/11/08/car…

What is CAR-T cell therapy and what does it mean for people with lupus?
You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post: lupusuk.org.uk/2024/11/08/car…
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

What does good care & treatment for rare disease mean to you? The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease. Complete the survey on their site: rarediseaseqs.org Or read our FAQs: lupusuk.org.uk/2024/11/14/qua…

What does good care &amp; treatment for rare disease mean to you?
The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease.
Complete the survey on their site: rarediseaseqs.org
Or read our FAQs: lupusuk.org.uk/2024/11/14/qua…
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Spare 60 seconds to take SRUK | Scleroderma & Raynaud's UK's online Raynaud's symptom test. See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma. sruk.co.uk/testme

Spare 60 seconds to take <a href="/WeAreSRUK/">SRUK | Scleroderma & Raynaud's UK</a>'s online Raynaud's symptom test.

See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma. sruk.co.uk/testme
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Join over 9,000 people who have already spared 60 secs to take SRUK | Scleroderma & Raynaud's UK's online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions. sruk.co.uk/testme

Join over 9,000 people who have already spared 60 secs to take <a href="/WeAreSRUK/">SRUK | Scleroderma & Raynaud's UK</a>'s online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions. sruk.co.uk/testme
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study. Your participation will help in developing suitable support for SLE patients in the UK. Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0x…

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study.
Your participation will help in developing suitable support for SLE patients in the UK.

Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0x…
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study. Your survey response will help develop appropriate support for SLE patients in the UK. Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0x…

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study.
Your survey response will help develop appropriate support for SLE patients in the UK.

Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0x…
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

The National Office is now closed for the holidays and will re open on 02/01/25. THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus 💜

The National Office is now closed for the holidays and will re open on 02/01/25. 
THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus 💜
EATC for Children (@eatc4children) 's Twitter Profile Photo

Amongst friends for lunch and an information sharing discussion today, thanks so much to Lupus UK for braving this chilly weather to join us in the #instituteinthepark #alderhey We hope you enjoyed it! #bettertogether #partnership #lupus #childhoodillness #lunch #eatc4children

Amongst friends for lunch and an information sharing discussion today, thanks so much to <a href="/LUPUSUK/">Lupus UK</a> for braving this chilly weather to join us in the #instituteinthepark #alderhey

We hope you enjoyed it!
#bettertogether #partnership #lupus #childhoodillness #lunch #eatc4children
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!! For more information and to sign up, visit: lupusuk.org.uk/virtual-dog-wa… #Lupus #SLE #VirtualDogWalk #Fundraising

Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!! 

For more information and to sign up, visit: lupusuk.org.uk/virtual-dog-wa…

#Lupus #SLE #VirtualDogWalk #Fundraising
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Nominate LUPUS UK (Charity No 1200671) for a chance to win £1,000 in the #MovementforGoodAwards The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: lnk.bio/s/f35db🔗 As a small charity, this grant will make a huge difference💜

Nominate LUPUS UK (Charity No 1200671) for a chance to win £1,000 in the #MovementforGoodAwards
The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: lnk.bio/s/f35db🔗

As a small charity, this grant will make a huge difference💜
RAIRDA (@rairda_org) 's Twitter Profile Photo

Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients 👉rairda.org/publication/re…

Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients 👉rairda.org/publication/re…