In our second blog this #EndometriosisAwarenessMonth, Trustee @Robyn_Challinor writes a letter to her 14 year old self, giving her some words of advice she has learnt over the last 13 years of living with PCOS & suspected Endometriosis. bit.ly/3m64eFU

So excited - finally had my first vaccination #AstraZeneca #vaccinated. One more step towards keeping my family and community safe. It finally feels like spring 💙

4 days to go to our 2021 Patient Update Event - Register now to attend! The event is for patients with childhood IgA vasculitis (HSP) & their parent/carers. The team will update on their work & next steps for improving clinical care & scientific understanding of the condition

Last day to register for this creative workshop on Tummy Pain in IgA Vasculitis (HSP)- suitable for all ages - delegation packs go out tomorrow! Register by emailing [email protected]

Blown away by the ideas that young people & their families came up with in our IgAV workshop...more info come ...look out for Dr Immune & Mr Super Squawk EATC for Children Vasculitis - In memory of John Mills MBE 💙💚 Laura Whitty

The painful irony isn’t lost on me that, while trying to promote a book about periods & busting taboos, I’ve been fighting my own horrendous period pain. For 10 days.Endometriosis & adenomyosis are invisible illnesses but this Insta film is my humble attempt to show how they feel

Exactly !

Please, keep wearing a mask. If not for yourself, do it for me and all people who are at greater risk. #MaskUp #CEV #COVID19 #vasculitis Vasculitis - In memory of John Mills MBE 💙💚 @

To mark the end of #LupusAwarenessMonth, here's a little collage of our activities; as well as a purple team meeting we also completed a #gothatextramile 🏥 Alder Hey 💙 - it was a great way to raise awareness and as a bonus get some endorphins flowing! #autumnsun

We are so pleased to be part of #meetthescientist at Liverpool World Museum tomorrow to spread awareness about rheumatic disease in children and young people. Come along from 10:00 and meet some of the EATC for Children team and take part in #WORDDay2022 activities.

Setting up for our #WORDDay2022 event at #meetthescientists ⁦World Museum 🌎⁩ - begins today at 10!

Fantastic little scientists visiting us today to learn about #WORDDay2022 World Museum 🌎

Exploring urinary biomarkers through chromatography - excellent work from our little scientists today for #WORDDay2022 World Museum 🌎

At the end of a fantastic event World Museum 🌎 for #WORDDay2022 - We are a tired but happy trio!

Laura Whitty Sammy Ainsworth Eve smith Health and Life Sciences Public Engagement World Young Rheumatic Diseases Day (WORD Day)

Another of our incredible trustees is Laura Whitty, who brings so much energy, enthusiasm, and expertise to our team. Listen to why Laura is part of RAiISE! #HappyBirthdayRAiISE #charity #notforprofit #nonprofits #invisibleillness

What a great word day with Sammy Ainsworth Sophie Laura Whitty Dr Simon Stones Olivia Lloyd Valentina Natoli speaking to the people of Liverpool about #WORDday2023! Amazing to see the new RAiISE packs to ⬆️awareness of invisible illness😁

Excited to announce that the Vasculitis UK 2023 Grant Call is now open! For details see: vasculitis.org.uk/research/grant… Vasculitis - In memory of John Mills MBE 💙💚 UKIVAS ZoiAn

Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : ipsos.uk/RAIRDAsurvey20… #vasculitis Vasculitis - In memory of John Mills MBE 💙💚 VIA #rarerheumaticdiseases #raredisease Jane L Edwards 📚

Carbon footprinting of clinical trials - evidence base is being built and hotspots identified: researchsquare.com/article/rs-436… Keen to support? Join the MRC-NIHR TMRP Greener Trials group: methodologyhubs.mrc.ac.uk/about/working-… MRC-NIHR Trials Methodology Research Partnership COMET Katie Gillies Laura Whitty Matt Sydes