🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

🎉 Exciting Research Update! Interim analysis of Phase III VASE trial on sirolimus treatment for slow-flow vascular malformations is out. Promising results: 70-80% benefit! More insights here👉bit.ly/47x0fsK #VASCERN #RareDisease #Research #clinicaltrial #sirolimus

🚨Great news! The deadline for applications to the VASCERN Summer School 2024 has been EXTENDED to November 26th! If you're a medical student or intern interested in rare vascular diseases, seize this opportunity! 🌐 Apply now👉 bit.ly/3RKD0Xs #Rarediseases #summer

#ResearchHighlight: Our VASCA Working Group paper on the diagnosis and management of #VenousMalformations offers expert consensus patient pathways to help clinicians toward efficient diagnostics and management of patients. Give it a read👉bit.ly/49BZW0X #rarediseases

So humbled for having received this Lifetime Achievement Award by #LE&RN for our work on #lymphedema and lymphatic #malformations. I hope the numerous projects being run all over the world will bring us to novel therapies for these #chronic diseases. #vascern #deduveinstitute

Happy #FeatureFriday! Meet Prof. Laurence Boon, one of the amazing experts in our VASCA WG! She's an expert in the study and treatment of #vascularanomalies, and is currently leading the way with the VASE #clinicaltrial. Learn more about the VASCA WG👉bit.ly/4acDQ4Z

✨It's #FeatureFriday! We’re excited to spotlight our network, which brings together specialized healthcare providers dedicated to improving care for rare vascular disease patients. Explore our valuable resources tailored to your needs 👉bit.ly/m/VASCERN

Interested in #lymphedema ? Here our latest publication : HGF-linked lymphedema. Early or late onset ! eur03.safelinks.protection.outlook.com/?url=https%3A%… #vascapa #vascern #theralymph #welbio #fnrs #uclouvain #deduveinstitute

When a faint #capillary #malformation is associated with #epilepsy, it may be due to a mosaic #AKT3 mutation. #mTOR inhibitors might then be considered to study eventual efficacy. Our #VASCERN #VASCA work just published: dx.doi.org/10.1002/ajmg.a… #VASCAPA #HEVAS #CMTC #Welbio

The one and only Miikka. Vikkula at ISSVA . Father of #vascularanomalies genetics! #VASCAPA #ISSVA2024

Lex is representing CMTC-OVM at the #ISSVA global congress in Madrid where we also collaborate with other European Patient Organisations, emphasizing the importance of patiënt organisations and gaining the latest knowladge. Israel Bañuelos

Our VASCA ePAG advocate, Caroline van den Bosch at ISSVA congress! #ISSVA2024

Patient advocate session with the ISSVA board about the future role of patient advocates within ISSVA. Exciting changes ahead! #ISSVA2024

See our great #VASCERN-VASCA group well represented at the ongoing #ISSVA world congress in Madrid. #VASCAPA #HEVAS #CMTC #Revamp #WELBIO #deduveinstitute #Vascular #Malformation #lymphatic #hemangioma

Congratulations to Prof. Dr. Leo Schultze Kool, Deputy Co-Chair of our Vascular Anomalies Working Group (VASCA WG), on assuming the role of ISSVA President. #ISSVA2024

Miikka. Vikkula, 3e Visage de la recherche Le Soir de Duve Institute @UCLouvain_be Prix Generet pour les maladies rares, Fondation Roi Baudouin avec FNRS et FWO lesoir.be/589868/article… À retrouver aussi dans Z Research le 29 mai @TrendsCanalZ Soutenir la recherche est essentiel !

#Vascapa

Visages de la recherche, version télé : Z Research sur @TrendsCanalZ ce soir dès 20h avec Miikka. Vikkula de Duve Institute @UCLouvain_be WEL Research Institute. Lauréat du Prix Generet pour les maladies rares, Fondation Roi Baudouin FWO Soutenez la recherche : fnrs.be/dons

#vascern #vascapa #cmtc #hevas #theralymph #lymph

World Fédération of Interventional and Therapeutic Neuroradiology (⁦WFITN 2024 NEW YORK CITY⁩ ) with a Great single speaker session by Pr Laurence Boon from ⁦Cliniques universitaires Saint-Luc⁩ on Medical Management of #vascular #anomalies. Great discussion! #vascapa ⁦VASCERN⁩ ⁦HEVAS⁩

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