🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

💜Today is INTERNATIONAL NEONATAL SCREENING DAY #INSD ! #EURONMD wants to raise awareness worldwide about the importance of neonatal screening to speed-up diagnosis and treatment. Learn more about it here 👉neonatalscreeningday.org

Our latest leaflet is out! If you haven’t explored IPOPI’s newest publications yet, now’s the time. These resources provide essential information on key topics in primary immunodeficiencies (PIDs): 🔹Management of Autoimmune Pulmonary Alveolar Proteinosis (aPAP) 🔹Management of

🎉 Early Bird Deadline Extended! You now have until July 31 to register for IPIC2025 at the special early bird rate. Take this extra time to secure your spot and get ready for an inspiring programme led by top experts in the field. 🔗 ipic2025.com/register-now/ #IPIC2025

Every child deserves a healthy start. This International Neonatal Screening Day, IPA champions early detection for a healthier tomorrow #INSD #InternationalNeonatalScreeningDay #NeonatalScreeningMatters #NewbornScreening Joseph Haddad Carlos Alonso Naveen Thacker

🌍 Today is International Neonatal Screening Day, a powerful reminder that timely diagnosis saves lives. Together with our partners, we proudly support efforts that put people and prevention first.

📢 Press Release – International Neonatal Screening Day (INSD) Today, on June 28, we mark International Neonatal Screening Day, a global reminder of the vital role early detection plays in saving newborn lives and ensuring healthier futures. 📄 Read our full press release:

Today, Screen4Rare urges governments to prioritize universal neonatal screening. Early diagnosis saves lives and ensures every child has a healthy start! #NeonatalScreening #RareDiseases #HealthForAll rarerevolutionmagazine.com/calling-for-im…

🗨️ On International Neonatal Screening Day, MEP Tomislav Sokol (EPP, Croatia) voices his support for expanding newborn screening across Europe. #INSD2025 #NewbornScreening #RareDiseases #EUHealth #PatientAdvocacy

🎥 “Newborn screening is a critical gateway to early diagnosis and timely treatment, offering every child the best possible start in life.” — Dr Anshu Banerjee, WHO Watch Dr Banerjee’s message for International Neonatal Screening Day and learn how WHO is working to improve access

Los endocrinólogos destacan la importancia de diagnosticar la fenilcetonuria en los primeros días de vida para evitar daños neurológicos graves #DíaMundialdelaFenilcetonuria saludadiario.es/profesionales/…

La inequidad entre CCAA es abrumadora: "Tardaron 14 meses en diagnosticarle una patología que no está incluida en la prueba del talón y que le habría salvado la vida". Pedro Lendinez #EnfermedadesRaras #MasVisibles RarasNoInvisibles #PocoFrecuentes elmundo.es/papel/historia…

🌍 Today is International Neonatal Screening Day, a powerful reminder that timely diagnosis saves lives. Together with our partners, including IPOPI, we proudly support efforts that put people and prevention first.

🌍💡As we conclude the second and final day of the Global Stakeholders Summit, we thank everyone who contributed to the thoughtful and forward-looking discussions on the future of PIDs. We look forward to building on the insights shared during this summit and to continuing this

Incredible meeting driving innovation in immunodeficiency field! inspiring work and promising advances on the horizon! IPOPI Martine Pergent Johan Prevot

Prompt diagnosis of severe combined immunodeficiency is critical. A study explores variable factors including the impact of newborn screening associated with hematopoietic stem cell transplantation outcomes and overall survival in a multiethnic cohort. bit.ly/4402HJ4

IPOPI is proud to share the results of our global survey on the long-term effects of COVID-19 in people living with primary immunodeficiencies (PIDs)! This important study, now published in The Journal of Allergy and Clinical Immunology (JACI), brings together the experiences of

IPOPI welcomes the EU Life Sciences Strategy, published by the European Commission. The Strategy puts the spotlight on Advanced Therapy Medicinal Products (ATMPs) and highlights the first-ever gene therapy approved for ADA-SCID as a cutting-edge treatment aimed at transforming

Patients, families, and healthcare professionals from over 11 provinces across China united to shape the future of PID care nationwide. 👉Read the full article here: e-news.ipopi.org #PrimaryImmunodeficiency #RareDiseases #SummerNewsletter

🌐 We’re happy to announce the next Screen4Rare event in the European Parliament: As the EU advances its Life Science Strategy, prepares the new Biotech Act, and reviews the legislation on Orphan Medicinal Products, Newborn Screening for Rare Diseases (NBS) must be part of the

Have you secured your spot for #IPIC2025 yet? 🧬 Early Bird rates are open until the end of the month! You can still register and join the global PID community in #Prague for this unique event! Don’t miss the chance to connect, learn, and be part of the conversation. 🔗