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Joint health is one of the most important factors contributing to a healthy life in patients with #hemophilia.🦵What contributes to avoiding joint disease among pediatric patients? Find out below⬇️

Are you planning to attend? If not, why not? It’ll be an impactful evening in support of the inherited blood and bleeding disorders community.

Speaking at the second WFH side event today World Health Organization (WHO) #WHA77

The WFH co-hosted a #77WHA side-event with TIF, supported by Ministry of Health Cyprus, to discuss opportunities & challenges on access to novel therapies. After welcome addresses, attendees heard from a multistakeholder panel on identifying ways to increase equitable access.

Looking forward to #STH2024 and hearing the discussion of #ISTH2024 hemophilia treatment guidelines this morning Ballroom 1- be there.

In a polling question asked in today’s #ISTH2024 symposium sponsored by Spark, half of attendees were unsure or would not offer gene therapy to patients with pre-existing liver damage. Are you as surprised by this as I am? Looking forward to this afternoon session of #ISTH GTWG.

And it’s a wrap! Thank u 2 all the wonderful ISTH members, participants, faculty, partners, supporters & HQ team for a fantastic #isth2024 experience in Bangkok! We love welcoming you 2 the Society & Congress. Safe travels & we look fwd 2 seeing u @ #isth2025 in Washington DC!

Recent advances in the treatment of people with hemophilia have been remarkable. I’m excited to share our recent publication highlighting what is known and unknown about joint bleeding and arthropathy, including insights on pain, its causes and possible. pubmed.ncbi.nlm.nih.gov/38981851/

We encourage clinicians and health care profesdionals interested in haemophilia and inherited bleeding didorders to register and attend WFH EHC_Haemophilia EAHAD National Bleeding Disorders Foundation

As tough as they come 💪 Mongo is officially a Hall of Famer!

This moment 🧡💙

Did you know that 40% of US females aged 12-21 years of age are Iron Deficient? Thanks to ⁦Shematologist, MD⁩ and colleagues we have the data. Now let’s do something about it! jamanetwork.com/journals/jama/…

Happy to join the group of passionate #bleedingdisorders advocates in Panama City at #HABITPanama24 and provide an overview on the importance of integrated comprehensive care. #WFH

Finishing today our successful 3 day #HABITPanama24 training programme for delegates from Argentina, Brazil, Chile,Costa Rica,Colombia,Dominican Rep,Mexico,Panama,Uruguay and Venezuela. First of a planned 3 year incremental upskilling programme. Daily Dose Kim Isenberg

New paper reports infection rates in blood donors in Gabon, Africa. Prevalence of HIV is 3% and Hepatitis C 4%. World Health Organization (WHO) please note - this is why you are wrong to suggest treating #hemophilia with cryoprecipitate. You need to urgently change your advice to virally inactivated

What an amazing opportunity for the attendees of #partnersphysicianacademy to hear the distinguished Dr Kathryn High speak about #genetherapy.

The painful personal story of Dr Keith Hoots’ experiences in the early days of the #HIV #AIDS epidemic is recounted at the #PartnersPhysicianAcademy.. Attendees gained appreciation on the challenges #hemophilia community faced. We must NEVER FORGET THE PAST!

Join us in Chicago on October 25 or if you’re unable to attend in person please consider donating to NBDF

The WFH supports the findings of 49 global experts that examined the ISTH Guidelines & published a critical appraisal in Haemophilia Journal. The appraisal highlights issues in the ISTH publication that could impact health outcomes for people with hemophilia: bit.ly/4g1zP70

The WFH is aligned with the findings of 48 global experts within the #BleedingDisorder community, that have come together to publish an article on contrasting approaches in applying the GRADE methodology and how it can impact medical guidelines: bit.ly/3CWeQ6L