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ALS diagnoses are often delayed by 10 to 16 months, and even longer for people of color. Join Dr. Kelly Gwathmey on May 22 at 12 p.m. CST for a live ALS Learning Series webinar on tackling diagnostic delay in ALS. Register now: buff.ly/c6AvA5h #ALSLearningSeries

Frank's ALS diagnosis meant walking away from a career, managing unpredictable expenses, and worrying about his family's future. “ALS gets more expensive over time,” he says. “It’s not just money — it’s time, energy, and planning.” Read his story: buff.ly/x54jn6m

Families affected by #ALS don't have the option of not knowing the answers to questions about the disease. They feel the financial and emotional impact of ALS every day. Thanks to Senator Dick Durbin and the ALS Caucus for keeping the focus on ALS research. youtube.com/watch?v=zHcaIa…

“The financial burden can also result in devastation.” Kelly Goodman’s husband lived with ALS for six years. Full-time caregiving, loss of income, hospice care — costs added up fast. Not every family has insurance or support. Donate today: buff.ly/jB76h2k

#MDA is deeply disappointed in the House passage of the budget reconciliation package. This bill threatens critical services and supports for the #neuromuscular & #disability community, including vital access to care provided by #Medicaid and other health care programs.

An ALS diagnosis changes everything—except your power to choose what's next. Take control: Build a specialized care team and modify the home for optimal accessibility. Connect with Les Turner ALS Foundation this #ALSAwarenessMonth to learn more.

🚨 Applications are now OPEN for the 2025 NEALS ALS Clinical Research Learning Institute (CRLI)! 📅 Oct 6–7, 2025 📍 Clearwater, FL 🌟 For people impacted by ALS 🗓️ Apply by July 14 Learn More: neals.org/people-living-… 🔗 Apply Here: surveymonkey.com/r/CRLI2025

Mike Margelewski-Hall cared for his mother through every stage of ALS. “This wasn’t selfless,” he says. “It was repayment.” For Week 5 of ALS Awareness Month, we share his story—of love, routine, and final goodbyes. Read more: buff.ly/WbPWihU #ALSawareness #ALScaregivers

On May 22, Springfield lawmakers held a hearing on HB 4026—a bill to fund ALS care & research in IL. Huge thanks to all who submitted witness slips, especially Elizabeth Kennedy & Rob Akins for their testimony, and Rep. Kevin Olickal for sponsoring. #ALS #HB4026 #ALSadvocacy

For the final week of ALS Awareness Month, we’re highlighting caregivers like hospice nurse Trevor Storm. Inspired by his patient Greg, Trevor is running the Chicago Marathon with Team Race for ALS to honor families affected by ALS. Read his story: buff.ly/ShyiZEw

We're delighted to see that People Magazine picked up our Mother's Day story with Melissa Diaz-Viera for #ALS Awareness Month, with quotes from our Lois Insolia ALS Clinic team at NM Neurology. Read it here: buff.ly/ATAnasN

Here's something sweet: scientists at Northwestern University have developed a sugar-coated nanotherapy that dramatically improves neuron survival, directly combatting the progression of neurodegenerative diseases like #ALS. buff.ly/TwCbkKU

Set sail for a cause. Cruisin’ for a Cure returns Aug 9 with open bar, lake views, and all proceeds supporting the Les Turner ALS Foundation. 🎟 Reserve your spot before it sells out: buff.ly/hek712w #ALS #CruisinForACure #ChicagoEvents

Genetic ALS testing can contribute crucial data that researchers may use to identify patterns and develop treatments that may help fighting ALS. Connect with the Les Turner ALS Foundation for more educational resources they have available. #ALSAwarenessMonth

Week 4 of ALS Awareness Month = a spotlight on caregivers. Caring for someone with ALS is life-changing and demanding. We’re sharing resources and guidance to help caregivers prevent burnout, ask for help, and feel supported. Read more: buff.ly/gVxtSqX #ALSAwareness

We enjoyed talking to AARP about things new caregivers should know about #ALS, from the challenges of getting a diagnosis to the ways the disease can progress — and the importance of finding support. Read the article: buff.ly/nJ3hp2z

As ALS Awareness Month ends, we honor caregivers like Doug and the Hernandez sisters. Doug gave up his job to spend more time with his wife living with ALS. Jenny calls caregiving the hardest—but most rewarding—journey of her life. Your strength inspires us. #ALS #ALScaregiver

Tomorrow Anne Gridley is going to have her one-man show about HSP, an upper motor neuron disease. Please join if you can. .Spastic Paraplegia Foundation #HSPandPLS .Les Turner ALS Foundation .A Long Swim .Northwestern

The National ALS Registry celebrates MLB’s official third annual #LouGehrigDay. Today we honor and celebrate his legacy and the attention he brought to #ALS in the United States. Learn more about the ALS Registry’s work today at buff.ly/L9Tm4Ic #ALSRegistry