LifeArc
@lifearc1
Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.
ID: 21754354
http://www.lifearc.org 24-02-2009 13:43:34
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A new NHS service, MinderCare, which uses smart devices to help people with dementia live well at home for longer, has just launched. We are proud to have provided funding and support to this service through our partnership with UK Dementia Research Institute. Read more: lifearc.org/2025/innovativ…
This week, we welcomed Varaidzo Joy Mukwekwe to our data science team. She joins us via the Health Data Research UK (HDR UK) Health Data Science Black Internship Programme, and will be supporting a tuberculosis study for the next 10 weeks. Welcome, Varaidzo Joyline Mukwekwe!
With UK Dementia Research Institute, we're funding a first-in-class gene therapy targeting a root cause of motor neuron disease: gene errors caused by TDP-43 dysfunction. This new treatment aims to correct faulty gene messages and deliver long-lasting treatment in a single dose.
We're calling on government, regulators, industry, academia, the NHS and patient groups to act together and #ChangeTheRareFuture for people living with rare conditions in the UK. Read the report here - lifearc.org/rd-report/ Genetic Alliance UK
Our Rare Disease Chair, Amit Nathwani, shares why it's so important that we #ChangeTheRareFuture for the nearly 3.5 million people with rare diseases in the UK at our report launch in Westminster. Genetic Alliance UK
"This Government remains committed to improving the lives of people with rare diseases… This is not something that [we] can do alone. We will do it in partnership with experts and with people with rare diseases and their families." Ashley Dalton MP #ChangeTheRareFuture
!["This Government remains committed to improving the lives of people with rare diseases…
This is not something that [we] can do alone. We will do it in partnership with experts and with people with rare diseases and their families." <a href="/AshleyDalton_MP/">Ashley Dalton MP</a> #ChangeTheRareFuture](https://pbs.twimg.com/media/GvPjstEWUAAsiNY.jpg "LifeArc (@lifearc1) on Twitter photo \"This Government remains committed to improving the lives of people with rare diseases…
This is not something that [we] can do alone. We will do it in partnership with experts and with people with rare diseases and their families.\" <a href=\"/AshleyDalton_MP/\">Ashley Dalton MP</a> #ChangeTheRareFuture")
On Monday, our new report with Genetic Alliance UK launched. Here, our Chair of Rare Disease, Amit Nathwani, talks about why it's so important that we, as a nation, work together to #ChangeTheRareFuture. Read the report: lifearc.org/rd-report/
Last week, we hosted over 100 policy makers, charity, industry and academic partners, and patient experts for breakfast to talk about how we can #ChangeTheRareFuture in the UK and change millions of lives. Read our latest report with Genetic Alliance UK here - lifearc.org/rd-report/
Bronchiectasis affects 200,000 people in the UK alone. Ongoing inflammation causes airway damage – making it an essential target for new therapies. That's where AIRNET comes. @JamesDChalmers University of Dundee #WBC2025
New research, published in The Lancet Neurology last night and partly funded by our Pathfinder Award, brings long-awaited answers to families who have lived with years of uncertainty - lifearc.org/2025/lifearc-p…
