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🏴󠁧󠁢󠁳󠁣󠁴󠁿 COVID WASTEWATER SURVEILLANCE Scotland’s Covid wastewater signal has been steadily rising since March and is now at the highest point so far this year. (I’d love to share the Covid wastewater data for England with you too but the budget for that programme was axed in 2022).

It’s #CarersWeek & we say a huge ‘Thank You’ to all care givers! With so many with #LongCovid, many people, from young people to the elderly, have become unpaid carers. And it can be tough. Our Long Covid Carers group provides a safe space to support those who care. Link ⬇️

Today marks the final prelim hearing for Module 8 of the UK Covid-19 Inquiry For patient advocates, the process is gruelling, but for #children with #LongCovid, it’s a battle that robs them of the #childhood they once knew. We need meaningful, forward-thinking recommendations.

Covid Deaths in the UK (in memory of Tigress) Week 22 = 80 Registered UK Covid Deaths w/e 30th May 2025 England 63 Wales 8 Scotland 7 NI 2 UK 80 1/

Today, UK Covid-19 Inquiry has announced the appointment of Dr. Terry Segal as an expert witness on paediatric Long Covid. We welcome this crucial recognition of the need for expert insight to help the inquiry understand the full impact of Long Covid #LongCovid #PaediatricHealth

M8 of UK Covid-19 Inquiry will consider the importance of CO2 monitors and air cleaning units in schools to learn lessons #CleanAir #LongCovid #LongCovidKids

The final preliminary hearing for the Children & Young People’s module was today, CVF, again, made the case for safety. Children's deaths *would* have been higher if many Clinically Vulnerable families had not kept their children away from schools. ⚠️Long thread 1/

💔 88 children died (2020 - October 2022) In the first year of the pandemic: 🏥6,338 paediatric Covid admissions ❤️‍🩹259 needed intensive care 2/

Schools were 'closed' due to the balance of risks: ⚖️Risk of to children when not in school ⚖️Risk of to everyone from Covid-19 transmission 3/

When schools were first closed, SAGE predicted that the NHS would be overwhelmed within ten days. 4/

If children are sent to unsafe school there is a significant risk of them bringing infections home. "The failure to put in place measures to reduce airborne transmission means that some children in CV families remain effectively excluded from education, even today." 16/

"13,000 children were orphaned by the pandemic." "Keeping schools open at all costs may have costs for children also. It is the Peter Pan point..." 24/

The Children's Rights Organisations also agreed with us, that the inquiry should be considering the adequacy of efforts to make schools safe to remain open. Our thanks to Save the Children UK, Just for Kids Law, Children’s Rights Alliance for England, and Centre for Young Lives for their support and advocacy. 26/

Ok, so after that (unintentional) cliffhanger, let's talk about energy production infrastructure and post-exertional malaise (PEM) in people with infection- and exposure-associated chronic illnesses (IACIs) such as #LongCOVID, #MECFS, chronic #Lyme and more. Let's start with 1/

mechanisms drive your PEM, pushing through until you crash is going to cause mitochondrial damage and worsening issues. Pacing is an energy management tool that can prevent this. I really love this video from Long COVID Physio describing pacing: youtu.be/USLg5FT86TQ 14/

Nice paper here by Mark Faghy’s group. The more things change, the more they stay the same. Post-exertional submaximal aerobic system impairment/early anaerobiosis is apparent in this cohort with Long Covid and (relatively) mild PEM. Long COVID Physio physoc.onlinelibrary.wiley.com/doi/full/10.11…

1/3 ❌PIP cuts will be devastating for people with #LongCovid and #ME Our new briefing shows these reforms will push people further from work, deepen poverty & worsen health. We’re calling on MPs to oppose the cuts-help us flood their inboxes. Link to briefing & how to act⬇️

Clip of Dr Binita Kane’s presentation to the joint APPG on ME & Long Covid: In 2025, A young woman is tube-fed, bed bound, and unable to sit up — yet she has no regular NHS support. How did we get here? Fundamentally, because ME was “wrongly psychologised”. #MECFS #LongCovid

And just like that we have completed the last patient visit in Derby for ERASE-LC A patient-led study with University of Derby University Hospitals of Derby and Burton NHS FT Peninsula Clinical Trials Unit (PenCTU) and University of Exeter seeking to help people with #LongCovid Thanks to everyone, especially the participants who gave so much to this work.

Well done Team Derby.. a great day for the project and everyone involved!!