Lipedema Foundation (@lipedemafndn) 's Twitter Profile
Lipedema Foundation

@lipedemafndn

The Lipedema Foundation is not a medical provider and shares content for informational purposes. Consult a healthcare professional about medical advice.

ID: 826152303518482432

linkhttp://www.lipedema.org calendar_today30-01-2017 19:37:13

570 Tweet

1,1K Followers

519 Following

Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Distinguishing #Lipedema from #Lymphedema is key to accurate diagnosis and care. Greater awareness leads to better outcomes. Did you learn something new?

Distinguishing #Lipedema from #Lymphedema is key to accurate diagnosis and care. Greater awareness leads to better outcomes. Did you learn something new?
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Diagnose #Lipedema? Join our Provider Directory to help patients find knowledgeable specialists. Submit your info today: bit.ly/49Oa9GS

Diagnose #Lipedema? Join our Provider Directory to help patients find knowledgeable specialists.

Submit your info today: bit.ly/49Oa9GS
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Clinicians who diagnose Lipedema: we invite you to join the LF Provider Directory. Help improve access to accurate diagnosis: bit.ly/49Oa9GS

Clinicians who diagnose Lipedema: we invite you to join the LF Provider Directory.

Help improve access to accurate diagnosis: bit.ly/49Oa9GS
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Our Professional Education Manager, Courtney Mascio, joined 8,000+ OTs at #AOTAINSPIRE2025 in Philly to raise awareness about Lipedema. We're building connections to improve early recognition + support for patients. #LipedemaAwareness

Our Professional Education Manager, Courtney Mascio, joined 8,000+ OTs at #AOTAINSPIRE2025 in Philly to raise awareness about Lipedema.

We're building connections to improve early recognition + support for patients. #LipedemaAwareness
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Lipedema Foundation is excited to share a research opportunity offered by the University of Virginia, Department of Radiology! Volunteers (18+) both with and without a Lipedema diagnosis may be eligible for this virtual study. Learn more here: bit.ly/43K44vF

Lipedema Foundation is excited to share a research opportunity offered by the University of Virginia, Department of Radiology! Volunteers (18+) both with and without a Lipedema diagnosis may be eligible for this virtual study. Learn more here: bit.ly/43K44vF
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

One of Lipedema’s biggest challenges? Misdiagnosis. We're working to change that through research, education, and our Clinician’s Guide. Help us shorten the time to diagnosis. lipedema.org/clinicians-gui…

One of Lipedema’s biggest challenges? Misdiagnosis.

We're working to change that through research, education, and our Clinician’s Guide. Help us shorten the time to diagnosis. lipedema.org/clinicians-gui…
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Have you had a chance to read the LF Lipedema Biobank blog? It covers the Biobank’s launch at FDRS, the first biosamples collected, and the research that may be starting as a result. bit.ly/42WOZq4

Have you had a chance to read the LF Lipedema Biobank blog?

It covers the Biobank’s launch at FDRS, the first biosamples collected, and the research that may be starting as a result. bit.ly/42WOZq4
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

The Lipedema Foundation exhibited at #AAPA2025, where our team member, Kiara Hines, connected with Physician Associates to raise awareness about Lipedema. aapa.org/conference/ Grateful for the interest, questions, and conversations about what better care can look like.

The Lipedema Foundation exhibited at #AAPA2025, where our team member, Kiara Hines, connected with Physician Associates to raise awareness about Lipedema. aapa.org/conference/ 

Grateful for the interest, questions, and conversations about what better care can look like.
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

June is #LipedemaAwareness Month! This year’s theme: Lift the Stigma. Learn the Truth. We’re sharing stories, resources, and research all month to raise awareness and spotlight how Lipedema differs from Obesity and Lymphedema. Join us! bit.ly/4kb5zIO

June is #LipedemaAwareness Month! This year’s theme: Lift the Stigma. Learn the Truth.

We’re sharing stories, resources, and research all month to raise awareness and spotlight how Lipedema differs from Obesity and Lymphedema. Join us! bit.ly/4kb5zIO
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

The #LipedemaAwarenessMonth Toolkit is live! đź’ś Grab pre-made and customizable graphics to help spread awareness all June. Post, tag us, and use #LipedemaAwareness so your voice is heard. bit.ly/4kb5zIO

The #LipedemaAwarenessMonth Toolkit is live! đź’ś Grab pre-made and customizable graphics to help spread awareness all June. Post, tag us, and use #LipedemaAwareness so your voice is heard. bit.ly/4kb5zIO
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Last November, more than 80 researchers, clinicians, and invited guests from 13 countries attended our scientific retreat to share unpublished findings and explore new research directions. Read the highlights in our latest blog: bit.ly/4jBY8ti #Lipedema

Last November, more than 80 researchers, clinicians, and invited guests from 13 countries attended our scientific retreat to share unpublished findings and explore new research directions.

Read the highlights in our latest blog: bit.ly/4jBY8ti #Lipedema
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

LF officially launches our Scientific Advisory Committee (SAC). This expert group formalizes long-standing collaborations and will help guide research, diagnosis, and treatment development. More details will be provided soon on our website. #Lipedema #LipedemaResearch

LF officially launches our Scientific Advisory Committee (SAC). This expert group formalizes long-standing collaborations and will help guide research, diagnosis, and treatment development.

More details will be provided soon on our website. #Lipedema #LipedemaResearch
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Lipedema and lymphedema are often confused, but they are different conditions. Lipedema has its own symptoms and challenges. Misunderstanding the difference can delay helpful care and support. bit.ly/4kb5zIO #LipedemaAwareness

Lipedema and lymphedema are often confused, but they are different conditions.

Lipedema has its own symptoms and challenges. Misunderstanding the difference can delay helpful care and support. bit.ly/4kb5zIO #LipedemaAwareness
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Our updated Lipedema Provider Directory is live. Looking for care? Start here. Know a provider? Encourage them to join. Had a great experience? Share it. Help us grow the list of clinicians who understand and treat Lipedema: bit.ly/43DR4Gk #LipedemaAwareness

Our updated Lipedema Provider Directory is live.

Looking for care? Start here.
Know a provider? Encourage them to join.
Had a great experience? Share it.

Help us grow the list of clinicians who understand and treat Lipedema: bit.ly/43DR4Gk #LipedemaAwareness
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Discover 10 crucial things about Lipedema, from its chronic nature to potential management strategies. Learn how this condition impacts lives and find hope through research and support. Read the full blog here: bit.ly/3R8ASHW

Discover 10 crucial things about Lipedema, from its chronic nature to potential management strategies. Learn how this condition impacts lives and find hope through research and support.

Read the full blog here: bit.ly/3R8ASHW
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

This #LipedemaAwareness Month, help advance research. Join the Lipedema Foundation Registry to share your experience and support critical studies on disease progression, care, and outcomes. Diagnosed or suspected Lipedema, all voices matter. Join here: lipedema.org/informed-conse…

This #LipedemaAwareness Month, help advance research. Join the Lipedema Foundation Registry to share your experience and support critical studies on disease progression, care, and outcomes.

Diagnosed or suspected Lipedema, all voices matter. Join here: lipedema.org/informed-conse…
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

We are halfway through #LipedemaAwarenessMonth, and you can still get involved! Wear purple, share resources and help break the stigma. 💜 lipedema.org/lipedema-aware… #LipedemaAwareness

We are halfway through #LipedemaAwarenessMonth, and you can still get involved! Wear purple, share resources and help break the stigma. 💜 lipedema.org/lipedema-aware… #LipedemaAwareness
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

Still need to finish your Lipedema Foundation Registry survey? Your completed data helps researchers better define, diagnose, and treat Lipedema, but we can’t use it until it's submitted. Resume your survey: lipedema.org/registry See the impact: lipedema.org/registry-first…

Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

We’ve updated our Provider Directory, and we’re expanding it. This #LipedemaAwareness Month, help us connect patients with providers who recognize, diagnose, and support those living with Lipedema. Know someone? Encourage them to join: docs.google.com/forms/d/e/1FAI… #Lipedema

We’ve updated our Provider Directory, and we’re expanding it.

This #LipedemaAwareness Month, help us connect patients with providers who recognize, diagnose, and support those living with Lipedema.

Know someone? Encourage them to join: docs.google.com/forms/d/e/1FAI… #Lipedema
Lipedema Foundation (@lipedemafndn) 's Twitter Profile Photo

As #LipedemaAwarenessMonth comes to a close, we thank everyone who helped advance awareness and education. Your advocacy drives research, improves recognition, and supports efforts to improve care for those living with Lipedema. bit.ly/4kb5zIO