Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile
Lipodystrophy UK

@lipodystrophyuk

Lipodystrophy UK is here to support people affected by lipodystrophy and raise awareness, while working towards better patient well-being

ID: 827941176233906176

linkhttp://www.lipodystrophyuk.org calendar_today04-02-2017 18:05:33

1,1K Tweet

329 Followers

148 Following

Prof Nisreen Alwan 🌻 (@dr2nisreenalwan) 's Twitter Profile Photo

1/ As a professor from a severely under-represented intersectional background I sometimes get asked by mentees & peers how I deal with people’s & system bias adversely impacting me personally. So what works for me might not work for other but here goes: 🧵 #AcademicTwitter

Diabetes UK (@diabetesuk) 's Twitter Profile Photo

Researchers have developed a ‘smart’ insulin (NNC2215) that switches on & off based on blood sugar levels, effectively lowering glucose without causing hypos. Created by an international research team, it uses a unique ‘switch’ mechanism to respond to changing glucose levels.

Researchers have developed a ‘smart’ insulin (NNC2215) that switches on & off based on blood sugar levels, effectively lowering glucose without causing hypos. Created by an international research team, it uses a unique ‘switch’ mechanism to respond to changing glucose levels.
Rebecca Sanders 💙 🇺🇦 (@becky_sanders_) 's Twitter Profile Photo

Just nominated my favourite charity 💜😉 There is the option to nominate ⁦⁦⁦Lipodystrophy UK⁩, then other charities too if you have lots of favourites! Took me a few seconds 🤗 Please support us and share 😊 doinggoodleeds.org.uk/news/movement-…

Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

Just nominated my favourite charity 💜😉 There is the option to nominate ⁦⁦⁦Lipodystrophy UK⁩, then other charities too if you have lots of favourites! Took me a few seconds 🤗 Please support us and share 😊 doinggoodleeds.org.uk/news/movement-…

Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

Ready to represent! Flying towards the next Lipodystrophy Global Leaders Meeting where we’ll be discussing all things #Lipodystrophy and how we can make the biggest impact for #patients. #PatientAdvocacy #PatientVoice #GlobalAlliance #StrongerTogether #LipoSistersOnTour

Ready to represent! Flying towards the next Lipodystrophy Global Leaders Meeting where we’ll be discussing all things #Lipodystrophy and how we can make the biggest impact for #patients. #PatientAdvocacy #PatientVoice #GlobalAlliance #StrongerTogether #LipoSistersOnTour
Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

And that’s a wrap! Heading home. Fantastic meeting with some real progress made. Watch this space… #Lipodystrophy #RareDisease #PatientAdvocacy #PatientVoice

And that’s a wrap! Heading home. Fantastic meeting with some real progress made. Watch this space… #Lipodystrophy #RareDisease #PatientAdvocacy #PatientVoice
National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

One week until #RareDiseaseDay! 🦓 On Feb. 28, we unite for the 300 MILLION people worldwide living with a #RareDisease. 💙💜💚 This is your moment to step up: #ShowYourStripes, share your story, and take action with NORD! Check out our social media toolkit and other resources

One week until #RareDiseaseDay! 🦓 On Feb. 28, we unite for the 300 MILLION people worldwide living with a #RareDisease. 💙💜💚

This is your moment to step up: #ShowYourStripes, share your story, and take action with NORD! Check out our social media toolkit and other resources
Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

Ready to represent, here at the “Connecting the Dots” first Oxford Rare Disease Student Conference 2025. #RaisingAwareness with the next generation of Clinicians and Researchers at Magdalen College #PatientVoice #RareDisease #Lipodystrophy

Ready to represent, here at the “Connecting the Dots” first Oxford Rare Disease Student Conference 2025. #RaisingAwareness with the next generation of Clinicians and Researchers  at <a href="/magdalenoxford/">Magdalen College</a> #PatientVoice #RareDisease #Lipodystrophy
Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

I celebrated #RareDiseaseDay2025 in #ZebraStyle! Some wonderful colleagues joined me in bringing some joy& #Awareness to the office. We had great fun prancing about & entertaining the team! More importantly, we're helping #RaiseAwareness of #RareDisease, including #Lipodystrophy.

I celebrated #RareDiseaseDay2025 in #ZebraStyle! Some wonderful colleagues joined me in bringing some joy&amp; #Awareness to the office. We had great fun prancing about &amp; entertaining the team! More importantly, we're helping #RaiseAwareness of #RareDisease, including #Lipodystrophy.
Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

All ready for our Lipodystrophy Patient Day 2025! We have a packed agenda tomorrow - Can’t wait. #Lipodystrophy #PatientSupport #RaisingAwareness #StrongerTogether #LipoSisters

All ready for our Lipodystrophy Patient Day 2025! We have a packed agenda tomorrow - Can’t wait. #Lipodystrophy #PatientSupport #RaisingAwareness #StrongerTogether #LipoSisters
Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

Today is #WorldLipodystrophyDay2025. #Lipodystrophy encompases a group of rare conditions characterised by a loss of #AdiposeTissue, causing severe #MetabolicComplications. You can find out more at lipodystrophyuk.org #TreatmentEquity #PatientVoice #StrongerTogether #WLD2025

UoA Medicine, Medical Sciences and Nutrition (@abdnlifescience) 's Twitter Profile Photo

March 31st was #WorldLipodystrophyDay but Rowett Institute learn more about Lipodystrophy every day. Photographed are just some of the scientists who are researching treatments for this rare and debilitating condition with support from @diabetesUK @lipodystrophyUK @theBHF and more!

March 31st was #WorldLipodystrophyDay but <a href="/rowett_abdn/">Rowett Institute</a> learn more about Lipodystrophy every day.

Photographed are just some of the scientists who are researching treatments for this rare and debilitating condition with support from @diabetesUK @lipodystrophyUK @theBHF and more!
Lipodystrophy UK (@lipodystrophyuk) 's Twitter Profile Photo

Ready to #RepresentPatients at #ECLip2025 in Paris. #Lipodystrophy #RareDisease #RaisingAwareness #PatientVoice #LipoSistersOnTour

Ready to #RepresentPatients at #ECLip2025 in Paris. #Lipodystrophy #RareDisease #RaisingAwareness #PatientVoice #LipoSistersOnTour