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Excited for the future and all the possibilities for TSC and LAM research!

Proud to be attending #RLDC2018 and joining our partners from TheLAMFoundation.

Dr. Frank McCormack: 10 things we could do better clinically for #LAM patients #RLDC2018 #LAMposium #RareDisease #RareLungDisease

Inspiring comments!

Congratulations to all the LAM Foundation staff on a productive and exciting LAMPosium. The work you do on behalf of our community is amazing. Thank you!

International TSC Conference in Tokyo. Remarkable advances discussed: topical Sirolimus for angiofibromas and everolimus for seizures. Many thanks to Drs Okio Hino and Megumi Takei for hosting this important meeting.

Excellent LAM talks by Kuniaki Seyama, Nishant Gupta, Jeanine D’Armiento & Jane Yu and great discussion at Tokyo TSC conference. Next steps: GnRH? mizoribine? Cellcept? Immunotherapy?

Great visit today to Vanderbilt University to speak about TSC and LAM at Medical Grand Rounds. Thanks to my host Kimryn Rathmell and to all of the amazing faculty!

It's time to save the date for the 2019 Million Dollar Bike Ride on June 8 in Philadelphia! This year's event will be just in time for World Wide LAM Awareness Month—what better way to celebrate than by fundraising? #MDBR2019 #WWLAM

After all the papers on PI3K signaling--this set of associations suggest we really don't know what the driver is at least in RCC. Need the data on phospho-S6 or phospho-AKT, too, but if "pathway" activation isn't the mediator, what else is PTEN doing?

Event for LAM patients and families in Portsmouth NH last weekend. Thanks TheLAMFoundation for sponsoring these events! Great to see friends and meet new LAM patients. Lots of great questions from the audience.

Less than one week until Discover Brigham. Are you registered? fal.cn/Sopw #DiscoverBrigham

Spoke about LAM today at Brigham and Women's Hospital Advances in Pulmonary and CC Medicine course. About half of attendees had clinical experience with LAM. Great opportunity to spread the word about the amazing progress in LAM!

Join us in 2 weeks for a free webinar, presented as part of Tuberous Sclerosis Complex Week at American Thoracic Society (ATS). Pulmonary Manifestations of TSC presented by Nishant Gupta, MD 3 PM Eastern | Thursday, November 15 Register now at register.gotowebinar.com/register/55492….

Important paper from ⁦Lisa Henske⁩ and colleagues demonstrating that regulation of the TFEB-lysosome system is flipped in TSC and is a major feature of this disorder. As with any homeostatic system, the regulation of TFEB is anything but linear. nature.com/articles/s4146…

Excited to be speaking later today at the BHD symposium. Birt Hogg Dube is a rare disease causing lung collapse and kidney cancer. #BHD2021 #thinkBHD

Amazing participation at the TSC Clinic Directors Meeting helping kick off the #WorldTSCConference TSC Alliance

So happy to be at the #worldtscconference with so many friends and colleagues. Thanks to TSC Alliance for making this possible! Families and affected individuals are connecting with each other and with scientists and clinical leaders.

Day 2 of the #worldTSCconference kicked off our education sessions featuring topics covering the entire TSC experience & world renowned TSC experts. Thank you to our title sponsor Jazz Pharmaceuticals & our Presenting Sponsor Nobelpharma America. We are hopeful, relentless & strong together!

So much great science and collaboration at the TheLAMFoundation LAM Foundation conference. Great work shout out to LoyolaPCCM Trevor Thompson and Anila Khan #cureLAM