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"There's no sign of attenuation of that risk" "People who caught Covid in 2020, had twice the risk of a major cardiac event like a heart attack or stroke or death for almost 3 years after their illness, compared with the people who didn’t test positive" edition.cnn.com/2024/10/09/hea…

CIDRAP: '1 in 5 COVID survivors still have symptoms 3 years after severe infection, analysis estimates' 'Neurologic symptoms such as impaired memory, dizziness, and peripheral neuropathy were common, along with fatigue...' cidrap.umn.edu/covid-19/1-5-c…

A meta-analysis of studies on survivors of severe Covid from 2020 showed 20% of the sampled patients still had symptoms and sequelae three years from infection. Neurological, cardiovascular and pulmonary sequelae were among the most prevalent #LongCovid onlinelibrary.wiley.com/doi/10.1002/jm…

“Their findings suggest that #LongCovid may have surpassed asthma—which around 5 million youngsters have—as the most common chronic condition experienced by American children.”

Just published Reframing beliefs about their illness does not lead to recovery of tube-fed patients with very severe ME/CFS. Analysis of the BMJ article by Miller et al. papers.ssrn.com/sol3/papers.cf… Or: researchgate.net/publication/39… #MEcfs #MyalgicEncephalomyelitis #VerySevereME

Today, we handed in over 100,000 petition signatures to 10 Downing Street 📋 It’s a clear message to the government: the cost of cuts is catastrophic ✂️

1/3 ❌PIP cuts will be devastating for people with #LongCovid and #ME Our new briefing shows these reforms will push people further from work, deepen poverty & worsen health. We’re calling on MPs to oppose the cuts-help us flood their inboxes. Link to briefing & how to act⬇️

I want to see non-disabled people shouting about the disability benefit cuts. If you spoke out about trans rights, abortion rights, or migrant rights in recent weeks? Good on you! If you aren’t doing the same for disabled people, ask yourself why.

“As a result of Ondine’s advocacy, the “Long Covid groups”, four campaign groups (3 are now charities) including Long Covid SOS @longcovidsos.bsky.social , became core participants in the government’s UK Covid-19 Inquiry” theguardian.com/society/2025/j…

theguardian.com/society/2025/j…

Reminder: write to your MP if you want them to oppose the cuts. Insiders say MPs haven’t heard from constituents as much as expected - making it harder to push back. This briefing includes lived experience data to help them make the case. Get it on their desks!

"It is without doubt that absent Ondine’s advocacy, the recognition and support for patients suffering post-acute sequelae from Covid-19 would have been far worse” Still in disbelief that Ondine is no longer with us. A true force of nature. A lovely obituary in the Guardian 👇🏼

Clip of Karen Hargrave @karenlhargrave.🦋.social, who has ME and her husband has very severe ME: “One of the biggest challenges people with #MECFS face is being believed and having their condition taken seriously.” From BBC Radio 4’s Today programme.

. BBC News (UK) Chronic fatigue is not in your head, it's in your blood - experts (not an appropriate title) Prof Chris Ponting said: "For so long people with ME/CFS have been told it's all in their head. It's not. We see it in their blood"." bbc.co.uk/news/articles/… #pwME #MECFS

Our latest review on "Neuroimmune pathophysiology of long COVID" is out today! Amazing work of janna moen, phd is still masking 😷 and Christopher A. Baker 👏🏼👏🏼👏🏼 It is open-access; please share widely. #Neuroimmune #PAIS #LongCovid onlinelibrary.wiley.com/doi/10.1111/pc…

A new #LongCovid clinical trial is enrolling for bezisterim, an investigational anti-inflammatory drug that crosses the blood-brain barrier. It has been studied in neurological & neurodegenerative disorders, including Alzheimer’s & Parkinson’s. 1/

I'm excited about this #LongCovid trial! If you meet the eligibility criteria, please consider enrolling - more sites nationwide to be added:

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET! Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers. Register: us02web.zoom.us/webinar/regist… #LongCOVID

We're hosting a webinar on the results of our Patient-Led Research Fund - 10 biomedical studies all selected by patients! Please join! us02web.zoom.us/webinar/regist… #LongCovid

“It is crucial that our new Labour government does not fail in its duty regarding Long Covid; it impacts far too many people to be ignored, and costs the nation a significant amount in lost productivity.” Ondine Sherwood ⁦Long Covid SOS @longcovidsos.bsky.social⁩ #LongCovid longcovidsos.org/post/the-long-…