
Long Covid Wales 🏴
@longcovidwales
Devolved Welsh Campaigning Offshoot of 60k strong patient-led UK Support Group @long_covid #LongCovid #Wales #TreatLongCovid
ID: 1316757892243087361
http://longcovid.org 15-10-2020 15:09:53
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2,2K Followers
818 Following


Together with Long Covid Kids / [email protected] we conducted the first ever survey on the impact of reinfections on people with Long Covid. Please help ensure they have the option to get the booster if they want it. Like so many others that aren't, & should be, on the list. longcovid.org/impact/stories…

A pilot study investigating the use of hyperbaric oxygen therapy in people affected by Long Covid. Latest blog from Supporting Healthcare Heroes UK by paulgill.bsky.social. Long Covid Support 🌍 Long Covid SOS @longcovidsos.bsky.social Long Covid Kids / [email protected] Long COVID Physio @Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 PenScribbler shh-uk.org/a-pilot-study-…

Please sign and share widely for #LongCovid #LongCovidKids International #LongCovidAwareness Day and Month to be recognised. International Long Covid Awareness actionnetwork.org/letters/ask-th…

Tune in to BBC The One Show tonight at 7pm and watch the Long Covid piece with Binita Kane. #LongCovid #LongCovidKids #LongCovidAwareness #TreatLongCovid


Please help us continue to support people w/#LongCovid: Peer support Research involvement Health & Work advocacy Long Covid Support is registered with easyfundraising so over 7,000 brands will donate to us for FREE every time you use easyfundraising to shop with them.easyfundraising.org.uk/causes/longcov…

A truly inspiring lecture from Ziyad Al-Aly, MD. Thanks to @Daltmann10 Imperial Medicine Imperial College London for hosting. Thanks for continually putting the #LongCovid community and its advocates at the centre of the huge amount of work that you do. #TreatLongCovid Oonagh Cousins Jo D 😷💙


First UK billboard promoting NotRecovered and raising awareness for #LongCovid and #MECFS. This billboard is located at the following location in Bournemouth and will be up 24/7 for two weeks. google.com/maps/@50.75275…



2 years ago today Long Covid Support and Long Covid Kids / [email protected] created a Long Covid information leaflet. It is sadly as relevant now as it was then. Please share widely to ensure that everyone can get the support they need. Link here - longcovid.org/information-le… #LongCovid #LongCovidKids



🎄With Christmas approaching, many of us will be shopping online. Why not register with Give as you Live 💙❤️💚 and raise funds for Long Covid Support to help us continue our work! 🎁 It costs you nothing extra and could make a big difference to us! #LongCovid giveasyoulive.com/charity/long-c…

🔴Weds 29th Nov. 6pm GMT🔴 ‘Antibody immune profiling in #LongCovid - a clue to viral persistence?’ 📣Binita Kane with Long Covid Support invite you to our inaugural Fireside chat. This session - Prof Andrew Shaw, CEO/founder of Attomarker. ➡️ YouTube: youtube.com/@LCCWYCD


Save the date! 3rd Jan 2024 at 6pm GMT Binita Kane speaks to @TobyRichardsUCL founder of the Iron Clinic to discuss a much neglected area in mainstream medicine. Tune in to understand the role of iron in health, interpreting ferritin levels, and when & how to treat.


🚨From LOCOMOTIONstudy - impact of #LongCovid on productivity: ❗️51.7% reduced paid work hours ❗️Mean monthly work income ⬇️ 24.5% ❗️Average aggregate value of productivity loss since incident infection, extrapolated nationally: 🚨£5.7 billion🚨 link.springer.com/article/10.100…


📢 New Community Video online! Long Covid Support (Long Covid Support 🌍) shares their journey and mission to support those affected by #LongCovid. Learn about their impactful work in peer support, advocacy, and more! 📽️ Watch now: youtu.be/9akAXpIb9LY

🚨Joseph Kwon at LOCOMOTIONstudy’s webinar: ‼️EQ5D of p/w #LongCovid worse than 229/271 disease groups incl. brain cancer, schizophrenia, acute myocardial infarction ‼️Value of QALY loss - £2.05bn annually; £6.13 bn since start of LC - represents approx 25% total burden


I’ll be leading a short debate on #LongCovid on Wednesday evening. Thank you to everyone who has contacted me about it. While I can’t use every story, your lived experience is vital in informing my speech. ✉️: [email protected]
