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🆕 Our scoping review identifies 25 candidate domains for OMERACT SLE Core Outcome Set Wils Nielsen, PhD Candidate Zahi Touma, MD, PhD Domains cover disease activity, life impact, adv events, economic cost 🔹 Patient perspectives included—ensuring a holistic approach! #lupus sciencedirect.com/science/articl…

🆕 Editorial: ABC of lupus nephritis #lupus #nephritis Asoreuma 👇🏻 sciencedirect.com/science/articl…

📢 Participate in the Pain Mapping & Psychosocial Predictors of Depressive Symptoms in Lupus study by Queen's University! 🦋 Help researchers understand how pain, mood, and beliefs about pain impact people with #lupus. 🔗 Take the survey: queensu.qualtrics.com/jfe/form/SV_3C…

What will be the benefit of your project for Lupus patients? “Validation of a Score for the Prediction of Serious Infection in Patients with Systemic Lupus Erythematosus: Data from a Latin American Lupus Cohort” linkedin.com/feed/update/ur…

Symptoms of #lupus in children are the same as in adults, including: 👉 Low grade fever for no apparent reason 👉 Fatigue 👉 Joint pain 👉 Butterfly rash 👉 Sores in the mouth or nose 👉 Weight loss Raising awareness of the symptoms is key for an early diagnosis #WORDDAY2025

😰The moment your child is diagnosed may be overwhelming for you. This can go away with time & access to the✅ information like f.mtr.cool/ooswyifhck Remember: it is impossible to learn everything about #lupus overnight! Your child's Dr is the best source of ℹ️ #WORDDAY2025

💊Apart from pharmacological treatment, other non-pharmacological measures can help in #lupus management. 🏃Did you know exercise has been shown to improve SLE symptoms like #fatigue? More at #Lupus100 f.mtr.cool/zthpwqrolr Also, follow our exercise programme! #WORDDAY2025

✅ Check our LATEST PAPER 💪 >40% of #lupus patients were not physically active enough & we found an inverse association with fatigue, pain, stress & depression ➡️ We should encourage more PHYSICAL ACTIVITY in patients with #SLE 👍 doi.org/10.1136/lupus-…

🦋 Turn to your #lupus association for support. 🇪🇺 There are many organisations across Europe that can help you and your child cope with the disease. 👀 Look for the one closest to you here ➡️ f.mtr.cool/crflcqlovr ℹ️ More, at #Lupus100 f.mtr.cool/wswnsdvtdu #WORDDAY2025

✅ Levels of physical activity (PA) 🤸🤾🏋️🚴🧘 in a large cohort of patients with #Lupus. Strong association between LOW physical activity and pain, stress, depression, fatigue etc... 😢 📥 DIRECT (FREE) PDF DOWNLOAD: lupus.bmj.com/content/lupuss…

✅ Levels of #physical #activity in a large cohort of patients with #lupus, showing that #SLE patients with LOWER PHYSICAL ACTIVITY have MORE #pain, #fatigue, #stress, and #depression 😭 Open-access download: lupus.bmj.com/content/lupuss…

journals.lww.com/jclinrheum/abs… 🧬 SLE is not just about autoantibodies — new research highlights a major role of innate immunity: ⚡️ Oxidative stress 🧫 Mitochondrial dysfunction - cGAS-STING pathway 📉 Targeting B/T cells may not be enough — time to rethink lupus therapy

Systemic lupus erythematosus: one year in review 2025 ⏩Breakthroughs in SLE research 2024: New insights into immune dysregulation ⏩Emerging treatments: Promising therapies ⏩Real-world impact: Anifrolumab and belimumab continue to prove effective doi.org/10.55563/cline…

✅ T2T in #Lupus 👀 ⬇️⬇️ 📥 LINK authors.elsevier.com/a/1kdub5alwYF%… #NosVemosEnPANLAR2025

🚨 New American College of Rheumatology (#ACR) Guideline for the Screening, Treatment, and Management of #Lupus #Nephritis doi.org/10.1002/acr.25…

✅ If you have #LUPUS and would like to test #SLAKE, our DIGITAL study designed to TEST your level of ESSENTIAL KNOWLEDGE about #SLE, please go to: -English: lupusresearch.limequery.org/775349?lang=en -Español: lupusresearch.limequery.org/775349?lang=es Or go to English and select one of the 15 available languages 👌

✅ IF YOU ARE LIVING WITH #LUPUS, you can now try #SLAKE, the ONLINE DIGITAL research tool for assessing your ESSENTIAL KNOWLEDGE about #SLE in English, German, Arabic, Spanish, Chinese, Français, Hindi, Indonesian, Dutch, etc... using the following LINK: maladie-autoimmune.fr/SLAKE

🦋How well do you really understand #lupus? Try #SLAKE: a 5-minute quiz created by Prof. @LupusReference & the SLAKE team with major support from Lupus Europe. ✔️20 languages ✔️Different questions every time you use it 🔗 maladie-autoimmune.fr/SLAKE/ 😃Let us know what you think!

Risk factors of gangrene secondary to systemic lupus erythematosus ◦ Peripheral digital #gangrene is a relatively rare manifestation of systemic #lupus erythematosus (SLE), with scarce reports of its prevalence in SLE cohorts varying from 0.67% to 1.3%. However, it is often

✅ Therapeutic adherence (taking treatments as prescribed) slide 2 ERN ReCONNET 🇪🇺 ➡️ Understanding WHY treatments are not taken as prescribed, because it changes the advice we can give to #patients🙏