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Book your Patient Partnership Week events 🌟Implementing shared decision making 🌍Empowering patients as equal partners in care 🗣️In conversation with Patient Safety Commissioner 💿Joining services around patients: the role of data All events are free. patients-association.org.uk/Pages/Events/C…

"Uncertainty is fuel for science" - wish that was more recognised! James Lind Alliance So often it is doctors who determine Public Health messages & doctors find #uncertainties difficult - they need Y or N.

Are you listened to as a patient? Are you heard? Is the usefulness & relevance of your testimony recognised.. ever?! Empowering patients as equal partners in care. Free webinar patients-association.org.uk/events/empower…

If LymeScience would look at science more it would find European quality evidence for continuing symptoms post LB. pubmed.ncbi.nlm.nih.gov/34557833/ Don't know why but if we don't acknowledge & research, we won't find out NLBF Stichting Tekenbeetziekten @HaraldReiso Tick-Borne Diseases of Europe Sue Nelson

If science writers, esp for BBC Future want to know science of #Lyme disease before they write, they might like to refer to our website including the Reality Check lymediseaseaction.org.uk/about-lyme/rea… Sue Nelson. @PIFTick accreditation matters for #health information!

Thanks this week to Dartmoor Hill Farm Project Dartmoor National Park The Moredun Foundation APHA for productive discussion re #ticks & disease in humans & livestock. Farmers, vets, researchers, patients - what a good conversation about what affects us all!

It would be interesting to use this modelling to see whether this also predicts a rise in Lyme disease. Will the Borrelia rodent hosts survive the winter more?University of Stirling Livestock TBDs like Louping Ill Virus too?

Important #pharmacist can distinguish between a #Lyme disease EM rash caused by tick bite and an infected insect bite. Infected bite usually hot and itchy but EM rash usually neither. National Pharmacy Association Reena Barai Michael Dowdall open access e-module from @RCGP lymediseaseaction.org.uk/resources/for-…

Thanks to We're not on X anymore – formerly @PifOnline for keeping the scheme going - #patients, public, #pharmacists, #nurses and #doctors all need to know where to find answers to difficult questions. On any health condition, follow the PIF TICK!

Webinar with UK Health Security Agency on Vector-Borne Disease Thurs Sept 5 10.30-11.30 Register here forms.office.com/Pages/Response… @B_Tschirren RoyalForestrySociety Andrea Bonacker Chris Mills Dartmoor National Park

Good video from UK Health Security Agency on vector-borne diseases - the battle against ticks and mosquitoes. lymediseaseaction.org.uk/latest-news/uk…

We really need this for #LymeDisease or research will carry on stagnating and not finding answers that are desperately needed. lymecos.org

Thank you for opening - Interesting to see and hear about new techniques & facilities for researchers. Progress in many fields, though not yet #Lymedisease. We need interested researchers!

We hope you will genuinely engage patients & the public in continuing research into UK #Lyme disease. Look forward to hearing from you! Guidelines currently based on European research & we have some differences; they may matter. @LHSTM lymediseaseaction.org.uk/latest-news/is…

Rather surprised that this The BMJ editorial is not #OpenAccess. Any reason BMJ Patient Editor? Patient involvement in developing clinical guidelines bmj.com/content/387/bm…

In the UK #Lymearthritis is fairly rare. But if you happen to have arthritis and high CRP with #Lyme then a BSR doc may see you. If you still have symptoms post treatment ask them to read bsky.app/profile/lymedi… We need Docs to take an interest Dr Ben Marsh 💙 @smhopkins

Editor's choice @bmj.com-“The task we face ... in medicine and healthcare is to hold firm to information that’s trusted, ..”. But trusted by whom? By doctors who say continuing symptoms after #Lyme disease are not due to Lyme? Or researchers publishing data showing they might be?

Great notice board in Richmond Park Friends of Richmond Park raising awareness of #ticks and #Lyme disease The Royal Parks. Anyone else need leaflets or images? Just contact us.

Summer’s a great time to get outside, but ticks love the outdoors too. 🌳☀️ If you're walking through grassy or wooded areas, take a look at our guidance to help you stay safe and #BeTickAware. 👇