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MDI is looking to expand its group of PPI contributors — especially welcoming parents and caregivers of those with neuromuscular conditions mdi.ie/all-news-artic…

They are interested to hear from young people with a muscular dystrophy or related neuromuscular conditions. See details in the poster below or visit the link. mdi.ie/all-news-artic…

This informal, one-hour session is open to all MDI members living with neuromuscular conditions — whether you’re new to MDI, or have simply never had the chance to join the space. mdi.ie/event-list/wel…

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This is an exciting and pivotal time to talk about the power of Assistive Technology as we all have access to AT, in some form now on all our devices, in our day-to-day lives. mdi.ie/all-news-artic…

Dive into voice-activated tools, universal design, the stigma around assistive tech, and how small mindset shifts can create more inclusive software and systems. mdi.ie/all-news-artic…

The deadline to submit an expression of interest to [email protected] is the 30th April. The consultation relates to improving care for people with all neurological conditions, including muscular dystrophy and related neuromuscular conditions. mdi.ie/all-news-artic…

Sessions will be available from early May. We encourage early applications, as places are limited. Final applications will be accepted no later than 11th May. mdi.ie/all-news-artic…

Huge congrats and thanks to the students, staff and parents of Church Hill National School in Kilkenny! mdi.ie/all-news-artic…

This years MDI Youth Camp at Barretstown will take place 16-18 May. We have 25 MDI families signed up for this exciting weekend. This is an excellent opportunity for vital peer connection for the whole family while participating in recreation activities youtu.be/lTyX-4Qcr3s

20 adults in Ireland are being denied life-saving treatments for Spinal Muscular Atrophy simply because of their age when the HSE approved them. Please email your local TDs & senators to ask them to support #SMAtreatmentsforall: mdi.ie/smatreatmentsf…

20 adults in Ireland are being denied life-saving treatments for Spinal Muscular Atrophy simply because of their age when the HSE approved them. Please email your local TDs & senators to ask them to support #SMAtreatmentsforall: mdi.ie/smatreatmentsf… SMA Ireland

For more information about #SMAtreatmentsforall please visit: mdi.ie/smatreatmentsf…

20 adults in Ireland are being denied life-saving treatments for Spinal Muscular Atrophy simply because of their age when the HSE approved them. Please email your local TDs & senators to ask them to support #SMAtreatmentsforall: mdi.ie/smatreatmentsf… Neurological Alliance of Ireland SMA Ireland

Please support our campaign to allow adults with SMA access to treatment. Please, visit: bit.ly/4mpYWnk and email your TD asking for them to support access to SMA treatments in Ireland for all, regardless of their age. #SMATreatmentsforall Neurological Alliance of Ireland

SMA is a progressive condition, and every single day counts. Everyone should have access to the same standard of healthcare, regardless of their age. Please join our campaign and visit: bit.ly/4mpYWnk to email your local TD, asking for their support #SMATreatmentsForAll

Today we are sharing Naglis’ experience of receiving treatment for SMA. Naglis was under eighteen at the time of approval of his treatment & is able to access the treatment for life. Meanwhile, his peers over 18 have no access. bit.ly/4mpYWnk #SMATreatmentsForAll

Conor O’Kane, 37, is an adult with type 2 SMA, living in Co Antrim. Because, he lives in Northern Ireland, he has access to treatments that peers his age in the ROI do not. Help advocate for the same standard of healthcare for everyone #SMATreatmentsForAll bit.ly/4mpYWnk

Please support our campaign to allow everyone living with SMA in Ireland access to life changing treatments #SMATreatmentsForAll Neurological Alliance of Ireland DFI SMA Ireland

Caring for a child with a rare disease brings emotional, social, & financial challenges. Share your experiences in a 30-min survey. Open to families in Ireland & NI! Click here for more information tinyurl.com/2u47yfm4 #RareDisease #HealthResearch mdi.ie/all-news-artic…