#MEAction Network UK (@meactnetuk) 's Twitter Profile
#MEAction Network UK

@meactnetuk

UK charity empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!

ID: 745955541055320064

linkhttp://www.meaction.net calendar_today23-06-2016 12:23:54

8,8K Tweet

6,6K Followers

585 Following

#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

We stand with people affected by ME to deliver a simple message to the UK government after generations of neglect and empty promises, now is the time for action. Read the joint statement organised by #ThereForME supported by #MEActionUK 👇🏼 #MillionsMissing #DisabilitySOS

We stand with people affected by ME to deliver a simple message to the  UK government after generations of neglect and empty promises, now is the time for action.

Read the joint statement organised by #ThereForME supported by #MEActionUK 👇🏼

#MillionsMissing   #DisabilitySOS
#MEAction Scotland (@meactionscot) 's Twitter Profile Photo

news.stv.tv/east-central/b… #MEAction Scotland volunteers will be outside the Scottish Parliament this morning from 12noon-2pm speaking to MSPs and amplifying the stories of people living with ME.

#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

#MEAction Scotland rally outside the Scottish Parliament takes place today from 12noon-2pm. Watch the livestream on their FB page rom 12.

#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

The wonderful #MEAction Scotland volunteers will be outside Scottish Parliament today from 12-2pm . Follow the livestream on FB Livestream begins 12, with the first speaker due at 12.10. Updates as time and energy allow. #MyalgicEncephalomyelitus #MyalgicE #pwME #MillionsMissing

The wonderful #MEAction Scotland volunteers will be outside <a href="/ScotParl/">Scottish Parliament</a> today from 12-2pm . 

Follow the livestream on FB

Livestream begins 12, with the first speaker due at 12.10. Updates as time and energy allow.

#MyalgicEncephalomyelitus #MyalgicE #pwME #MillionsMissing
#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

Lorraine Nuttall has sent her SOS by video. ❤️ We ask Medical Research Council, Wes Streeting, Ashley Dalton MP, Professor Chris Whitty, Department of Health and Social Care to read your messages and understand why funding research into ME is urgent. #DisabilitySOS #MillionsMissing #MyalgicEncephalomyelitus #MyalgicE

#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

All of us at #MEAction UK want to send a big thank you ❤️ to everyone who sent an SOS Medical Research Council, Wes Streeting, Ashley Dalton MP, Professor Chris Whitty, Department of Health and Social Care all who shared and liked a post and everyone supporting #pwME. #DisabilitySOS #MillionsMissing #MyalgicEncephalomyelitus

All of us at  #MEAction UK want to send a big thank you ❤️ to everyone who sent an SOS   <a href="/The_MRC/">Medical Research Council</a>, <a href="/wesstreeting/">Wes Streeting</a>, <a href="/AshleyDalton_MP/">Ashley Dalton MP</a>, <a href="/CMO_England/">Professor Chris Whitty</a>, <a href="/DHSCgovuk/">Department of Health and Social Care</a> all who shared and liked a post and everyone supporting #pwME.

#DisabilitySOS #MillionsMissing  #MyalgicEncephalomyelitus
#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

Great to see cross- party MSPs joined #MillionsMissing Scotland to show their support👏 Scottish Government included £4.5m in the Scottish Budget for specialist support for ME, LC & similar conditions. #MEAction Scotland's rally put pressure on to get the funding spent🚨 x.com/meactionscot/s…

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After a hectic #MillionsMissing it's time to relax, what better way than taking part in the Tea Party for ME tomorrow ? 🫖🧁 We would be delighted if you selected #MEAction UK for a donation. ow.ly/3Tk250VOGPi #DisabilitySOS #MECFS #LongCovid #MyalgicEncephalomyelitis

After a hectic #MillionsMissing it's time to relax, what better way than taking part in the Tea Party for ME tomorrow ? 🫖🧁

We would be delighted if you selected #MEAction UK for a donation.
ow.ly/3Tk250VOGPi

 #DisabilitySOS  #MECFS #LongCovid #MyalgicEncephalomyelitis
#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning & publication. ow.ly/vsOE50VVoEx #VerySevereME #MillionsMissing

We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning &amp; publication.

ow.ly/vsOE50VVoEx

 #VerySevereME #MillionsMissing
#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation. 🧁🫖💙 #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025

Our thanks to everyone who took part in Blue Sunday, held a tea party or quietly enjoyed some tea and cake. We send special thanks to everyone who sent us a donation.  🧁🫖💙

 #pwME  #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness #BlueSunday2025 #TeaPartyForME2025
#MEAction Network UK (@meactnetuk) 's Twitter Profile Photo

Amazing work from #MEAction Scotland. They have campaigned, lobbied and never given up on getting the updated NICE guideline on ME/CFS accepted in Scotland.  Can we send #MEAction Scotland some ❤️ for this outstanding achievement?