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The deadline for the IACFS/ME 2025 Virtual Research and Clinical Conference abstract call, which is sponsored by ME Research UK, has been extended to the 11th of June 2025, 5 PM New York City (USA) EDT time. Read more about the poster competition here: bit.ly/iacfsmeresearc…

For ME Awareness Week 2025, we shared infographics raising awareness about the debilitating nature of ME/CFS, but also about the research being conducted to tackle the symptoms associated with the disease. For ease of access, we have collated: bit.ly/mesymptomsandr…

As part of an ME Research UK-funded study, Prof. Elisa Oltra and colleagues have found that "HERV fingerprints" could distinguish between ME/CFS, fibromyalgia and healthy people, and may therefore be valuable in diagnosis. bit.ly/3SBQ6FB

A study has identified differences in the responses of particles in the body which play a key role in cell-cell communication following exercise between males with ME/CFS and male sedentary controls. Read more: tinyurl.com/3uwc7ehz

You can raise donations for us in one easy click with the Give as you Live Donation Reminder. 💸 It's free 🛍️ There are over 6,000 stores! Download and raise with no additional cost - tinyurl.com/ynkdkk59

New research has identified that long term persistent pain, commonly experienced by people with ME/CFS and those with Fibromyalgia, is processed differently in the nervous system from pain that comes from an injury or over exertion. Read more: bit.ly/4dXimMJ

Dr Rob Wüst – who is currently working on a project funded by ME Research UK – has been interviewed by Dr David Tuller about his team's latest research. Watch the interview: bit.ly/43TK7RM Read more about Dr Wüst’s ME Research UK funded work : bit.ly/45f6XWd

Strabane Weekly News reported on Hope 4 ME & Fibro NI's 13th May meeting at NI Parliament Buildings and that our participation " ... highlighted the role of scientific evidence in changing perceptions and guiding future service development." Full details: tinyurl.com/2s46j2z4

Prof. Taylor and Dr Latella's initial findings reported at the ANS conference in December suggest that impaired motoneuron behaviour could contribute to muscle weakness in ME/CFS, and the team now plans to explore the mechanisms causing this. meres.uk/taylor064

Gentle reminder - Father's Day is this Sunday. A chance to let someone close know much they mean to you. An e-card is a more environmentally friendly option and also saves on the cost of a stamp. tinyurl.com/2xxj7np7

As part of Walk for ME Alison Herbert will be walking 177 miles along Offa's Dyke from 20th June to 5th July tinyurl.com/yxaj9ftt Juno (picured) is particularly excited but not meant to be as too much for 4 paws. Thanks Alison for your support, good luck, & sorry Juno!

Awaiting TCS London Marathon ballot results? ME Research UK has a guaranteed entry & offering one lucky supporter the chance to run. Email [email protected] for an application form which we'll send out after the results are announced.

A study has highlighted the importance of “feeling heard, valued, and believed” by health professionals – whether consultations are conducted remotely or in person. Read more: tinyurl.com/4m8fx9ks #MECFS #MyalgicEncephalomyelitis

This week selected retailers are offering double, triple, or even 5x donation rates on Give as you Live. This means increased donations, at no extra cost to you but is time limited - offer starts today and ends 22nd June. tinyurl.com/3yyyvnbh

Using a dataset of over 2000 individuals with ME/CFS, researchers investigated sleep reversal, where individuals are awake at night and sleep during the day. Those with sleep reversal reported greater symptom burden and functional impairment. Read more: bit.ly/sleepreversalme

An incredible feat of endurance yesterday from Dillon, completing the marathon swim in 19hrs, all in aid of ME Research UK 💪🏊 Plenty of awareness raised for the ME community. One unexpected benefit of this awful disease is seeing how deeply kind some people are 💙 #ME #MECFS

Prof. Brett Lidbury and colleagues have published the findings of an ME Research UK-funded study in which they found associations between ME/CFS and several genetic variants, including genes involved in brain function and neuroblastoma bit.ly/4l76mLz

Unsuccessful in the TCS LondonMarathon ballot? Good news! ME Research UK has a spot for 2026. One lucky supporter can join! Visit our website & download an application form: tinyurl.com/4x95cr8z #LondonMarathon2026 #RunForACause #FundraisingChallenge

Today Alison Herbert starts her 177 mile walk along Offa's Dyke. She says "For every £1 you donate it's another step nearer to helping people with ME/CFS return to normal living." Thank you so much Alison. tinyurl.com/alison-hervert

Did you know last week ME Research UK was acknowledged as a funder in 2 studies by the media – including BBC News, & The Times. Prof Ponting & PhD student Gemma Samms, work included an updated est. of UK ME/CFS prevalence & biological signatures in the blood of those with ME?