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I just uploaded “Respecting Gender - Vicky” to #Vimeo: vimeo.com/749027697

I just uploaded “MJD - Vision” to #Vimeo: vimeo.com/749022104

I just uploaded “MJD How to use this resource.mp4” to #Vimeo: vimeo.com/748818542

I just uploaded “Mobility progression.mp4” to #Vimeo: vimeo.com/749970601

I just uploaded “Bowel function” to #Vimeo: vimeo.com/749974187

Australian paralympian and disability advocate Kurt Fearnley is the new chairman of the National Disability Insurance Agency, Bill Shorten has announced. Rebecca Falkingham is the new chief executive and Graeme Innes and Ms Maryanne Diamond join the board.

I just uploaded “No Shame, No Blame, Just Hope” to #Vimeo: vimeo.com/760179828

So delighted to be able to share some core findings from our collaborative intercultural participatory action research developing AAC systems in Yolŋu languages for Yolŋu living with MJD #AAC #accessforall #SLPeeps tandfonline.com/doi/full/10.10…

You might also be interested in our scoping review about developing AAC systems in languages other than English #AAC #accessforall #SLPeeps pubs.asha.org/doi/10.1044/20…

At Macquarie University with a cheque for $12,000 presented to Dr Angela Laird’s Laird Neuro Treatment Team Funds raised by the wonderful Bec Lyons. We also got to hear the latest from the inspiring research of Dr Laird’s team, using zebra fish and mice to find a treatment for MJD.

NAA welcomes the interim report of the inquiry into the Culture and Capability of the #NDIA. The recommendations address much needed improvements to the #NDIS for people with neurological and neuromuscular conditions aph.gov.au/Parliamentary_…

Save the date! International MJD Conference, May 2025. Darwin, Australia Ataxia Global Initiative National Ataxia Foundation Ataxia UK Euro-ataxia Ataxia Centre - UCL Institute of Neurology Ataxia and Me CIO 1184030 Critical Path Institute (C-Path) EURORDIS-Rare Diseases Europe FightingAtaxia AtaxiasARG Ataxie Ataxia Canada A-T Foundation (India) CACNA1A Foundation Hellenic Friedreich´s Ataxia Association Movement Disorders India

We’ve been contacted by a family living with MJD (SCA3) in India who are desperate for support. Is there a support organisation we can refer them to? A-T Foundation (India) Movement Disorders India

Congratulations to @DLaGrappeRN who has been awarded a The Fulbright Program Public Policy Fellowship! Serving in Vietnam, she will explore how gender-based violence is measured and the role of nurses and Maternal and Child Health services as first responders. now.latrobe/fulbright-2023

The #NDIS has not been rolled out properly in places like the Barkly Region of the #NT, and it has failed to reach its potential. Bruce Bonyhady Review co-chair Hear more from the #NDISReview consultations in remote and First Nation’s communities. ndisreview.gov.au/news/ndis-revi…

📢Save the date for ICAR 2024: 12-15 November 2024, London Please RT! Euro-ataxia Ataxia Centre - UCL Institute of Neurology Ataxia and Me CIO 1184030 FightingAtaxia Ionis IXICO MJD Foundation AtaxiasARG Ataxie Ataxia Canada A-T Foundation (India) Hellenic Friedreich´s Ataxia Association Movement Disorders India MDS @iansecretary

We’re recruiting for our new CEO. If this is you, check out our full Job Pack here. mjd.org.au/wp-content/upl…

🌎Register for Ataxia Global Conference 2023! online, 15-16 November 2023 ataxia-global-initiative.net/events/ataxia-… National Ataxia Foundation Ataxia UK FA Research Alliance Euro-ataxia Ataxia Centre - UCL Institute of Neurology Ataxia and Me CIO 1184030 EURORDIS-Rare Diseases Europe Ionis IXICO MJD Foundation AtaxiasARG Biogen A-T Foundation (India) SCAsource

In this article from the Australian Physiotherapy Association, researchers (including MJD Foundation's Julie Wunungmurra, Libby Massey and Ali Grootendorst) share about why co-design is important, and how to get the most out of it: australian.physio/inmotion/co-de… #machadojosephdisease #MJDfoundation

We're excited to announce dates for the 2025 MJD International Research Conference. We look forward to seeing you in Darwin, Australia! Further details on conference registration and Travel Scholarship applications to come soon. #mjdinternationalresearchconference2025