🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

See our PhD student Charlotte Massey talking about her research using technology to support people with #MND with cough & secretion management here: readableresearch.com/watch/

If you're interested in #QoL for people with #MND - please join our discussions!

Final call! We're looking for people with MND to join us for an online discussion about quality of life. Details in the flyer below. Please message us with any questions or to join a discussion.

Are you interested in learning more about how we use methods such as interviews and observations in our research? Dr Liam Knox and Jade Howard have written a blog about this. #openscience

iDeliver MND. A two year research project to improve psychological care in MND. Funded by the MND Association. Please see link below for more info, click on the second photo to see our aims, and stay tuned for updates and opportunities to get involved! mndassociation.org/research/our-r…

📣 Research opportunity! 📣 @am_sheffgenet & team are developing a decision aid to help with decisions around genetic testing. 🧬 People with #MND who faced a genetic test decision are invited to share their experiences. Learn more from Jade Howard ⬇ mndassociation.org/research/get-i…

Every year there are around 5,000 people affected by Motor Neuron Disease (MND) in the UK. Right now, there is no cure. We’re striving to change that with the UK Motor Neuron Disease Research Institute (UK MND Research Institute), co-directed by the University’s Professor Christopher McDermott.

Come join us!!! 2 exciting Research Associate posts in patient outcomes research at SCHARR working on the measurement and betterment of health-related quality of life for patients. Perfect for someone with a Psychology or related background bit.ly/40mwXuh

An inspiring morning hearing from the patients that drove the development of the institute, as well as Steve Barclay who has helped secure funds to accelerate our search for a cure. #mnd #UKMNDRI #ALS Patients United2EndMND National Institute for Health and Care Research

Our PhD student Charlotte is looking for healthcare professionals who work with people with #MND to participate in online focus groups. Contact Charlotte for more info 👇

Want to know more about recently launched UK MND Research Institute & its plans to accelerate arrival of meaningful treatments for #MND? Pls watch this short video youtube.com/watch?v=WUTM6t… Together MotorNeuroneDisease MND Research scientists MND Association My Name'5 Doddie Foundation MND Scotland LifeArc are #United2EndMND

Join us at SCHARR for this great opportunity to undertake a PhD Project (UK Students Only) Testing inclusive recruitment methodologies in trials. Supervised by Dr Shoba Dawson Details here findaphd.com/phds/project/t…

"𝐏𝐞𝐫𝐬𝐢𝐬𝐭𝐞𝐧𝐜𝐞 𝐩𝐚𝐲𝐬 𝐨𝐟𝐟" We asked delegates from the 34th International Symposium on #ALS/#MND to tell us the most important thing they learnt at the Symposium. Hear some of these below ⬇️ #alsmndsymp

📣 We've extended the closing date of this #PhD position! --------- Interested in investigating #inclusive recruitment methodologies as part of SCHARR? 🔗 Find out more & apply here: bit.ly/EDI-PHD-PROJECT 📆 Closing Date: 31 January 2024

Providing support for #MND carers is vital. Emily Mayberry (she/her) and team aim to understand the support MND carers need and how best it can be offered. They are asking friends/family members who have provided informal care to share their experiences. Email: [email protected]

📢 Another exciting opportunity to join the NIHR Sheffield BRC as a #ClinicalFellow! Work on stimulating projects across our Translational #Neuroscience theme. Get mentored by leading clinicians and scientists. 🔗 Learn more & apply here: bit.ly/3vw09nm

Delighted to share: Measuring Health-Related Quality of Life in Amyotrophic Lateral Sclerosis | Neurology neurology.org/doi/full/10.12… Thanks to our collaborators who worked with us to finalise the framework. Chris McDermott Phil Powell 🦋 @philapowell.bsky.social MND Association SCHARR Alys Griffiths

Our systematic review & new framework are out! We examined health-related quality of life for people with #ALS #MND and developed a new conceptual framework. Full text in Neurology Journal: neurology.org/doi/pdf/10.121… Thanks to National Institute for Health and Care Research & MND Association for support with this work.

Do you or someone you know have MND? Would you like to help us do a short interview to help us know more about how to care for people experiencing emotional distress? South Yorkshire MNDA Ammar Al-Chalabi Chris McDermott My Name'5 Doddie Foundation Darby Rimmer MND Foundation mndassociation.org/research/get-i…

Are you living with MND? We are looking for people to work with us for a new trial launching in September led by Esther Hobson! For more info please see: sites.google.com/sheffield.ac.u…