West Sussex North (@mndwestsussex) 's Twitter Profile
West Sussex North

@mndwestsussex

West Sussex North Branch of the MND Association. We support people living with MND, their families & their carers. facebook.com/mndwestsussexn…

ID: 266544397

linkhttp://www.mndwestsussexnorth.com/ calendar_today15-03-2011 12:03:20

12,12K Tweet

1,1K Followers

1,1K Following

West Sussex North (@mndwestsussex) 's Twitter Profile Photo

If you can help, please, please get in touch! #WestSussexNorthBranch of the #MNDAssociation #Crawley #Horsham #Sussex #WestSussex #MND

If you can help, please, please get in touch!

#WestSussexNorthBranch of the #MNDAssociation 
#Crawley #Horsham #Sussex #WestSussex #MND
MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

To mark #GlobalMNDAwarenessDay in June, we're holding an event in Parliament with the theme: 'The Hidden Realities of MND'. MPs will hear directly about the real issues facing people with #MND—and how they can make a difference. Take 30 seconds to invite yours:

To mark #GlobalMNDAwarenessDay in June, we're holding an event in Parliament with the theme: 'The Hidden Realities of MND'. 

MPs will hear directly about the real issues facing people with #MND—and how they can make a difference.

Take 30 seconds to invite yours:
MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

“I watch my symptoms worsening week by week, month by month. It’s devastating to know that a treatment exists that could stop this, but I just can’t access it.” For some people living with #MND, tofersen can be life-changing. However, tofersen isn’t being made available to

“I watch my symptoms worsening week by week, month by month. It’s devastating to know that a treatment exists that could stop this, but I just can’t access it.”

For some people living with #MND, tofersen can be life-changing. 

However, tofersen isn’t being made available to
West Sussex North (@mndwestsussex) 's Twitter Profile Photo

If you can help, please, please get in touch! #WestSussexNorthBranch of the #MNDAssociation #Crawley #Horsham #Sussex #WestSussex #MND

If you can help, please, please get in touch!

#WestSussexNorthBranch of the #MNDAssociation 
#Crawley #Horsham #Sussex #WestSussex #MND
MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

Tofersen can be a life-changer for those with SOD1 MND, but not everybody who would benefit can access it. Our petition has already gained over 3,000 signatures — thank you to everyone who has supported so far. Help us push to 5,000! Take action now and stand with the SOD1 MND

MND Association (@mndassoc) 's Twitter Profile Photo

Our Director of Engagement, Richard Evans, spoke with Sky News earlier about access to tofersen for those with the SOD1 variant of MND. He was joined by Seckin, who has #MND and has been told she can’t have tofersen due to NHS resource constraints. This is simply unacceptable.

West Sussex North (@mndwestsussex) 's Twitter Profile Photo

If you can help, please, please get in touch! #WestSussexNorthBranch of the #MNDAssociation #Crawley #Horsham #Sussex #WestSussex #MND

If you can help, please, please get in touch!

#WestSussexNorthBranch of the #MNDAssociation 
#Crawley #Horsham #Sussex #WestSussex #MND
Omaze UK (@omazeuk) 's Twitter Profile Photo

Welcome to the Omaze Sussex House, where every day could feel like a holiday 🏖️ LAUNCH OFFER BELOW 🏖️ This summer, you could be stepping out of your back door and straight onto the beach at this simply stunning house on the Sussex coast. 🌊 For your chance to win the Sussex

MND Association (@mndassoc) 's Twitter Profile Photo

Our partnership with Omaze UK is more than a prize draw, it’s a chance to make a real difference. Money raised will contribute to our Research Nurse Network - aiming to give those with #MND a chance to take part in vital research. Backed by Eddie Redmayne. Powered by you.

Leeds Rhinos (@leedsrhinos) 's Twitter Profile Photo

⏰ Our #MND Awareness fixture against Wakefield Trinity is almost here, as we come together to honour Rob Burrow CBE's legacy and celebrate those who continue to support MND charities. Wherever you'll be showing your support from, swing by the Club Shop at AMT Headingley to pick up

⏰ Our #MND Awareness fixture against <a href="/WTrinityRL/">Wakefield Trinity</a>  is almost here, as we come together to honour Rob Burrow CBE's legacy and celebrate those who continue to support MND charities.

Wherever you'll be showing your support from, swing by the Club Shop at AMT Headingley to pick up
MND Association (@mndassoc) 's Twitter Profile Photo

Leeds Rhinos vs. Wakefield Trinity: For MND 🧡🏉 TOMORROW @LeedsRhinos will face local rivals in their annual MND Awareness game, wearing kit designed especially for the game featuring an image of the late Leeds Rhino legend, Rob Burrow CBE. Kick off at 4:30pm. 🏉#MND