MPN Research Foundation (@mpn_rf) 's Twitter Profile
MPN Research Foundation

@mpn_rf

We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF. #mpnsm

ID: 198557406

linkhttps://www.mpnresearchfoundation.org/ calendar_today04-10-2010 16:44:03

2,2K Tweet

2,2K Followers

501 Following

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#NedWeinshanker shared this while reading suleika jaouad book: “We were more than circumstantial friends. We were family.”  It’s what Bob Rosen set out to build — a community where patients are partners.  Join us: f.mtr.cool/lzvyigoolu   #FoundationForward #MPNResearch

#NedWeinshanker shared this while reading <a href="/SuleikaJaouad/">suleika jaouad</a> book: “We were more than circumstantial friends. We were family.” 

It’s what Bob Rosen set out to build — a community where patients are partners. 

Join us: f.mtr.cool/lzvyigoolu 
 #FoundationForward #MPNResearch
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

Did you know? We assembled the Progression Research Network in 2020 to unite MPN experts & advocates around one goal: to collaboratively improve long-term outcomes for patients through research on MPN progression. This September, the 2025 PRN Summit continues that mission.

Did you know? We assembled the Progression Research Network in 2020 to unite MPN experts &amp; advocates around one goal: to collaboratively improve long-term outcomes for patients through research on MPN progression. This September, the 2025 PRN Summit continues that mission.
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

MPNs don’t appear overnight — mutations like JAK2 V617F can start decades before symptoms. Over time, mutant stem cells outcompete healthy ones, reshaping the bone marrow. Donate to research: goto.mpnresearchfoundation.org/4js24x1  #MPNResearch #FoundationForward #BloodHealth

MPNs don’t appear overnight — mutations like JAK2 V617F can start decades before symptoms. Over time, mutant stem cells outcompete healthy ones, reshaping the bone marrow. Donate to research: goto.mpnresearchfoundation.org/4js24x1 

#MPNResearch #FoundationForward #BloodHealth
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

This #ClinicalTrialsDay, we’re honoring Ned. Diagnosed with #MF. Transfusions every 3 weeks. Then he joined a clinical trial. 4 years later: no transfusions. Spleen reduced by 2/3.  Support clinical trials and stay informed: goto.mpnresearchfoundation.org/425ellc   #MPNResearch

This #ClinicalTrialsDay, we’re honoring Ned. Diagnosed with #MF. Transfusions every 3 weeks. Then he joined a clinical trial. 4 years later: no transfusions. Spleen reduced by 2/3. 

Support clinical trials and stay informed: goto.mpnresearchfoundation.org/425ellc 
 #MPNResearch
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

MPNRF & Haymarket Medical Education launched a 2-part CME-accredited series on #PV diagnosis & treatment. Experts analyze survey data from 250 PV patients & 30+ clinicians to discuss evolving care strategies.  Earn CE credits: mycme.com/polycythemia #MPN #MedEd #BloodCancer

MPNRF &amp; <a href="/HaymarketMedEd/">Haymarket Medical Education</a> launched a 2-part CME-accredited series on #PV diagnosis &amp; treatment. Experts analyze survey data from 250 PV patients &amp; 30+ clinicians to discuss evolving care strategies. 

Earn CE credits: mycme.com/polycythemia

#MPN #MedEd #BloodCancer
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

What’s a citation trail? It’s when one study sparks another — and another...  MPN Research Foundation has funded research with rich citation trails that stretch from years ago to today’s most promising advances.  Join us: goto.mpnresearchfoundation.org/425ellc #MPNResearch #CitationTrail

What’s a citation trail? It’s when one study sparks another — and another... 

MPN Research Foundation has funded research with rich citation trails that stretch from years ago to today’s most promising advances. 

Join us: goto.mpnresearchfoundation.org/425ellc
#MPNResearch #CitationTrail
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

In 1997, Bob Rosen was diagnosed with PV — and found no roadmap. So, he built one.  25 years later, we’re moving #FoundationForward, empowering patients with research, resources, and support.  📥 Join our community: goto.mpnresearchfoundation.org/425ellc  #MPNResearch #RareDisease

In 1997, Bob Rosen was diagnosed with PV — and found no roadmap. So, he built one. 

25 years later, we’re moving #FoundationForward, empowering patients with research, resources, and support. 

📥 Join our community: goto.mpnresearchfoundation.org/425ellc
 #MPNResearch #RareDisease
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

627 voices. 31 countries. 1 shared mission.  From Bob Rosen’s vision to global momentum — the global response to our Unmet Needs Survey is shaping the future of MPN research.  👉 Reply with your country & join the movement.

627 voices. 31 countries. 1 shared mission. 

From Bob Rosen’s vision to global momentum — the global response to our Unmet Needs Survey is shaping the future of MPN research. 

👉 Reply with your country &amp; join the movement.
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

72% of MPN patients haven’t heard of the MPN 10 — a tool for tracking symptoms & advocating in care.  We're moving #FoundationForward by raising awareness.  💬 Ever used it? Heard of it? Tell us below!  📥 Subscribe for updates: mpnresearchfoundation.org/subscribe-to-o… #MPNResearch #RareDisease

72% of MPN patients haven’t heard of the MPN 10 — a tool for tracking symptoms &amp; advocating in care. 

We're moving #FoundationForward by raising awareness. 
💬 Ever used it? Heard of it? Tell us below! 

📥 Subscribe for updates: mpnresearchfoundation.org/subscribe-to-o…
#MPNResearch #RareDisease
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

MPN patients + caregivers: Join us June 5 for FDA 101, a free webinar on how the FDA approves treatments — and how YOU can get involved. Recording included!  ⏰ 5–6PM CT 🔗 Register: us02web.zoom.us/webinar/regist…  #MPNVoices #FDA101 #MPNPathways

MPN patients + caregivers: Join us June 5 for FDA 101, a free webinar on how the FDA approves treatments — and how YOU can get involved. Recording included! 

⏰ 5–6PM CT
🔗 Register: us02web.zoom.us/webinar/regist… 

#MPNVoices #FDA101 #MPNPathways
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25 yrs ago, MPNs had no research roadmap. Then came Bob Rosen. His first grant helped lead to the discovery of JAK2 in 2005 — a breakthrough that changed everything. We're moving #FoundationForward. Join us: goto.mpnresearchfoundation.org/425ellc #MPNResearch #RareDisease #BobRosenLegacy

25 yrs ago, MPNs had no research roadmap.

Then came Bob Rosen.

His first grant helped lead to the discovery of JAK2 in 2005 — a breakthrough that changed everything.

We're moving #FoundationForward.
Join us: goto.mpnresearchfoundation.org/425ellc

#MPNResearch #RareDisease #BobRosenLegacy
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

Thank you to everyone who donated to #FoundationForward — you're powering patient-driven research and honoring Bob Rosen’s legacy.  ⏳ Today’s the last day to give.  Let’s finish strong.  📥 Donate now: goto.mpnresearchfoundation.org/4js24x1  #MPNResearch #RareDisease #LastDayToGive

Thank you to everyone who donated to #FoundationForward — you're powering patient-driven research and honoring Bob Rosen’s legacy. 

⏳ Today’s the last day to give. 

Let’s finish strong. 
📥 Donate now: goto.mpnresearchfoundation.org/4js24x1 

#MPNResearch #RareDisease #LastDayToGive
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Meet Andrea Spica: MPN patient and 7-year post-transplant recipient turned advocate. From clinical trials to MPN Research Foundation Patient Impact Council, her journey fuels hope, research & support for others. 💪 Read her story: mpnresearchfoundation.org/patient_storie… #MPN #MPNAdvocate #PatientSupport

Meet Andrea Spica: MPN patient and 7-year post-transplant recipient turned advocate.

From clinical trials to <a href="/MPN_RF/">MPN Research Foundation</a> Patient Impact Council, her journey fuels hope, research &amp; support for others. 💪

Read her story: mpnresearchfoundation.org/patient_storie…

#MPN #MPNAdvocate #PatientSupport
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

Join us today, 5–6 PM CST for FDA 101 — a crash course on how the FDA works and how MPN patients & caregivers can engage in the drug approval process. Featuring FDA expert Sarah Wicks.  🔗 Register: goto.mpnresearchfoundation.org/4knHgqZ  #MPN #FDA101 #PatientVoices #DrugDevelopment

Join us today, 5–6 PM CST for FDA 101 — a crash course on how the FDA works and how MPN patients &amp; caregivers can engage in the drug approval process. Featuring FDA expert Sarah Wicks. 

🔗 Register: goto.mpnresearchfoundation.org/4knHgqZ 

#MPN #FDA101 #PatientVoices #DrugDevelopment
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Don’t leave your donation unmatched. Many employers will double your gift — turning $100 into $200 for MPN research. ✅ Check your match and donate: mpnresearchfoundation.org/donate-to-mpn-…  #EmployerMatch #DoubleYourDonation #MPNResearch #MakeItCount

Don’t leave your donation unmatched.

Many employers will double your gift — turning $100 into $200 for MPN research.

✅ Check your match and donate: mpnresearchfoundation.org/donate-to-mpn-… 

#EmployerMatch #DoubleYourDonation #MPNResearch #MakeItCount
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

Essential thrombocythemia (ET) affects about 39 in 100,000 in the U.S. Raised platelets means raised risk of clots, stroke & progression to myelofibrosis or leukemia. Know the signs. Support early MPN diagnosis. mpnresearchfoundation.org/newsletter-sig… #ETAwareness #BloodCancer #RareDisease

Essential thrombocythemia (ET) affects about 39 in 100,000 in the U.S. Raised platelets means raised risk of clots, stroke &amp; progression to myelofibrosis or leukemia.

Know the signs. Support early MPN diagnosis.

mpnresearchfoundation.org/newsletter-sig…

#ETAwareness #BloodCancer #RareDisease
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

What do kidneys have to do with #MPNs? A clinical trial hold-up led Dr. Brandi Reeves to a new theory: MPNs may trigger silent kidney damage through clotting signals in neutrophils. She's testing it. 🔗 Read more: goto.mpnresearchfoundation.org/4kNfjsw  #MPNChallenge @UNC_Health #hematology

What do kidneys have to do with #MPNs?

A clinical trial hold-up led Dr. Brandi Reeves to a new theory: MPNs may trigger silent kidney damage through clotting signals in neutrophils.

She's testing it. 🔗 Read more: goto.mpnresearchfoundation.org/4kNfjsw 

#MPNChallenge @UNC_Health #hematology
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Young. Thriving. Overlooked.  Dana Turner is redefining what it means to live with a myeloproliferative neoplasm (MPN) — and why younger patients must be seen and heard.    Join our community and read her story: mpnresearchfoundation.org/subscribe-to-o…   #MPNAdvocate #RareButReal #PatientVoices

Young. Thriving. Overlooked. 

Dana Turner is redefining what it means to live with a myeloproliferative neoplasm (MPN) — and why younger patients must be seen and heard. 
 
Join our community and read her story: mpnresearchfoundation.org/subscribe-to-o…
 
#MPNAdvocate #RareButReal #PatientVoices
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

Why do some MPNs progress?  Scientist like Dr. Anandi Krishnan measure MPN mutant cell dysfunction to get answers: “Quality control is gone” — like “a factory where the pace has increased so much that the protein folding machinery is going awry.”  #MPNProgression #MPNs

Why do some MPNs progress? 

Scientist like Dr. Anandi Krishnan measure MPN mutant cell dysfunction to get answers: “Quality control is gone” — like “a factory where the pace has increased so much that the protein folding machinery is going awry.” 

#MPNProgression #MPNs
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We’re celebrating 25 years of MPN progress by honoring our founder, Bob Rosen. 💙  Join our webinar tomorrow to learn how you can support the next 25 years of life-changing blood cancer research.  5 PM CT  goto.mpnresearchfoundation.org/402Cjfd #MPNResearch #LegacyGiving

We’re celebrating 25 years of MPN progress by honoring our founder, Bob Rosen. 💙 

Join our webinar tomorrow to learn how you can support the next 25 years of life-changing blood cancer research. 

5 PM CT 
goto.mpnresearchfoundation.org/402Cjfd

#MPNResearch #LegacyGiving