
Ssonam Maddan
@maddanssonam
Stay Positive,Work Hard and Make it Happen!! #YOLO
ID: 956352812757086208
http://www.thalassemicsindia.org 25-01-2018 02:27:33
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Kits which is important for blood filtration is finished at RDA UCMS & GTBH patients who are on regular blood transfusions are facing problem. I request you to please look into the matter. CMO Delhi Ministry of Health National Health Portal

Blood transfusions is hampered due to unavailibility of the kits. Please look into the matter. #thalassemia #bloodisalifeline CMO Delhi Ministry of Health National Health Portal

On 3rd December, #InternationalDayofDisabilities , 3 leading Indian patient advocacy organizations in #BloodDisorders, Thalassemics India Hemophilia Federation (India) & NASCO India SCD Alliance come together for 1st time for webinar on "Blood Disorders-The Invisible Disability". Shobha Tuli Gautam Dongre NASCO Premroop Alva



Appreciate CJI concern over #disability becoming a #barrier Denying individuals access to public opportunities #Disability a limitation.Biggest challenge is physical accessibility.CHAD CJI PIB | Ministry of Social Justice & Empowerment PMO India Thalassemics India Gautam Dongre NASCO President of India


Thalassemics India extends sincere gratitude to Mr. Jackie Jackie Shroff for his steadfast support of the Thalassemics India community and his committed endeavors in fostering awareness. Watch the full Video ⬇️ youtu.be/Htsh5nV92nc . . . . #jackieshroff #thalassemiaawareness


Thalassemics India expresses sincere gratitude to Mr Jackie Shroff Jackie Shroff for his invaluable contribution and support, as highlighted in the December 23rd edition of The Himalayan Times in Nepal. #jackieshroff #thalassemia #thalassemiaawareness #thalassemiaawareness


MOST URGENT - SOS #Thalassemia patients at #DDUH Refused #bloodTransfusion TODAY Arvind Kejriwal President of India LG Delhi hm Dr Harsh Vardhan Ministry of Health Narendra Modi PMO India Dr Mansukh Mandaviya Amit Shah NDTV AajTak ANI Press Trust of India Hindustan Times TOI India NEWS 24




A big shout out to Thalassemics India and Ministry of Health for turning India Gate red to mark International Thalassemia Day! #ITD2024 NITI Aayog


This is not our 1st attempt & won’t be our last. We will keep remininding the Ministry of Health and Novartis Novartis India of how every day of inaction denies #thalasemia patients of medicines like #desferal and other facilities! Office of JP Nadda Atishi


In a delegation led by Thalassemics India on International Thalassemia Day, TPAG member Nishtha Madan shared patients’ issues and recommendations related to care, cure and control of #thalassemia before Hon’ble President of India. She raised challenges related to #safeblood



#TPAG is grateful to residents of #Heartsong at the #Experia Gurgaon for coming out in this heat to donate blood for #thalassemia patients of government hospital #LHMC. Special thanks to to Avian We. for this gesture. It means the world to us! Thalassemics India Director, LHMC
