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The impressive Emma Raywood, PhD presenting data from the Project Fizzyo programme. So important to make challenging treatments visible so that people with #CysticFibrosis & clinicians can understand treatment taking #Adherence better.

A reminder that #Adherence is about competence as well as treatment taking from the interesting Project Fizzyo programme.

The impacts of quality of #Adherence on outcomes. #ElectronicDataCapture is important to give people with #CysticFibrosis and clinicians the information needed to understand treatments and outcomes.

Working out lunch function trends can be challenging, particularly when mapping infrequent data capture from lung function to frequent data from remote monitoring of eg heart rate. Nicole Filipow presenting a novel method for how to handle this, we’ve applied to Project Fizzyo #nacfc2022

Another strong conference for the Project Fizzyo team 🥊 #NACFC #Philadelphia #Rocky

Friday was a good day… PhD ✅ Biggest thanks to my perfect supervisory team Prof. Eleanor Main and Mandy Bryon. And to Emma Shkurka for my ego-inflating notebook (new life chapter needs new stationery)

This paper by me, Harriet Shannon Nicole Filipow gizemtanriver @SanjaLovesData, Kunal Kapoor, Helen Douglas, Rachel, Nicky Murray, Bridget Black and Prof. Eleanor Main Project Fizzyo tinyurl.com/projectfizzyo

Proud to have contributed a chapter to this wonderful textbook. A real team effort, congrats wonderful editors - to Dionne Ryder Kieran Barnard Out on the shelves next week! Uni Herts Post Grad Physio UH Health&SocialWork

Thank you Janet Dr Janet Deane and to all the fabulous students, patients, friends Central Health Physiotherapy The Ehlers-Danlos Society Ehlers-Danlos Support UK hypermobility.org and mentors Tim Watson Prof. Eleanor Main, Margaret Mayston, Ann Thompson. Thank you UCL Great Ormond Street Institute of Child Health UCL Population Health Sciences for making this possible.

🎓🥂🎊 Congratulations Dr Douglas and Dr Filipow 🎊🥂🎓

Massive honour to be graduating with a Doctor of Philosophy from #UCLGOS ICH with these amazing people Helen Douglas @nfilpow Dr Pippa Sipanoun with the support of Prof. Eleanor Main and Kate Oulton Jo Wray PenCRU amongst many others 🙏

Sally Davenport UCL Physiotherapy,ACPIN did her PhD viva on Friday. Profs Cathy Bulley,Frederike van Wijck awarded the PhD without corrections (career first for both), calling it an 'exceptional programme of work'. Your supervisory team Elizabeth Cassidy,faithgibson totally agree!! 🍾🥂

Our paper Performance on the iSTEP and 10 m‐ISWT in boys with haemophilia, by Mel Bladen, Dr Lucy Alderson Mario Cortina Borja🇪🇺, Nikki Thorpe & Prof. Eleanor Main, published online in Haemophilia Journal Population, Policy and Practice Department UCL Great Ormond Street Institute of Child Health Great Ormond Street Hospital for Children doi.org/10.1111/hae.14…

Delighted to share that our publication "Real world effectiveness of airway clearance techniques in children with cystic fibrosis" is now in press in the ERJ ERS publications erj.ersjournals.com/content/early/…

Important work that puts past airway clearance studies into context as well as pointing the way to where we should go with future research. Technique is important & electronic data capture is powerful in understanding adherence including competence. One to read! ACPCF ACPRC

Delighted to say our systematic review and meta analysis on managing side effects to PAP is now out SWAPNA MANDAL Prof. Eleanor Main Amar Shah @Nikk106 silvia sciencedirect.com/science/articl…

It's 3 months since our Project Fizzyo @ paper was accepted by ERS publications erj.ersjournals.com/content/62/3/2… Thanks for all the shares and discussion. If you didn't manage to read it yet, here's a one page summary:

Large turnout at Old Trafford for the annual TheAPCP conference, despite the efforts of Storm Babet to keep people away. Great morning of managing MSK difficulties for children and young people thanks to Prof Jane Simmonds claire robertson @kthayes23

Delighted to be invited to talk about the use of BoNT-A in Pain Management TheAPCP Annual Conference. Great day celebrating 50 years of enhancing evidence based practice for children and young people @kthayes23 Prof. Eleanor Main Prof Jane Simmonds Dr Anna Hebda-Boon Hilary Finlay

Nicole Filipow, Melanie Bladen, Emma Raywood, PhD, elisabeth robinson, Deepti Chugh, Helen Douglas, Nikki Thorpe, Rachel, Nicky Murray, Prof. Eleanor Main #cysticfibrosis #haemophilia