🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Deadlines are fast approaching for Kids’ Camp! Join us at Camp Victory, where kids can be kids. Sign up/learn more: marfan.org/campvictory 📍 Georgia Kids' Camp Register by June 13 to join the fun! 📍 California Kids' Camp Register by June 27 to reserve your place!

Less than 2 hours remain to register for the 2025 40th Marfan Foundation Conference at a reduced "early bird" rate. Register before midnight Eastern Time, tonight, 5/30. marfan.org/conference

June is JAM-PACKED with opportunities to get involved at our amazing Walk for Victory events across the country. Visit marfan.org/walk to register now! 🚩Milwaukee (6/1) 🚩Philly (6/7) 🚩New Jersey (6/7) 🚩Denver (6/7) 🚩NYC (6/14) 🚩Chicago (6/14) 🚩Portland (6/14)

Each person with VEDS in a clinical trial provides vital data to test safety and effectiveness. Participation can lead to breakthroughs. Find out more: ow.ly/S96o50W1YEr

Hey Milwaukee area Foundation family...it's not to late to register! Don't miss the fun, join us at marfan.org/walkmilwaukee and come out for a day to remember. #Marfan #LoeysDietz #VEDS #SticklerSyndrome #MyWalkSavesLives #Milwaukee #Wisconsin

Our Victory Party during this year's 2025 Conference in Atlanta, Georgia is something you don't want to miss! Come make memories that will last a lifetime. Register for Conference now at marfan.org/conference

Still so many opportunities to join up this month! Walk for Victory welcomes you with OPEN ARMS. Visit marfan.org/walk to register now! 🚩TODAY - Philly (6/7) 🚩TODAY - New Jersey (6/7) 🚩TODAY - Denver (6/7) 🚩NYC (6/14) 🚩Chicago (6/14) 🚩Portland (6/14)

At our Connections Luncheon at the 2025 Conference and Health Fair in Atlanta, Georgia, you can make lifelong friends who get it immediately. There isn't a place quite like it! Register today and join the fun! Marfan.org/conference #KnowConnectThrive #Marfan #LoeysDietz #VEDs

Just 33 days until Conference! The next 33 people who registered will be entered into a drawing to receive Conference SWAG. Don't wait! Register today at: marfan.org/conference Meet the experts. Make new friends. Renew connections. Have fun! #KnowConnectThrive

During the 2025 national Heartworks Gala 25th anniversary celebration, the contributions of both the late Ann Reinking and the long-time volunteers who carry the torch of her legacy were honored.

Walk for Victory—YOU DID THAT! 🎉A huge thank you to our Denver, Philly, and New Jersey community members who came out this past weekend and made a big impact. We can't wait to see you again! #MyWalkSavesLives #Marfan #LoeysDietz #VEDS

“Marfan syndrome has pushed me to get the most in life.” Read Alaina's story about how strength and adventure shine through challenges. Find this and many like it in our 2025 Summer/Spring edition of Connective Issues. ow.ly/yTBF50W7LmA

During Pride Month and every day, we celebrate the importance of living authentically. Everyone is welcome in the Foundation Family, always! Happy Pride! #PrideMonth #Marfan #LoeysDietz #VEDS

Don't miss our incredible June lineup of Walk for Victory events! Register now at marfan.org/walk. We can't wait to see you! 🚩Pacific NW (6/14) 🚩Chicago (6/14) 🚩NYC (6/14) 🚩Boston (6/21) 🚩Michigan (6/21)

Enjoy music, refreshments, and most of all time with friends (including new ones!). Don't miss our Victory Party during our 2025 Conference in Atlanta, GA, from July 10 to 13. Register now at marfan.org/conference We can't wait to see you there!

Happy Father's Day to all of the dads in our community and to any special people who play a significant role in making children's lives brighter. To those for whom today is a tough day for any reason, we see you and our hearts are with you. #FathersDay #Marfan #LoeysDietz #VEDS

“If we can find a way to prevent fatal emergencies… that would be so wonderful.” Read more about Isabella’s VEDS journey and how her family turns fear into hope in our 2025 Spring/Summer entry of Connective Issues. ow.ly/9Pcg50W7nkT

Walk for Victory—YOU DID THAT! 🎉A huge thank you to our NYC, Chicago, and Portland community members who came out this past weekend and made a big impact. We can't wait to see you again! #MyWalkSavesLives #Marfan #LoeysDietz #VEDS #SticklerSyndrome

📣CONFERENCE DEADLINES TOMORROW 6/18/25📣 🚩Last day to book the Hyatt Regency Atlanta for our discounted rate 🚩Last day to register for the children and teen programs Register now at marfan.org/conference. We can't wait to see you there!

Join expert Dr. Hal Dietz to learn about the research landscape in genetic aortic and vascular conditions during our 2025 Atlanta Conference and Health Fair. Don't miss it, register now at marfan.org/conference.