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Week Two, Day Two: Some information about the eyes 👀. Probably the second most common symptom. Awareness is Key! #MarfanAwarenessMonth2025 See the Signs - Save a Life! Rare Diseases Ireland Rare Disease Clinical Trial Network, Ireland National Organization for Rare Disorders (NORD) EURORDIS-Rare Diseases Europe Rare Diseases Clinical Research Network Rare Disease UK RareConnect Rare Disease Report

Don't miss Tuesday's Marfan Basics webinar, presented by the Foundation, IndoUSRare, and Cleveland Clinic. marfan.org/calendar/marfa… Thanks: IndoUSrare Cleveland Clinic

Day 10: About 1200 people in Ireland 🇮🇪 have Marfan Syndrome. Do they all know ? ❌ Are they at risk ? ✅ Can you help save a life ? ✅ 600 people in Ireland at risk today ! Please Like & Share p to help #MarfanAwarenessMonth2025

Week 2, Day 4: About 1200 people in Ireland have Marfan Syndrome. Do they all know ? ❌ Only about half know. Are they at risk ? ✅ 600 people in Ireland at risk NOW ! Can you help save a life ? ✅ Like & Share please #MarfanAwarenessMonth2025 #pneumothorax

Day 14: Happy #StValentinesDay from 🇮🇪Ireland🇮🇪 where the relics of St Valentine are held. If it’s one things people with Marfans know about it’s the heart!!❤️ Feb is #MarfanAwarenessMonth Pls like & RT our "Fact of the Day" every day to help spread awareness and Save a life!

There are many other Connective Tissue disorders as well as Marfans. Some are quite similar and quite often mixed up incorrectly diagnosised. Some of these include Loeys-Dietz symdrome, vEDS and SGS. Excellent information on the Marfan Foundation website marfan.org

Week 3, Day 4: Will you help save a life by spreading awareness of Marfan Syndrome? 600 people in Ireland at risk - you could save a family member, a neighbour, a work colleague, an acquaintance or even a complete stranger! Please Like and RT this post

Will you help save a life by spreading awareness of Marfan Syndrome? 600 people in Ireland at risk - you could save a family member, a neighbour, a work colleague, an acquaintance or even a complete stranger! Please Like and RT this post Loeys-Dietz Syndrome Rare Diseases Ireland

Week 3, Day 6: About 1200 people in Ireland have Marfan Syndrome. Do they all know ? ❌ Only about half know. Are they at risk ? ✅ 600 people in Ireland at risk NOW ! Can you help save a life ? ✅ Like & Share please #MarfanAwarenessMonth

3 weeks in with our Fact a Day for Marfan Awareness Month in February. Do you find them useful ? Informative ? Worthwhile ? Can they be improved ? 1 week to go to reach our target of 600 Likes and Shares. Please keep up the good work and spreading awareness and saving lives.

We've only 7 days left. You can make a difference. We can still do this with your help. Ask your family and friends to help. One share or one like might save someone's life. Please like & Share our "Fact of the Day" every day this month to help spread awareness and Save a life

Last week! February is Marfan Awareness Month. Please like and Share our "Fact of the Day" every day this month to help spread awareness and Save a life. #makemarfanmatter #savealife

We're hoping to reach 600 likes and shares to represent the estimated 600 people who are unaware they have Marfan Syndrome and are at risk., It is estimated Marfans affects about 1 in 5000 people and approx half have no idea that they have Marfans. 1/2

Marfan Syndrome has a lot of similar symptoms to Loeys-Dietz Syndrome. As such we are more than happy to provide help, advice & support to anyone with LDS. Don't forget to LIKE & Share to post - you'd never know who you’re helping! Loeys-Dietz Syndrome Loeys-Dietz Canada Rare Diseases Ireland

Marfan Syndrome and Ehlers-Danlos Syndrome have a number of symptoms in common. Both are Connective Tissue disorders and considered to be rare diseases. #EDS4IRE #HSD4IRE EDSAwarenessIreland EDS Awareness Rare Diseases Ireland VASCERN Please LIKE & RT - you'd never know who you could be helping!

Tomorrow is Rare Disease Day RareDiseaseDayDublin Marfan Syndrome is one of the more “common” rare diseases !

Too many good people gone way too soon 💔 😭

It's #RareDiseaseDay2025 - we celebrate those living with rare diseases and their families, carers, healthcare professionals and everyone that contributes to improving the lives of people living with rare diseases. We'll have a new national strategy soon! healthnews.ie/rare-diseases/…

Last day of #MarfanAwarenessMonth. We hope you found the information useful and it helped spread awareness. Have you ever heard of SGS or are you looking for more information ? Check out TheMarfanFoundation on #MarfanSyndrome or other related disorders. Rare Disease Day Rare Diseases Ireland