🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

We're pleased to have been accepted and look forward to working alongside many UK charities. The Neurological Alliance are England’s leading coalition of organisations and professional bodies supporting people with neurological conditions over 90 organisations working together.

Great news - a new seizure treatment option has been made available for Lennox-Gastaut syndrome. We called for NICE to make this option available as so many people with LGS struggle to find effective treatment.

Today, on Rare Disease Day 2025, charities come together to shine a light on the lives of people who bravely face the challenges of rare conditions every day. For us we're highlighting a few of our unicorns diagnosed with a rare and drug resistant forms of epilepsy. These

We are deeply saddened and shocked by the response from the Health Minister regarding families who have been forced to seek access to cannabis medications through illegal routes to treat their child's uncontrolled seizures. Despite pursuing all legal avenues, these medications

Imagine a world where epilepsy isn't shrouded in stigma, where children with drug-resistant seizures, often battling rare and complex syndromes, receive the support and research they desperately need. This is the world we're striving for at Medcan Family Foundation, and you can

#PurpleDay serves as a profound tribute to the courage and perseverance of those diagnosed and living with #epilepsy. Today, we shine a light on the relentless strength of our own children battling drug-resistant epilepsy. Every hard-won step forward—every cherished

It is with sadness that we share the news that Hannah Deacon, our much-loved Co-Founder and Chair, is stepping down from her role as Chair and Trustee of the MedCan Family Foundation. Hannah has recently been diagnosed with cancer and is taking time away to focus on her health

Hannah has touched the lives of so many—now it's our chance to give back and support her. Your help in sharing and raising awareness would mean the world. The smallest of donations can make an significant impact. Please support if you can 🙏 gofund.me/161e8e99

This graph tells a stark story. From 1970 to 2024, the number of available anti-epileptic drugs (AEDs) has risen dramatically — from just 2 to 25+. But the percentage of people living with treatment-resistant epilepsy has not budged. It remains stubbornly fixed at 30%. That’s 1

Although specific drug-resistant epilepsy syndromes are uncommon, their collective impact means 1 in 3 children with epilepsy still struggle with uncontrolled seizures. The long-standing failure of the "one-size-fits-all" approach and traditional RCTs to alter this 30% statistic

Although epilepsy is the second most common neurological condition in the UK, many children live with rare, drug-resistant syndromes of epilepsy. Around 30% of people with epilepsy have seizures that do not respond to standard treatments. Among children, some syndromes are so

We are heartbroken to share that Hannah Deacon died on Tuesday 6 May, surrounded by those who loved her, after a short and brutal illness. She was just 45.  This devastating loss to Hannah’s beloved partner Drew, and children Alfie and Annie, is impossible to put into words.

We were saddened to hear about Hannah. She was an inspirational mum to Alfie and made such a difference through her campaigning work and gave so many families a voice and advocate for change. Our thoughts are with Hannah's family at this very sad time. bbc.co.uk/news/articles/…

We're deeply saddened by Hannah's death. Her work to improve access to cannabis-based medicines for children with treatment-resistant epilepsy made a lasting impact. Her work continues with MedCan Family Foundation & we send our heartfelt condolences to her family. bbc.co.uk/news/articles/…

A Call to Action for Our Children Things won't change unless we make them. And for the families we support, change can't wait. Imagine watching your child suffer daily, enduring, relentless and uncontrolled seizures, with all treatment options exhausted. Quite frankly, it's

Thank you to Prohibition Partners LIVE for inviting Sarah Wollaston and I to record a special live episode at Cannabis Europa this morning. Our guests Tonia Antoniazzi MedCan Family Foundation and Diego Quattrone - episode will drop later this week.

Our Goal : Hope for the 30% Breakthrough treatments for drug resistant epilepsy will not come from existing drug development pathways. Those routes have not moved things for our children in 50 years. We need a new approach, but one that does not lower standards of evidence or

She wears a helmet, has a feed tube in her nose and has multiple absence seizures resulting in drops every day. Yet this week my daughter and her helper ran 100 metres in her sports day without having a single fall which quite frankly is a miracle. #prouddad #hope