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..,this battle is endlessly PAINFULLY hard. However, advocacy works! LCAI worked with HIQA on their epidemiology study on LC (report published few wks ago). Our work on this directly effected the words chosen in that report. Changes were made based on our input. Headlines..

..dictate public perception. It is easy to pull out a statement without context & this can have disastrous effects; setting back LC awareness,causing misinformation.Our work helped avoid this We CAN change things but advocacy needs to be organised, persistent. Pls DM or contact..

[email protected] if you would like to discuss volunteering with LCAI. We're aware that patients have to step in & out as their health allows.That is why we need a full team, so that momentum is not lost when individuals have a bad wk or 2. It's also why non..

..patients or recovered patients would also be very suitable. We've many projects, meetings, and plans that we want to be working on, but many are on the back burner as we need the ppl. We are currently fire fighting. Appreciate you taking the time to read this. #LongCovid End

We are sharing a no. of patient stories on our website We're trying to demonstrate the range of challenges that #LongCovid patients are facing in their lives. Would you like to share something from your own journey? Relationships,parenting,healthcare, career, finances.. #Ireland

EXCELLENT ARTICLE on Ziyad Al-Aly, MD, a #mustread ❗️❗️“Long COVID is leaving a legacy of chronic diseases,” Al-Aly said. “Health systems and governments need to be prepared for the long-lasting consequences for patients, health systems, life expectancy and economic productivity.

Dear media, please call this out An apology is needed Virgin Media News TonightVMTV Fergal Bowers Irish Independent NewstalkFM Drivetime RTE SeánMoncrieff The Irish Times Irish Examiner Niamh Jiménez Paul Murphy 🇵🇸 #LongCovid #RTEGAA RTÉ Sport #TheSundayGame #LongCovidKids #COVID19

Let's give credit to a government agency for standing up right away, admitting a mistake & apologising! Wish all government bodies operated like that Honest & a sincere apology go a long way!Why don't politicians get that? & spare a thought for the human behind this human error!

Not to excuse anything that has been uncovered, but if you’re all so (appropriately!) angry about what’s going on in RTÉ, the HSE’s use of public money will have you burning the place down. And demanding change. And if you’re a politician, baring teeth in committees. Won’t it?!

Irish Independent A fantastic piece from Tess Finch Lees again. She is one of the only Irish journalists to be fully clued into the #Covid situation in #Ireland and perhaps the only one willing to talk about it all. Sums up so well the 'emperor's new clothes' type situation we find ourselves in.

2 fantastic opportunities to join an established dynamic Occ Therapy team ⁦St James's Hospital⁩ 1) CSOT in rehabilitation & 2)an exciting Discharge to Assess & Recover outreach team, come join our team & grow your career @ the largest 🇮🇪 teaching hospital stjames.ie/careers/jobs/?…

Pls consider taking part in this study if you live in the area! Women's health never receives enough attention The connection between #women health & #LongCovid has sadly been no exception So grateful to Viki Male for carrying out this important research. #COVID19 #periods

Great thread. Parenting is one of the hardest & one of the most important & rewarding jobs in the world. If you succeed at your job they leave home to live their lives their way.

Visit our website for useful information on navigating #LongCovid specifically in #Ireland. Eg. Our page on how to minimise costs (One section shown below). Note it's always worth applying for melatonin via hardship scheme (GMS only), It MAY be approved. longcovidadvocacyireland.com/useful-informa…

#SadNews I’m so sorry to let you know that my life partner (36 years together) & fiancé, Mark Seiler, passed away last Friday night. He’d had Parkinson’s for several years but it seems to be Long Covid that took his life after his 3rd infection. Hold your loved ones close.💔😷💔

My little boy 6yrs ago I didn't know then that we live in a world where millions of ppl could become #disabled over 3yrs & the rest of the world would try to ignore their existence This is before I knew he'd spend 23mths &counting missing his childhood #LongCovid #LongCovidKids

Don't forget to ask friends & family to follow us here on twitter & on our other social media channels (our FB page LCAIreland) so they can learn more about #LongCovid & how it effects you & about what they can do to help the LC community in #Ireland. longcovidadvocacyireland.com

Could it be that every argument against covid19 being airborne, was actually just a smokescreen for not saying.. "We know you're breathing in this virus repeatedly. We know it's damaging you. But we'd like you to shut up because we're not going to pay to clean indoor air"?

So fantastic..a quick watch. A giggle to be had on a very serious issue that drives us crazy but sometimes you have to laugh! #ME #MyalgicEncephalomyelitis #MECFS #pwME #LongCovid #pwLC #gaslighting #stockphotos