Spela Mirosevic (@mirosevicspela) 's Twitter Profile
Spela Mirosevic

@mirosevicspela

Mother. Wife. Researcher. On a mission to develop gene therapy for this sweet little person. #CTNNB1 Syndrome

ID: 1374342908925599750

linkhttp://www.ctnnb1-foundation.org calendar_today23-03-2021 12:51:09

2 Tweet

45 Followers

17 Following

Spela Mirosevic (@mirosevicspela) 's Twitter Profile Photo
Spela Mirosevic
@mirosevicspela

5 years ago

Our family is on a mission to develop gene therapy for our son and every other child with CTNNB1 Syndrome. PLEASE share this link. Thank you! New Hope for Children with CTNNB1 Syndrome gofund.me/8bcfecb8

Spela Mirosevic (@mirosevicspela) 's Twitter Profile Photo
Spela Mirosevic
@mirosevicspela

4 years ago

I urge Horizon to do the right thing and provide access to life changing medication for SLC6A1 patients!!! statnews.com/2021/06/03/par… via STAT @SLC6A1_Mom Fighting for Maxwell Horizon Tim Walbert National Organization for Rare Disorders (NORD) Global Genes