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Perhaps part of the reason low dose Abilify can help treat ME?

I made a new video about the status of my health. I’m finally talking and walking! And thank you to my friend Tobias for letting me share his ME/CFS story, too. youtu.be/vqeIeIcDHD0

A story came out back when I was in college about some doctoral candidate who discovered that her PhD advisor was fudging/manufacturing data to create fictitious results to get more grant money. Being an honest sort, she reported the fraud, along with all of the supporting

If I have terminal cancer no amount of psycho-social treatment is going to fix my diagnosis. Yes caring, understanding and empathetic treatment will assist me, BUT I have a biologic structural issue. Now was that difficult to understand? No well apply the same logic to ME/CFS.

If oxygen can’t enter tissue in ME/CFS due to impaired extraction or damaged, sparse capillaries, maybe waste, signals, and biomarkers can’t exit either? Could poor microcirculation 'trap' pathology in tissue, leaving blood tests falsely “normal”?

Christoph Ströck The routine blood tests rarely work for diagnosing auto immune inflammation. With crohns disease, the blood has to be taken from the inflammation source or very close to it. A negative result often means the test failed...but the docs often take it as 'no disease'.

I emailed the endometriosis team shortly before my endometrioma haemorrhaged telling them i was passing 10+ giant (half the palm of my hand) clots a day for nearly 2 weeks. Between feb and may, i had bled (heavily) more than not bled. Their response? Crickets 🦗🦗🦗

Our latest ME/CFS paper examines the content of extracellular vesicles in male ME patients vs controls before and after exercise. Among pathways implicated are the TCA cycle, complement system, protein folding, ER stress tinyurl.com/266nsx9a

My first ever medical appointment in the weeks after I first developed Long COVID, I was prescribed a benzo and an anti-psychotic. I was not informed they were being prescribed for psychiatric reasons. I was told it was for post viral functional neurological symptoms.

Then explain to me why the rate of death was so different, with the non-vaccinated dying at rates orders of magnitude higher than their vaccinated counterparts. No rethoric, just answer the question with published data (links). I won't get an answer...

Erlangen researchers studied 150 people and found that Post-COVID patients showed impaired muscle deoxygenation during light exercise. Fatigue was strongly linked to abnormal oxygen dynamics, hinting at disrupted microcirculation. mdpi.com/2227-9059/13/6…

“non-invasive near-infrared regional spectroscopy was used to measure local oxygenation while kneading a stress ball and during recovery…the subgroup with PEM showed impaired deoxygenation…these data support the hypothesis of ischemia as a pathogenetic factor in PEM”

Wanted to put forward a thread about #PEM since there have been some new developments and also because I just need to get some of this out of my head and work through it. Folks with infection- and exposure-associated chronic illnesses (IACIs) like #LongCOVID, #MECFS, 1/

For the first time in the U.S., the invasive longhorned tick has been found carrying Ehrlichia chaffeensis, the bacterium responsible for human monocytic ehrlichiosis (HME), a potentially fatal illness.

Professor Chris Ponting, of the university’s Institute of Genetics and Cancer, said: “For so long people with ME/CFS have been told it’s all in their head. It’s not. We see [it] in their blood." thetimes.com/uk/healthcare/…

This is fascinating, why? What’s the mechanism here?

Mitochondria Are More Than Powerhouses—They’re the Motherboard of the Cell scientificamerican.com/article/why-mi… Fascinating piece by Martin Picard. Makes me wonder if the energy problems in ME are related to cristae alignment/mito-mito communication 🤔🧵

This is our mission at Amatica Health and we are determined to achieve it Patients should not be forced to undergo a constant drug roulette, gambling their little remaining function and finances for a very small % chance of recovery Precision diagnostics are the way forward!

Me too. It is very clear now that viral infections are required co-factors for many chronic diseases - neurological, rheumatological, cardiac, cancers and more. The evidence is cascading out. I don't think there is any justification for being relaxed about repeated infections, no

I wonder if mitochondrial dysfunction is at least in part a reason why we often get low cortisol, sex hormone chaos, low aldosterone, high cholesterol, and low vitamin D/high vit D needs in chronic illnesses 🤔🤔🤔