The Mitchell and Friends Foundation (@mtlsyndrome) 's Twitter Profile
The Mitchell and Friends Foundation

@mtlsyndrome

The Mitchell and Friends Foundation is dedicated to raising awarness of Mitchell Syndrome and supporting research into this rare neurological disease.

ID: 1552744673357316102

linkhttp://mitchellandfriends.org calendar_today28-07-2022 19:56:01

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39 Followers

1 Following

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Want to support kids with Mitchell Syndrome, fund research into the disease, and look great doing it? Purchase your Mitchell and Friends merch: shirts, tumblers, and hats. (Special thanks to Miranda, our Official Mitchell and Friends Merch Model.) mitchellandfriends.org/merchandise

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The Mitchell and Friends AWARENESS GAME between the NYU and WashU women's soccer teams will be played THIS SUNDAY, Oct. 30th, at 1:30PM (EST). Visit the link to stream the game live, learn more about Mitchell Syndrome, and follow 6yo Mitchell-Syndrome hero Cole Canning.

The Mitchell and Friends AWARENESS GAME between the NYU and WashU women's soccer teams will be played THIS SUNDAY, Oct. 30th, at 1:30PM (EST). Visit the link to stream the game live, learn more about Mitchell Syndrome, and follow 6yo Mitchell-Syndrome hero Cole Canning.
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The Mitchell and Friends Foundation received a $500 donation from the Hearing Loss Association of America today, thanks to Cole Canning and family's participation in Walk4Hearing last October. Thanks to the HLAA and the Cannings...

The Mitchell and Friends Foundation received a $500 donation from the Hearing Loss Association of America today, thanks to Cole Canning and family's participation in Walk4Hearing last October. Thanks to the HLAA and the Cannings...
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The Inaugural Rare Diseases Symposium was held on Feb. 28th at Washington University. Our own Vice-President Michele was the first-ever award recipient at this first-ever event. Click to read more: mitchellandfriends.org/blog/the-inaug…

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After months at the hospital, Cole finally made it home this weekend--where it looks like he made quick work of a hamburger. While it's great to have access to hospitals where our kiddos can get expert care, Cole's smile is all you need to know about where they'd rather be: Home!

After months at the hospital, Cole finally made it home this weekend--where it looks like he made quick work of a hamburger. While it's great to have access to hospitals where our kiddos can get expert care, Cole's smile is all you need to know about where they'd rather be: Home!
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Meet Augustine, the youngest diagnosed case of Mitchell Syndrome in the history of the world. His early diagnosis is a sign that The Mitchell and Friends Foundation is making a difference, and--more importantly--good news for him and other kiddos. mitchellandfriends.org/blog/increased…

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Mitchell-Kid Cole is winning hearts and raising awareness in his hometown of Bristol, PN. Cheers to Cole, his parents, and his sister for telling their story, not giving up hope, and showing the rest of us how to respond to adversity. fox29.com/news/local-boy…

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Happy Fourth of July from The Herndon Family and The Mitchell and Friends Foundation. Raise a glass to freedom! “There is a certain enthusiasm in liberty, that makes human nature rise above itself, in acts of bravery and heroism." -Alexander Hamilton

Happy Fourth of July from The Herndon Family and The Mitchell and Friends Foundation. Raise a glass to freedom!

“There is a certain enthusiasm in liberty, that makes human nature rise above itself, in acts of bravery and heroism." -Alexander Hamilton
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The scientists researching Mitchell Syndrome are making good progress, thanks to the humble fruit fly. Check out this recent write-up from Houston Methodist on the work Lok is doing in his new fly lab. read.houstonmethodist.org/from-the-humbl…

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Bravo to NYU filmmaker Amanda Wickwee who did a beautiful and compelling job telling "Cole's Story." Cole was the ninth person in the world ever diagnosed with Mitchell Syndrome, and since his diagnosis, his parents have decided to do something about it. youtube.com/watch?v=VZsr8m…

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WELCOME TO ST. LOUIS! The Herndons and Garczynskis (two Mitchell Syndrome families) got to meet up at Barnes Hospital in St. Louis, so Trey could meet with Dr. Bob Bucelli, one of the world's experts on Mitchell Syndrome. Good to meet up with friends for the journey!

WELCOME TO ST. LOUIS! The Herndons and Garczynskis (two Mitchell Syndrome families) got to meet up at Barnes Hospital in St. Louis, so Trey could meet with Dr. Bob Bucelli, one of the world's experts on Mitchell Syndrome. Good to meet up with friends for the journey!
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HAPPY HALLOWEEN FROM THE MITCHELL AND FRIENDS FOUNDATION! Enjoy some nostalgic pix from Mitchell kiddos Cole, Trey, Michael, Henry, Auggie, and Mitchell. (And fams!) We miss you Henry! We miss you Mitchell! #acox1gainoffunction #mitchellsyndrome #mitchellandfriends

HAPPY HALLOWEEN FROM THE MITCHELL AND FRIENDS FOUNDATION! Enjoy some nostalgic pix from Mitchell kiddos Cole, Trey, Michael, Henry, Auggie, and Mitchell. (And fams!) We miss you Henry! We miss you Mitchell!
#acox1gainoffunction #mitchellsyndrome #mitchellandfriends
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ANNOUNCING OUR NEWS AND MEDIA PAGE! Enjoy the latest addition to the Mitchell and Friends website: a collection of news stories and media reports featuring our growing community and efforts to find a cure for Mitchell Syndrome. mitchellandfriends.org/news-and-media

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On this GIVING TUESDAY, Matt and Michele Herndon mail off the final payment of the $150k YOU helped raise to jump start research into Mitchell Syndrome and possible treatments. Thanks for giving! Also, NEW GOAL ANNOUNCED! youtu.be/i_gknp90MXg

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We're excited to announce The Mitchell and Friends Trivia Night - Rare Things Edition 2024! Help us increase awareness of Mitchell Syndrome and raise money to support families and research into this ultra-rare neurological disease. eventbrite.com/e/the-mitchell…

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HAPPY FOURTH OF JULY from The Mitchell and Friends Foundation! Patient #1, Mitchell Herndon, loved America, he loved the Fourth of July, and he loved celebrating it with family. So be safe as you gather with loved ones to remember our freedoms today.

HAPPY FOURTH OF JULY from The Mitchell and Friends Foundation! Patient #1, Mitchell Herndon, loved America, he loved the Fourth of July, and he loved celebrating it with family. So be safe as you gather with loved ones to remember our freedoms today.