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While a tough read, I welcome the honesty from today's #DarziReview. We've all had our own experiences of how the NHS hasn't been working, myself included. We need bold action and strong leadership that delivers real change for patients.

Our Senior Policy Officer, Amy shares her thoughts on the #DarziReview, the response from the government and what it means for people affected by #myeloma in our latest Behind The Headlines blog: myeloma.org.uk/news/behind-th…

This is incredibly disheartening and disappointing news. NICE must do everything possible to ensure that everyone has access to the drugs they need when they need them. We will continue to fight to ensure this happens.

🧵 Yesterday our amazing 2024 London Paris Riders set off from London! Together, they've raised over £178k and counting 🧡 But today they're facing tough conditions, with heavy rain and wind.

I'm so grateful to our incredible riders, especially as they face such tough conditions. They're raising an incredible amount of vital funds 🧡 Please cheer them on and donate if you can!

Wonderful news and a major step in the right direction for the myeloma community. We're grateful to the SMC for working with us and listening to people living with myeloma. They've shown considerable flexibility with this decision and put patient need front and centre.

This new research aims to understand the source of heart and circulatory issues (H&C) in myeloma. Investing in asking these questions helps us better understand how people can live well for longer with myeloma 🧡

This is brilliant news! We believed it was deeply unfair to keep this drug from the people who needed it most. As soon as we heard about the restrictions, we challenged the decision. We worked with clinicians and ensured that patients needs were put front and centre.

Together, as part of the Blood Cancer Alliance, we are calling on the Government to take meaningful action to improve NHS blood cancer care. Myeloma UK #Myeloma #BloodCancer Blood Cancer Alliance

Thank you to our amazing patients with MGUS and smouldering myeloma who completed the unmet needs survey. We shared your perspectives with an international community at #ASH2024, highlighting the psychological impact of diagnosis, monitoring & the potential for future treatments.

We're incredibly lucky to have someone like Judy who gives so much our cause. I know she's an inspiration to many people, myself included, and I look forward to working with her to keep changing the future for people affected by myeloma 🧡

We’re speaking with #OneCancerVoice today and have added our name to this letter. We’re pleased the Gov has committed to a new national cancer plan - but it must be fully funded and ensure it serves all cancer types including those that are harder-to-treat and harder-to-diagnose

Today, we joined 50+ cancer charities, speaking with #OneCancerVoice, to call on the UK Government to fully fund the upcoming National Cancer Plan, to ensure cancer patients get the care they deserve 🧡

We're immensely proud to fund Martin Kaiser's research, which is a major step forward as we strive to identify patients at high risk of not responding to currently available treatments and to develop bespoke treatments that will keep their #myeloma at bay for as long as possible.

We firmly believe there should be no financial barriers to accessing treatments. Myeloma UK will continue to fight to reduce barriers to treatments and make sure all patients have as many options as possible to keep their #myeloma at bay.

Thank you to the wonderful CNSs for everything they do for people living with myeloma and all those who work with us to improve the lives of those affected by myeloma. Together we are going further, faster 🧡

🧵 The Charities Medicines Access Coalition #CMAC is calling for Department of Health and Social Care and ABPI to increase communication with charities and share clear evidence that patient impact is at the heart of the ongoing #VPAG discussions. As Chair and members of CMAC, we support this call.

Very excited to be working with Leukaemia UK and LymphomaAction 🧡 Myeloma has one of the longest times to diagnosis, and people living with myeloma don't have time to wait. A BPTP will ensure that once people are referred, they get a diagnosis quicker. #Myeloma #BloodCancer