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Reassuring results for #myositis patients from the #COVAD study Myositis Support and Understanding (MSU) Myositis UK The Myositis Association Cure IBM—Inclusion Body Myositis MYOS Rohit Aggarwal Vikas Agarwal Parikshit Sen Jessica Day

Introducing Tanya Smith, who recently joined the Perron Institute clinic as the Abcuro IBM (Inclusion Body Myositis) Trial Coordinator. Last year the Institute became the first recruiting site for the global IBM drug study. ow.ly/yBQL50L0vBb

Do you know a consumer who would like to attend the 2022 ACTA ASM? To support our work to better involve consumers across the research continuum, ACTA will be awarding up to 10 complimentary registration passes. Hurry, EOIs close tomorrow, Fri 7 Oct. tinyurl.com/5n79ef2d

The Dutch IBM Foundation was established to promote and support scientific research focussing on IBM, and to improve the quality of life of patients with IBM. Get to know them by visiting their website: spierziekte-ibm.nl/conferentie-ib…

Congratulations Prof Sue Fletcher! An amazing researcher and an even more amazing individual!

Congratulations to our very own @EmilyMcLeish994 on her recent publication on the significance of expanded CD8+ large granular lymphocytes in inclusion body myositis. Check it out here: frontiersin.org/articles/10.33… #InclusionBodyMyositis #Myositis myositis australia merrilee needham

Great to hear an update on the TRANSFORM Project from Prof Merrilee Needham, @Myodiscovery and how the Consumer and Community Involvement Program has helped involve people with a lived experience to inform and guide key parts of the Project. #SOTS2023

On behalf of the Western Australian Health Translation Network and #SOTS2023 organising committees, we extend our sincerest congratulations to all the awardees of this year's conference. We look forward to seeing the ongoing impact of your contributions to the field. Well done!🏆👏👏👏 #Awards

The last article by the The CoVAD Study group is out. Patients with idiopathic inflammatory myopathies show higher fatigue scores than healthy controls. The fatigue exhibited is similar to other autoimmune diseases. Congratulations team 👏🏼🎉🥳 link.springer.com/article/10.100…

Pilot for our med student-led project to find the best methods for testing knee extensor (quad) strength in clinic for #IBM patients. Thanks to our participant & collaborators. This is a great way to engage new doctors in #myositis research! @cmmit_mu Brook Galna merrilee needham

@Myositis_KI Presenting our research on myositis at the Scandinavian Congress of Rheumatology in Copenhagen. We have enjoyed interesting discussions and social activities!

Check out this great article published by my students Myositis Discovery Programme Perron Institute pubmed.ncbi.nlm.nih.gov/37501556/

MIHRA: an inclusive research community that srtives to create a world where we can cure #myositis together!

Could a 'Rare Patient Passport' could help reduce difficulties & frustrations in communicating health & care needs? Download your copy of ‘The Need for a Rare Patient Passport’: bit.ly/RarePassportRe… And if you would like a passport, please sign up!: forms.gle/LSehpCYiWZTp47…

Congrats to our student, Ethan Williams (now Dr Williams!) on his recent publication: nmd-journal.com/article/S0960-…

It's been a while since an update on our #MyositisResearch, but pleased to share what we've been up to recently in our latest research newsletter. #Myositis #InclusionBodyMyositis Perron Institute @cmmit_mu merrilee needham create.piktochart.com/output/e785e59…

In our recent study, we show that ~70% of patients with #myositis experience pain that interferes with their daily activities. Myositis is not a painless disease Seminars in Arthritis and Rheumatism Myositis Support and Understanding (MSU) LisaChristopherStine Helene Alexanderson @JoostRaaphorst merrilee needham sciencedirect.com/science/articl…

A huge congratulations to Dr Genevieve Simkovics and Kerry Maclaurin on the publication of their article on the prevalence of incontinence in #myositis #ConsumerPartners #InclusionBodyMyositis sciencedirect.com/science/articl…