Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile
Myositis Support and Understanding (MSU)

@myositissupport

MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community. Patient support, education, financial assistance, research. #RareDisease

ID: 2304116028

linkhttps://www.understandingmyositis.org calendar_today22-01-2014 03:17:20

6,6K Tweet

2,2K Followers

1,1K Following

Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at understandingmyositis.org/event/myositis… #myositissupport #MSU

From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at understandingmyositis.org/event/myositis…  #myositissupport #MSU
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

🌟TODAY! MSU Young Adult Collective Power Hour! Ages 18–40 w/Myositis? Join our private, supportive Zoom session, no pressure to talk or be on camera. Connect, share, or just listen. Register now: [us02web.zoom.us/meeting/regist…]

🌟TODAY! MSU Young Adult Collective Power Hour! Ages 18–40 w/Myositis? Join our private, supportive Zoom session, no pressure to talk or be on camera. Connect, share, or just listen. Register now: [us02web.zoom.us/meeting/regist…]
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

MSU is dedicated to giving the Myositis community a platform to share and discuss the tough issues we face. We created To Be Honest Tuesday to address those hard and uncomfortable truths. Ready to share? Click here video.videorequest.io/request/tobeho… #ToBeHonestTuesday #YourStoryMatters #MSU

MSU is dedicated to giving the Myositis community a platform to share and discuss the tough issues we face. We created To Be Honest Tuesday to address those hard and uncomfortable truths. Ready to share? Click here video.videorequest.io/request/tobeho… #ToBeHonestTuesday #YourStoryMatters #MSU
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

Join our new quarterly Myositis Cancer Support Group. This safe space is for Myositis patients battling cancer or survivors. Share experiences, find comfort, and connect with others on a similar journey. 🔗 Zoom: understandingmyositis.org/event/myositis… #MSU #CancerSupport

Join our new quarterly Myositis Cancer Support Group. This safe space is for Myositis patients battling cancer or survivors. Share experiences, find comfort, and connect with others on a similar journey. 🔗 Zoom: understandingmyositis.org/event/myositis… #MSU #CancerSupport
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/event/myositis… #MyositisMovement #myositis #inflammatorymyopathy

#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss  understandingmyositis.org/event/myositis…  #MyositisMovement #myositis #inflammatorymyopathy
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

As World Myositis Day approaches, we take this time not only to raise awareness, but to remember and celebrate the lives of those who have faced Myositis with love, and unwavering strength. Click the link below where you can easily submit your tribute; form.jotform.com/251674268866068

As World Myositis Day approaches, we take this time not only to raise awareness, but to remember and celebrate the lives of those who have faced Myositis with love, and unwavering strength. Click the link below where you can easily submit your tribute; form.jotform.com/251674268866068
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

🌟 It’s $5 Friday! Just $5 can bring hope. Just $5 can ease the burden. Join us today in supporting those battling Myositis. Every dollar makes a difference! Make a donation today! secure.givelively.org/donate/myositis Thank you for your support!

🌟 It’s $5 Friday! Just $5 can bring hope. Just $5 can ease the burden. Join us today in supporting those battling Myositis. Every dollar makes a difference! Make a donation today! secure.givelively.org/donate/myositis Thank you for your support!
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

New! International Myositis Support Group! Connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment. Every third Sat of the month on Zoom at 2pm ET. Register at understandingmyositis.org/event/internat… Global Community #myositis

New! International Myositis Support Group! Connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment. Every third Sat of the month on Zoom at 2pm ET. Register at understandingmyositis.org/event/internat… Global Community #myositis
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

Living with Myositis? Stay organized with MSU’s FREE Medical Binder! Our downloadable, editable PDF binder is designed to help you track: understandingmyositis.org/downloads/ Print it out for your next appt or fill it in digitally!

Living with Myositis? Stay organized with MSU’s FREE Medical Binder! Our downloadable, editable PDF binder is designed to help you track:
understandingmyositis.org/downloads/ Print it out for your next appt or fill it in digitally!
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at understandingmyositis.org/event/myositis… #myositissupport #MSU

From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at  understandingmyositis.org/event/myositis… #myositissupport #MSU
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

💫MSU has a NEW support group! Finding Our Balance: Navigating Myositis & Dysautonomia Together. Are you living with Myositis and have also been diagnosed with some form of Dysautonomia or suspect you may have it? You're not alone! Join us June 28th: us02web.zoom.us/meeting/regist…

💫MSU has a NEW support group! Finding Our Balance: Navigating Myositis & Dysautonomia Together. Are you living with Myositis and have also been diagnosed with some form of Dysautonomia or suspect you may have it? You're not alone! Join us June 28th: us02web.zoom.us/meeting/regist…
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

Join us TODAY for #MyositisReads, a book club for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Reading is where we can escape, relax, and learn. 👉 For details, visit: understandingmyositis.org/event/myositis… #MyositisReads

Join us TODAY for #MyositisReads, a book club for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Reading is where we can escape, relax, and learn. 👉 For details, visit: understandingmyositis.org/event/myositis… #MyositisReads
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

MSU is dedicated to giving the Myositis community a platform to share and discuss the tough issues we face. We created To Be Honest Tuesday to address those hard and uncomfortable truths. Ready to share? Click here video.videorequest.io/request/tobeho… #ToBeHonestTuesday #YourStoryMatters #MSU

Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

🎬 Join MSU Couch Critics today as we dive into "A Man Called Ove"! 🎥Don't miss out on the lively discussion about this heartfelt film. Catch us on Zoom and share your thoughts! Today, July 23rd ⏲7PM ET / 6 PM CT / 5 PM MT / 4 PM PT 🔗ow.ly/68Rt50WsXjN #MSUCouchCritics

Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

🎬 Join us for *Couch Critics* MSU’s movie club for the Myositis community! Today July 23rd! Meets 2nd & 4th Wednesday of each month, 7PM ET Today's film; "A Man Called Ove" RSVP and save your seat here: understandingmyositis.org/event/couch-cr… #CouchCritics #MSU #MovieClub #MyositisSupport

🎬 Join us for *Couch Critics* MSU’s movie club for the Myositis community! Today July 23rd!  Meets 2nd & 4th Wednesday of each month, 7PM ET Today's film; "A Man Called Ove" RSVP and save your seat here: understandingmyositis.org/event/couch-cr…
#CouchCritics #MSU #MovieClub  #MyositisSupport
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

🌟 Join the MSU Community! Get access to webinars, support groups & updates — all free! Become a member of Myositis Support & Understanding today. Register today: understandingmyositis.org/register/ #MSUMembership #MyositisCommunity #FreeMembership #StayConnected

🌟 Join the MSU Community! Get access to webinars, support groups & updates — all free! Become a member of Myositis Support & Understanding today. Register today: understandingmyositis.org/register/
#MSUMembership #MyositisCommunity #FreeMembership #StayConnected
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/event/myositis… #MyositisMovement #myositis #inflammatorymyopathy

#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/event/myositis…   #MyositisMovement #myositis #inflammatorymyopathy
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

🛍️ Shop with Purpose! Check out the MSU Online Store, filled with gear, totes, coffee mugs and so much more! Show your support for the Myositis community. Every purchase gives back, with 100% of proceeds supporting MSU programs and members. Browse now: …myositissupportandunderstanding.store

🛍️ Shop with Purpose! Check out the MSU Online Store, filled with gear, totes, coffee mugs and so much more! Show your support for the Myositis community. Every purchase gives back, with 100% of proceeds supporting MSU programs and members. Browse now: …myositissupportandunderstanding.store
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

TODAY @ 5 PM ET / 4 CT / 3 MT / 2 PT - Inclusion Body Myositis Patient Zoom support session, last Friday of the month! For anyone living with #inclusionbodymyositis (IBM). Invite your caregiver, care partner, or spouse if you wish understandingmyositis.org/event/ibm-pati… #MSU #nonprofit

TODAY @ 5 PM ET / 4 CT / 3 MT / 2 PT - Inclusion Body Myositis Patient Zoom support session, last Friday of the month! For anyone living with #inclusionbodymyositis (IBM). Invite your caregiver, care partner, or spouse if you wish understandingmyositis.org/event/ibm-pati…  #MSU #nonprofit
Myositis Support and Understanding (MSU) (@myositissupport) 's Twitter Profile Photo

💫STARTING TODAY! Finding Our Balance: Navigating Myositis & Dysautonomia Together. Are you living with Myositis and have also been diagnosed with some form of Dysautonomia or suspect you may have it? You're not alone! RSVP below and reserve your spot! us02web.zoom.us/meeting/regist…

đź’«STARTING TODAY! Finding Our Balance: Navigating Myositis & Dysautonomia Together. Are you living with Myositis and have also been diagnosed with some form of Dysautonomia or suspect you may have it? You're not alone! RSVP below and reserve your spot! 
us02web.zoom.us/meeting/regist…