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Happening now! The @NAPRTCS Fall Meeting welcomes over 145 attendees from 61pediatric nephrology programs! Follow us for updates throughout the meeting. #NAPRTCS2024

First up, Jodi Smith gives an update from the NAPRTCS Registry Committee. The registry continues to grow with 54 centers actively entering data and over 35,000 enrollments! #NAPRTCS2024

The NAPRTCS #Benchmarking reports a valuable source of QI data for centers. Isa Ashoor presents a proposed opportunity to use the information to receive ABP MOC Part 4 Points

Eric Benz of Children's Hospital Colorado and Ankana Daga of Boston Children's present two upcoming studies of #SDOH in the #Transplant and #Dialysis registries that will be completed in partnership with Children's Hospital Association

Join now to hear @Vikas_R_D provide an update on the dd-cfDNA project. In the last 2 years, centers have entered over 650 forms on 260 unique participants! Participation is open to new centers and data entry is compensated. #NAPRTCS2024

Up next, Jodi Smith provides an update on the NAPRTCS #Cystinosis Registry. The registry now includes data on 106 participants with up to 5 years of follow up so far. We’ll be making an announcement about a new endeavor so make sure to tune in! #NAPRTCS2024

Next up, Ari Pollack of Seattle Children's shares information about Kids CoLab! This multicenter study looks at cooperative decision making in the adolescent #CKD and #ESKD population. The project will engage patients, caregivers, and clinicians. #NAPRTCS2024

The NAPRTCS Patient and Family Advisory Council is looking for new members. Pediatric patients ≥ 18 years impacted by #CKD & #ESKD and their families are eligible to join. Please share with your patients so they have the opportunity to help guide our efforts #NAPRTCS2024

Taylor House of University of Wisconsin Department of Pediatrics presents information about her upcoming project investigating communication around kidney transplant preparation directed at adolescent and young adult patients. #NAPRTCS2024

Nathan Paziuk of Modern Craft provides an update from the NAPRTCS IT Committee. They continue to work on ways to reduce the burden of data entry. Recent work focuses on using AI for data extraction. #NAPRTCS2024

What do you want to know about NAPRTCS and how do you want to hear about it? The Communication Committee is hard at work keeping you informed through newsletters, status reports, webinars, and social media. Have suggestions for improved communication? Let us know! #NAPRTCS2024

Tune in now to hear Brad Warady and Meredith Atkinson present an overview of our current and upcoming clinical trials. The NAPRTCS Clinical Trials Committee works with our industry partners to plan and implement studies to help improve the health of pediatric #CKD and #ESKD patients

Up next, Sara Boynton spotlights centers that have excelled in the past year. We are so grateful for the hard work done on the NAPRTCS registry and clinical trials by all of our centers. Need help getting caught up? We’re here to help! #NAPRTCS2024

That’s a wrap! Thank you to everyone who attended #NAPRTCS2024. We look forward to seeing you again this fall. Save the date for our next meeting in September!

Want to learn more about the NAPRTCS #Cystinosis Registry? Join us for a webinar on June 7th at 2pm EDT. Topics include new PRO measures and a transition needs assessment. Attendance is open to the entire academic medical community. Register here: tinyurl.com/43erxce5

The NAPRTCS team is excited to share that we have 4 abstracts accepted for IPNA Congress on the subjects of #cystinosis #dialysis and #transplant. More details to come. We look forward to seeing everyone in Cape Town! #IPNA2025

The NAPRTCS Virtual Fall Meeting is less than 2 weeks away! Please join us to learn more about our ongoing projects and future plans. Meeting attendance is free and open to the entire academic #PedNeph community. Register here: tinyurl.com/5bxm2nns

The NAPRTCS Fall Virtual Meeting starts now! We have over 175 registrants from 58 centers, 3 collaborative groups, and 8 of our partner companies. Today's meeting will feature some exciting announcements and updates on our current and upcoming projects.

That's a wrap the for 2024 NAPRTCS Fall Virtual Meeting. We look forward to seeing everyone again next year!

Attending American Society of Nephrology #KidneyWk? Come check out our NAPRTCS posters! First, Jodi Smith will present information from the #Cystinosis Registry Next, @Vikas_R_D shares initial findings from the #ddcfDNA project Details below. We hope to see you there!