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We do not consider the views of people with Down syndrome and their families to be ‘noise’. Read our open letter about assisted dying, which outlines the concerns of 61 groups representing the interests of disabled people, here: ndspg.org/wp-content/upl…

There is often a contrast between the current living situation and the preferred model of housing among the Down syndrome community. Participants with Down syndrome in a survey on housing indicated clearly that many value having their own space. Participants expressed that they

Our Advisory Group members ran a ‘Write to your MP’ workshop at our Summit last week. They want their MPs to step up and ask Stephen Kinnock Secretary for Department of Health and Social Care to issue robust Guidance for the #DownSyndromeAct2022. Three years is too long to wait. We deserve better.

MP frustration in Parliament over lack of ministerial & civil servant engagement on #DownSyndromeAct Guidance with concerns over broken commitments The Act arose because people with Down syndrome have been let down across Govt depts. Thanks Jack Rankin MP! youtu.be/SSdKbhS9cUM?si…

Fantastic session at the Cornwall Advisory Group Today with Jayne Kirkham MP for Truro & Falmouth Truro and Falmouth hearing about The Summit in london last week then playing Memory Bingo before finishing off with lashings of pizza GoodTimes.

At the National Down Syndrome Policy Group Advisory Group UK Summit, members wrote to their MPs inviting them to join the All-Party Parliamentary Group on Down Syndrome. We have six new members recruited so far. Welcome to MP Paul Waugh MP who is our newest recruit! Damian Hinds @appgds

“Our big project right now is to do all we can to help make sure the guidance for the Down Syndrome Act is meaningful and robust.” @outwith_millieanna told Katie Martin @ BBC Radio

When he took over BBC Radio Solent Tommy Jessop’s theme was enjoying life & living happy with Down syndrome. Guest James Carter told Katie Martin “I don’t think we can change the disability side of it. I think we should live life to the full & don’t doubt yourself.”

Delighted to welcome Cat Smith MP to the APPG for Down Syndrome team following an invitation from the North Lancs #DownSyndrome Group at our National Down Syndrome Policy Group UK Summit. Excited to collaborate to improve outcomes for individuals with DS. Damian Hinds Jack Rankin MP 🇬🇧 Graham Stuart MP Sarah Costerton

Happy Easter everyone! 🐣☀️💐

Great to have a productive catch-up today in Parliament with APPG for Down Syndrome Co-Chairs Damian Hinds MP & #AndrewCooper MP. A busy few months lie ahead as we prepare for the imminent draft #DownSyndromeAct draft guidance public consultation. More information to follow soon.

Proud to see leaders with Down’s syndrome shaping the future at the first NDSPG Summit. This is what empowerment looks like! Read their blog to find out the details. ndspg.org/national-down-… Damian Hinds Andrew Cooper MP

Well hello there! I am really proud to announce that my very first children’s book has been published today by Ladybird Books . It is called TOMMY’S TIME TO SHINE and I really am excited for you all to read it ✨🤩🤓 📖

thescottishsun.co.uk/news/14776017/…

MSPs must consider risks of assisted dying before today’s Scottish vote: “Dr Corcoran warned the legislation could be "stretched" to include people "viewed as having lives that are devalued through discriminatory attitudes" even if they are not nearing death.” DSRF_UK

Today The Times warns UK House of Commons that voting for the Assisted Suicide Bill tomorrow would be“a fatal error” & this is “a bad Bill beyond repair. It needs to be killed off.” UK Parliament has a duty to protect the vulnerable: care not kill Shabana Mahmood MP Frank Cottrell-Boyce

Before the vote today APPG for Down Syndrome co-chair Damian Hinds voices deep concerns over the assisted dying bill, warning of risks around coercion & capacity for people with #DownSyndrome & LD, & urging great caution. #AssistedDyingBill Nikki da Costa Rosa Monckton Jim Shannon MP Lord (David) Alton

Every word of this ⬇️

🚨 JOURNALIST Seeking case studies on the failings of SEND reform & proposal to scrap EHCPs in mainstream schools 📌 Looking to speak with: Families who struggled moving from mainstream to special school Families who struggled accessing special school 📧 [email protected]

Congratulations 🥳🤩🍾 Fionn and Jonathan each were awarded at the Rémy Martin Irish Men of the Year Awards, Fionn for 'Diversity & Inclusion Advocate' and Jonathan (on behalf of Fionnathan Productions) for 'Male Team of the Year'. fionnathan Tommy Jessop