🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Our son’s inoperable NF plexiform neck tumor is again, cowering in the face of our fierce efforts to defeat it. #Koselugo or #selumetinib as we have known it for 6 years now, continues to be an answer to prayer. Today’s battle is won but our war with NF1 continues. #endnf 💚💙

NF causes tumors to grow on nerves throughout the body. #makenfvisible #neurofibromatosis #endnf

Today is #WorldNFDay - join us this week as we continue to raise awareness for NF. #MakeNFVisible

NF Forward Everyone’s fight is different - but what a strong community! Briella’s our fighter. #TruroCivicSquare #May17 #EndNF #NFAwarenessDay #shinealightonNF #CTF

Thank you for joining us and Children's Tumor Fdn in our fight to #makeNFvisible!

Thank you Bedrock for partnering with us to raise awareness and Shine a Light in Detroit!

We were proud to illuminate The Albert and The Scott blue and green for the Shine a Light on NF campaign. Learn how more Detroit organizations helped #makeNFvisible in @cbsdetroit’s article! #EndNF detroit.cbslocal.com/2021/05/17/bed… Bedrock Children's Tumor Fdn NF Forward

Countdown is on... mark your calendars for beNeFit IX! #beNeFitIX #NFForward #NFF #beNeFit

*BIG NEWS* KOSELUGO APPROVED BY THE EU COMMISSION FOR CHILDREN W/ NF1 & PLEXIFORM NEUROFIBROMAS astrazeneca.com/media-centre/p…

GFF is excited to announce a new clinical study in collaboration with Cancer Center @ CHOP and the Children's Oncology Group to validate optical coherence tomography (OCT) as a biomarker for treatment response in NF1 patients with optic pathway gliomas. gilbertfamilyfoundation.org/press-release/…

A clinical study funded by Gilbert Family Foundation will allow CHOP researchers to partner with the Children's Oncology Group to validate optical coherence tomography (OCT) to measure NF1-related progressive vision loss. Learn more at: bit.ly/3B4JbLf. #ForBreakthroughs

We are excited to announce a new study aimed to understand the mechanisms of vision loss caused by NF1-OPG. Led by Drs. Rob Avery Children's Hospital and Jeff Goldberg Stanford Medicine, findings will help inform future therapies and validate existing models. gilbertfamilyfoundation.org/press-release/…

Today is the day! If you are watching from the comfort of your home click the link below to join the live stream. See you soon! youtu.be/JHvxtiB49NM

On World NF Awareness Day, and every day we strive to shine a light on the cause and the people living with NF. We are committed to continuing our work and supporting efforts to accelerate a cure. #MakeNFVisible #endnf #NF

On May 17, 2022, landmarks across the world lit up in blue and green for the Shine a Light Campaign promoting NF awareness. Check out some participating buildings in the Detroit area and go to our website for the full list!

We have partnered with NF Forward and Children's Tumor Fdn to launch the Bow Tie campaign. We're dedicating our 2022-23 season to Nick Gilbert and the millions of others impacted by neurofibromatosis (NF). Learn more at on.nba.com/3gGfZnY!

On May 17, 2023, landmarks across the world lit up in blue and green for the Shine a Light Campaign promoting NF awareness. Many buildings across Detroit showed their support for National NF Awareness Day. Thank you to all the participating buildings💙💚 #EndNF #ShineALightonNF

beNeFit XI -Save the date November 18th! #beNeFitXI

Meet our 2023 Intern, Caroline Miota! She recently graduated from Michigan State University and her primary responsibilities include assisting in the execution of beNeFit XI. Caroline can't wait to work with our great donors and supporters! #nfforwarddetroit #beNeFitXI

Thank you for helping us raise $3 MILLION in support of #beNeFit XI! We cannot thank our sponsors enough for the tremendous outpouring of support this year. See you November 18th! ⁠ #beNeFitXI #nfforward #endNF