NF Northeast (@nfincne) 's Twitter Profile
NF Northeast

@nfincne

Dedicated to finding a cure. Creating a community of hope & support for patients, families, and all those touched by NF.

ID: 25100864

linkhttp://www.nfnortheast.org calendar_today18-03-2009 16:27:36

942 Tweet

1,1K Followers

423 Following

Kristina Rath (@kristinarath) 's Twitter Profile Photo

NF Northeast was invited to visit the Walker Lab at MGH! Read about our tour and how Dr Walker’s team are working to #endNF 💙💚 nfemom.blogspot.com/2023/02/nf-nor…

USA TODAY Opinion (@usatodayopinion) 's Twitter Profile Photo

"I've been running from my genetic condition my entire life. But TikTok caught up to me – and made me famous for the thing I disliked most about myself," writes Lilly Simon. usatoday.com/story/opinion/…

Vanessa L. Merker, PhD (@vlmerker) 's Twitter Profile Photo

Calling all Boston area #neurofibromatosis and #schwannomatosis patients! Register now for the MassGeneral News and Boston Children's NF Patient and Family Symposium, being held in-person at MGH on Saturday, April 29th. Children's Tumor Fdn NF Northeast 2023SymposiumNF.eventbrite.com

Calling all Boston area #neurofibromatosis and #schwannomatosis patients!  Register now for the <a href="/MassGeneralNews/">MassGeneral News</a> and <a href="/BostonChildrens/">Boston Children's</a> 
NF Patient and Family Symposium, being held in-person at MGH on Saturday, April 29th. <a href="/ChildrensTumor/">Children's Tumor Fdn</a> <a href="/NFincNE/">NF Northeast</a>
2023SymposiumNF.eventbrite.com
NF Northeast (@nfincne) 's Twitter Profile Photo

Couldn’t have said it better ourselves Vanessa L. Merker, PhD 💙 So thrilled to be able to honor all the incredible research you’ve done for the NF community!

Winbrook (@winbrook) 's Twitter Profile Photo

Great fundraiser to spread awareness through branded bandannas!!! Winbrook is thrilled to have worked on this project with NF Northeast!! Learn more here: ow.ly/nWPt50OhSsw #NeurofibromatosisAwareness #TheWordIs #nfnortheast NF Northeast

Great fundraiser to spread awareness through branded bandannas!!! Winbrook is  thrilled to have worked on this project with NF Northeast!!

Learn more here:  ow.ly/nWPt50OhSsw

#NeurofibromatosisAwareness  #TheWordIs #nfnortheast <a href="/NFincNE/">NF Northeast</a>
NF Northeast (@nfincne) 's Twitter Profile Photo

Thanks for joining us in Wakefield Emily Maher - we had so much fun with you on this gorgeous day! Together we can take steps towards finding a cure! 💙

NF Northeast (@nfincne) 's Twitter Profile Photo

Celebrate #GlobalRunningDay with us! Join @NFNortheast and run for a cause. We still have bibs available for two amazing races — Falmouth Road Race in Woods Hole, MA and Maine Marathon in Portland, ME — so sign up now and let's run towards a cure for NF 🏅🏃‍♂️💙

Celebrate #GlobalRunningDay with us! Join @NFNortheast and run for a cause. We still have bibs available for two amazing races — <a href="/FalmouthRR/">Falmouth Road Race</a> in Woods Hole, MA and <a href="/MaineMarathon/">Maine Marathon</a> in Portland, ME — so sign up now and let's run towards a cure for NF 🏅🏃‍♂️💙
NF Northeast (@nfincne) 's Twitter Profile Photo

What an incredible spotlight on both #neurofibromatosis and NF hero Reggie Bibbs 💙 We're all in this fight against NF together - huge thanks to Kevin Nealon for his support & dedication to raising awareness!!

Vanessa L. Merker, PhD (@vlmerker) 's Twitter Profile Photo

Interested in clinical and health services research in rare neurological diseases? Apply to work with us now at the #Neurofibromatosis Clinic at MGHNeuroOncology in Boston, MA! Three roles open for applications now (a thread):

NF Northeast (@nfincne) 's Twitter Profile Photo

‼️ VOLUNTEERS NEEDED ‼️ If you're available Sat 9/9 to help out with our annual Coast to the Cure cycling fundraiser, let us know! AM/PM shifts available - Help us make a difference in the lives of those with NF! Email [email protected] to volunteer or for more info 🚴

‼️ VOLUNTEERS NEEDED ‼️

If you're available Sat 9/9 to help out with our annual Coast to the Cure cycling fundraiser, let us know!

AM/PM shifts available - Help us make a difference in the lives of those with NF!

Email sjgriffin@nfnortheast.org to volunteer or for more info 🚴
NF Northeast (@nfincne) 's Twitter Profile Photo

See you at Coast to the Cure 2023 - the annual cycling fundraiser for NF Northeast in the beautiful city of Gloucester! 🚴💙🌊 For more details: nfnortheast.org/event/12th-coa…

NF Northeast (@nfincne) 's Twitter Profile Photo

Join BRIDGE Lab - Stanford University on Saturday at 1pm EST for a FREE virtual webinar on mental health challenges and resources for children with RASopathies—which includes neurofibromatosis! If you're the parent or caretaker of a child with NF, register here: forms.gle/uxJEk1Yqgcx676…

NF Northeast (@nfincne) 's Twitter Profile Photo

We loved having you Emily!! Thanks for shining a light on neurofibromatosis and supporting those who live with NF each and every day 💙 Your support is invaluable!

NF Northeast (@nfincne) 's Twitter Profile Photo

We're so excited to welcome Dr. David Miller and Katherine Piculell from Boston Children's to introduce the NF1 Tumor Early Detection (TED) Study—a study focused on early MPNST detection for NF1 patients. Register for this session at 12pm on 9/19 here: bit.ly/3EIrTGt

We're so excited to welcome Dr. David Miller and Katherine Piculell from <a href="/BostonChildrens/">Boston Children's</a> to introduce the NF1 Tumor Early Detection (TED) Study—a study focused on early MPNST detection for NF1 patients.

Register for this session at 12pm on 9/19 here: bit.ly/3EIrTGt
NF Northeast (@nfincne) 's Twitter Profile Photo

Such a special way to support NF Northeast: shopping! We will be in store on Saturday, November 18, 2023. Drop for a visit and 20% of sales will be donated to NF Northeast. #kendrascott #Kendragivesback

Such a special way to support NF Northeast: shopping! We will be in store on Saturday, November 18, 2023. Drop for a visit and 20% of sales will be donated to NF Northeast. #kendrascott #Kendragivesback
NF Northeast (@nfincne) 's Twitter Profile Photo

Wishing you & yours a warm and joyous holiday season 💙❄️ Sending our best wishes for a bright new year from all of us at NF Northeast!

Wishing you &amp; yours a warm and joyous holiday season 💙❄️ Sending our best wishes for a bright new year from all of us at NF Northeast!
NF Northeast (@nfincne) 's Twitter Profile Photo

This International Women's Day, NF Northeast honors all women affected by neurofibromatosis: To the patients, sisters, nurses, mothers, caretakers, advocates, doctors, grandmothers, educators, lawmakers, researchers, and more 💙 We see you and we appreciate you.

This International Women's Day, NF Northeast honors all women affected by neurofibromatosis:

To the patients, sisters, nurses, mothers, caretakers, advocates, doctors, grandmothers, educators, lawmakers, researchers, and more 💙 We see you and we appreciate you.
Vanessa L. Merker, PhD (@vlmerker) 's Twitter Profile Photo

Calling all #Neurofibromatosis and #Schwannomatosis families in the Boston area! Register for our annual symposium on Saturday, April 6th! NF Northeast Children's Tumor Fdn MGHNeuroOncology Boston Children's eventbrite.com/e/neurofibroma…

Calling all #Neurofibromatosis and #Schwannomatosis families in the Boston area!  Register for our annual symposium on Saturday, April 6th! <a href="/NFincNE/">NF Northeast</a> <a href="/ChildrensTumor/">Children's Tumor Fdn</a> <a href="/MGHNeuroOnc/">MGHNeuroOncology</a> <a href="/BostonChildrens/">Boston Children's</a> eventbrite.com/e/neurofibroma…