
NF Northeast
@nfincne
Dedicated to finding a cure. Creating a community of hope & support for patients, families, and all those touched by NF.
ID: 25100864
http://www.nfnortheast.org 18-03-2009 16:27:36
942 Tweet
1,1K Followers
423 Following

NF Northeast was invited to visit the Walker Lab at MGH! Read about our tour and how Dr Walker’s team are working to #endNF 💙💚 nfemom.blogspot.com/2023/02/nf-nor…


Calling all Boston area #neurofibromatosis and #schwannomatosis patients! Register now for the MassGeneral News and Boston Children's NF Patient and Family Symposium, being held in-person at MGH on Saturday, April 29th. Children's Tumor Fdn NF Northeast 2023SymposiumNF.eventbrite.com


Couldn’t have said it better ourselves Vanessa L. Merker, PhD 💙 So thrilled to be able to honor all the incredible research you’ve done for the NF community!

Great fundraiser to spread awareness through branded bandannas!!! Winbrook is thrilled to have worked on this project with NF Northeast!! Learn more here: ow.ly/nWPt50OhSsw #NeurofibromatosisAwareness #TheWordIs #nfnortheast NF Northeast


Thanks for joining us in Wakefield Emily Maher - we had so much fun with you on this gorgeous day! Together we can take steps towards finding a cure! 💙

Cool day with Gabe Donovan at New York State Assembly. Thanks John T. McDonald III - Member of NYS Assembly for recognizing May as NF Awareness month and Gabe!


Celebrate #GlobalRunningDay with us! Join @NFNortheast and run for a cause. We still have bibs available for two amazing races — Falmouth Road Race in Woods Hole, MA and Maine Marathon in Portland, ME — so sign up now and let's run towards a cure for NF 🏅🏃♂️💙


What an incredible spotlight on both #neurofibromatosis and NF hero Reggie Bibbs 💙 We're all in this fight against NF together - huge thanks to Kevin Nealon for his support & dedication to raising awareness!!

Interested in clinical and health services research in rare neurological diseases? Apply to work with us now at the #Neurofibromatosis Clinic at MGHNeuroOncology in Boston, MA! Three roles open for applications now (a thread):

‼️ VOLUNTEERS NEEDED ‼️ If you're available Sat 9/9 to help out with our annual Coast to the Cure cycling fundraiser, let us know! AM/PM shifts available - Help us make a difference in the lives of those with NF! Email [email protected] to volunteer or for more info 🚴



Join BRIDGE Lab - Stanford University on Saturday at 1pm EST for a FREE virtual webinar on mental health challenges and resources for children with RASopathies—which includes neurofibromatosis! If you're the parent or caretaker of a child with NF, register here: forms.gle/uxJEk1Yqgcx676…


We're so excited to welcome Dr. David Miller and Katherine Piculell from Boston Children's to introduce the NF1 Tumor Early Detection (TED) Study—a study focused on early MPNST detection for NF1 patients. Register for this session at 12pm on 9/19 here: bit.ly/3EIrTGt





Calling all #Neurofibromatosis and #Schwannomatosis families in the Boston area! Register for our annual symposium on Saturday, April 6th! NF Northeast Children's Tumor Fdn MGHNeuroOncology Boston Children's eventbrite.com/e/neurofibroma…


We’re proud to be a sponsor of NF Northeast’s Steps2Cure NF Hartford walk. To learn more, visit: nfnortheast.org/event/steps2cu…