Nick (@nylcandcll) 's Twitter Profile
Nick

@nylcandcll

Bringing together people affected by #leukaemia & related conditions |
Patient Engagement Officer @LeukaemiaCareUK | Chair Emiterus @CLLAdvocates

ID: 1910457962

calendar_today27-09-2013 07:51:36

4,4K Tweet

611 Followers

748 Following

Ciaran Fitzpatrick (@ciaranitv) 's Twitter Profile Photo

Edita told me "lip filler saved my life." Absolutely fascinating story, thanks to Leukaemia Care for chatting to us about it for ITV News Meridian Full piece below and catch tonight at six ⬇️

CLLSA (@cllsupport) 's Twitter Profile Photo

Very proud of John Greensmyth our Vice Chair who presented at CLL Advocates Network International Conference in Barcelona today. John shared the results of a CLL Support member survey about CLL/SLL diagnosis. #CLLHZ24

Very proud of John Greensmyth  our Vice Chair who presented at  CLL Advocates Network International Conference in Barcelona today. John shared the results of a CLL Support member survey about CLL/SLL diagnosis. #CLLHZ24
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

At #CLLHZ24 we are diving into the Global CLL Patient/Carer/PAG Experience Surveys. Sarah Gunn, Kathryn Huntley, Nick, Jan Rynne, Dr. Christina Karamanidou, Prof. Kostas Stamatopoulos, and Lorna Warwick discuss findings, unmet needs & impactful actions

At #CLLHZ24 we are diving into the Global CLL Patient/Carer/PAG Experience Surveys. Sarah Gunn, Kathryn Huntley, <a href="/NYLCandCLL/">Nick</a>, <a href="/JanRynne/">Jan Rynne</a>, Dr. Christina Karamanidou, Prof. Kostas Stamatopoulos, and <a href="/LornaWarwick/">Lorna Warwick</a> discuss findings, unmet needs &amp; impactful actions
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

Day 2 of #CLLHZ24 showcased the power of collaboration between patient advocates, clinicians, and researchers, with a shared goal of improving care and outcomes for individuals living with #CLL.

Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

BLOOD CANCER TRIAL puts rock star Mike Peters Richters Transformation into remission. This is great news for #CLL patients. Less than 2% of cancer patients have access to clinical trials in Ireland. Why? Paul McAuliffe TD Bernard Gloster @DonnellyStephen itv.com/news/granada/2…

CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

Day 3 of #CLLHZ24 - Culmination of three powerful days, with a focus on critical topics in CLL care and advocacy, aiming to empower patients, caregivers, and professionals alike. To relive the highlights of this engaging Day 3, don’t miss the video summary 👇

Leukaemia Care (@leukaemiacareuk) 's Twitter Profile Photo

Data from the Savanta UK survey of 1,000 UK GPs in PulseToday shows that phlebotomy capacity issues hinder full blood count testing. In response, we, along with Leukaemia UK, have written to Wes Streeting as part of our #SpotLeukaemia campaign to highlight the urgent need for

Data from the <a href="/Savanta_UK/">Savanta UK</a> survey of 1,000 UK GPs in <a href="/pulsetoday/">PulseToday</a> shows that phlebotomy capacity issues hinder full blood count testing. In response, we, along with <a href="/LeukUK/">Leukaemia UK</a>, have written to <a href="/wesstreeting/">Wes Streeting</a> as part of our #SpotLeukaemia campaign to highlight the urgent need for
Leukaemia Care (@leukaemiacareuk) 's Twitter Profile Photo

Welfare reforms and leukaemia patients: What you need to know At Leukaemia Care, we know that a leukaemia diagnosis brings not only medical and emotional challenges but also financial worries. More than a quarter of leukaemia patients lose up to 60% of their monthly income, and

Leukaemia UK (@leukuk) 's Twitter Profile Photo

Thank you Royal College of General Practitioners for supporting our call with Leukaemia Care for urgent NHS investment in GP recruitment and phlebotomy services. These are crucial in helping to improve early diagnosis for those affected by leukaemia. 🧡 Read more: spotleukaemia.org.uk/post/rcgp-supp…

CLLSA (@cllsupport) 's Twitter Profile Photo

If you missed our recent webinar 'Getting the most out of Consultations' the recording is now available on our YouTube channel: youtube.com/playlist?list=…

Leukaemia Care (@leukaemiacareuk) 's Twitter Profile Photo

We believe knowledge is key to understanding blood cancer, which is why we put the person at the heart of everything we do. Our resources, developed with input from patients and healthcare professionals and are PIF TICK accredited. View our resources: bit.ly/ShopBooklets

We believe knowledge is key to understanding blood cancer, which is why we put the person at the heart of everything we do. Our resources, developed with input from patients and healthcare professionals and are PIF TICK accredited.

View our resources: bit.ly/ShopBooklets
CML AdvocatesNetwork (@cmlnet) 's Twitter Profile Photo

🔬 New Global Study on Leukemia & Quality of Life! 🩸 The Acute Leukemia Advocates Network (ALAN) led this important research, in collaboration with the CML Advocates Network and CLL Advocates Network, to gain a deeper understanding of how leukemia impacts patients’ quality of life (QoL). This study, published in

CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

Breaking News from CLL Advocates Network. We have just launched a CLL clinical trials hub to help make it easier for patients and patient organisations to find trials around the world. European Hematology Association UK Chronic Lymphocytic Leukaemia (CLL) Forum 伊藤佑愛 European Cancer Organisation CLL Society Inc. clladvocates.net/cll-advocates-…

Lymphoma Coalition (@knowyournodes) 's Twitter Profile Photo

Shared decision-making gives #CLL patients a voice in their care. With strong #HealthLiteracy and open conversations, better decisions happen — rooted in both medical evidence and personal values. Be part of #WCLLD25: wclld.org/campaign-mater…

Shared decision-making gives #CLL patients a voice in their care. With strong #HealthLiteracy and open conversations, better decisions happen — rooted in both medical evidence and personal values. Be part of #WCLLD25: wclld.org/campaign-mater…
World CLL Day (@wclld) 's Twitter Profile Photo

This #WCLLD25, let’s focus on health literacy and empower #CLL patients with knowledge. By promoting education and resources, we can help them make informed decisions and advocate for better care. 🌐 Visit: wclld.org 👉 Share to raise awareness! #CLL #HealthLiteracy

This #WCLLD25, let’s focus on health literacy and empower #CLL patients with knowledge. By promoting education and resources, we can help them make informed decisions and advocate for better care.
🌐 Visit: wclld.org
👉 Share to raise awareness!
#CLL #HealthLiteracy
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

On this #WCLLD25, we thank all those working in #CLL healthcare and research. Your dedication gives patients and their families better options and hope for the future. 🌐 Visit: wclld.org #ThriveWithCLL European Hematology Association iwCLL

World CLL Day (@wclld) 's Twitter Profile Photo

CLL is a complex disease and patients and their care partners need access to the right information, presented clearly, to make informed decisions about treatment and care. 🌐 Visit wclld.org #WCLLD25 #CLL #ThriveWithCLL

CLL is a complex disease and patients and their care partners need access to the right information, presented clearly, to make informed decisions about treatment and care.
🌐 Visit wclld.org
#WCLLD25 #CLL #ThriveWithCLL