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We're looking forward to presenting at @uclWSDforum today! Along with Georgina Carr from The Neurological Alliance, we'll be discussing how #tech like NeuroLifeNow can boost #recovery after stroke

Reading Eileen’s story highlighting ‘out of control’ #neurology appointments adds to our anger about how our community is being treated. Every day you are telling us how you, or a loved one, are facing similar stark realities. How do you feel about your situation? #Changemakers

Thank you for contributing to the NeuroLifeNow research. The Sept-Oct results are now available. We are working hard to ensure your voice is being heard, and hope you can see the reality you face each day reflected here: ow.ly/BYFs50GVivI Brain & Spine Foundation The Neurological Alliance

Announcement - Setting Expectations regarding the Telephone Call-Back Service in collaboration with the Brain & Spine Foundation . Please read our email here: bit.ly/3Gluc0W

In Nov-Dec we asked you questions about your priorities and what you would like Government to know. Many of you told us you felt invisible to society, and more should be done to foster greater understanding of #hiddenconditions: ow.ly/VEP850HEHKg The Neurological Alliance Brain & Spine Foundation

Huge thanks to niNCA for inviting us to their recent Board meeting where we discussed #NeuroLifeNow and how we can work together to ensure your voice is heard and your needs are met in NI and across the UK. #collaboration The Neurological Alliance

In Dec 2021, 32% of respondents NeuroLifeNow said #mentalhealth needs weren’t being met or were being met to a small extent. Join us in responding to the Govt call for evidence to develop a plan to improve mental health for everyone in the UK.bit.ly/3JPQ9a0

In the Jul-Aug #NeuroLifeNow survey, we would like to know how the cost-of-living crisis is affecting you. Your experience is shared with NHS Commissioners, UK Governments and clinicians to influence how #neuro services are delivered: ow.ly/3RyL50JRooe

The next edition of the #NeuroLifeNow survey is live and open until the end of October. We continue to focus on understanding how the #costofliving crisis is affecting you. It only takes a few minutes to get your voice heard and complete the survey here: ow.ly/U7sa50KALSA

We're pleased to share with you the results from the #NeuroLifeNow May-Aug surveys. We asked you to share your experiences accessing #care, and your response to #costofliving: ow.ly/qUuQ50LucCY The Neurological Alliance #Neuro #research #Backthe1in6

The #costofliving has never been starker, nor is the case more urgent. The #UKGovernment fiscal plans must #Backthe1in6 with a neuro condition and those closest to them, starting with uprating benefits such as #PIP in line with inflation: ow.ly/rcFe50LFCKN The Neurological Alliance

Please help NeuroLifeNow gain real time insights into your experiences of life with a #neurological condition and complete the survey using this link: bit.ly/3Vx0GhI the May-June survey asks about #employment: #DisabilityTwitter

Felt misunderstood by your employer regarding your #neurologicalcondition & the challenges you face every day? Remember that your voice is so important to help us drive change. Share your own experience by filling in the NeuroLifeNow survey here: ow.ly/YPI550OI7BW

Please help NeuroLifeNow gain real time insights into your experiences of life with a #neurological condition and complete the survey using this link: bit.ly/3Vx0GhI the May-June survey asks about #employment: #DisabilityTwitter

Our #questionnaire this month focuses on how your #neurologicalcondition affected your job. Want to share your lived experience with us? Don't forget to fill in the May-June survey here: ow.ly/KcjG50OW1T4

Our July-August @NeuroLifeNowsurvey has arrived! Help us drive positive change through #research. This time, we are focusing on the shared issues faced by people affected by different conditions. If you want to share your own experience, click here: neurolifenow.typeform.com/to/T3040nze?ut…

What's the reality of living with a #neurologicalcondition in the UK today? Your voice matters! Please take part in this research and drive positive change in neurological #treatment & #care: ow.ly/8Zsv50PlCvk #research #neuro #healthcare NeuroLifeNow

The new bi-monthly NeuroLifeNow survey is now live. Click here to respond to the questionnaire: ow.ly/2pXF50PIPPQ

In July & August, 50% of you reported the high difficulty of travelling to your appointments. The report's results are now here. Head to the NeuroLifeNow website to read them: ow.ly/En3T50Q8gKs #report #research #experience #neurologicalcondition #neuro

In March-April 2024, 50% of you were waiting for NHS care. Our NeuroLifeNow March-April report on the impacts of long waits for care on people with neuro conditions is now out: ow.ly/GBEh50TLTvy #NHS #NHScare #waitinglist #neuro #neurologicalcondition The Neurological Alliance