Neuro Sjogrens (@neurosjogrens) 's Twitter Profile
Neuro Sjogrens

@neurosjogrens

Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice. Search this profile to find topics.

ID: 1574129595065856000

calendar_today25-09-2022 20:12:13

14,14K Tweet

2,2K Followers

864 Following

Dr. Catharine Young (@catgyoung) 's Twitter Profile Photo

dyk the Human Genome Project cost taxpayers about $ 3 Billion over 13 years but is estimated to have a generated an ROI of $1 Trillion impacting the fields of medicine, agriculture, energy, and the environment. Science is not a cost. It’s an investment with countless returns.

Mike Hoerger, PhD MSCR MBA (@michael_hoerger) 's Twitter Profile Photo

PMC COVlD Report, May 19, 2025 (U.S.) In this national "lull" in transmission, we are seeing... 🔥A quarter-million daily infections 🔥90-360k Long COVlD cases from the week's infections 🔥600-1,100 deaths from the week's infections 🔥LA, SD, NE, & GU in high transmission

PMC COVlD Report, May 19, 2025 (U.S.)

In this national "lull" in transmission, we are seeing...
🔥A quarter-million daily infections
🔥90-360k Long COVlD cases from the week's infections
🔥600-1,100 deaths from the week's infections
🔥LA, SD, NE, & GU in high transmission
Janet Pope (@janetbirdope) 's Twitter Profile Photo

Who with +ANA will become #SLE Mostly similar cytokine signature But ⬆️IFN and more innate immune changes 👇 In those who developed #lupus ? prediction & Prevention model in +#ANA people 🤷‍♀️ yr in review E Vital’s paper #LUPUS2025 Dr. John Cush Zahi Touma, MD, PhD

Who with +ANA will become #SLE

Mostly similar cytokine signature 
But ⬆️IFN and 
more innate immune changes 
👇
In those who developed #lupus

? prediction & Prevention model in +#ANA people 🤷‍♀️

yr in review E Vital’s paper

#LUPUS2025 <a href="/RheumNow/">Dr. John Cush</a> <a href="/ZahiTouma/">Zahi Touma, MD, PhD</a>
Janet Pope (@janetbirdope) 's Twitter Profile Photo

Here’s who flares in #SLE least to most Persistently neg antiDNA Persistently + antiDNA conversion of neg to + antiDNA So are we over ordering antibodies in 1st 2 groups 🤷‍♀️ Unravelling #LUPUS2025 Dr. John Cush

Here’s who flares in #SLE
least to most

Persistently neg antiDNA
Persistently + antiDNA 
conversion of neg to + antiDNA 

So are we over ordering antibodies in 1st 2 groups 🤷‍♀️ 

Unravelling #LUPUS2025 

<a href="/RheumNow/">Dr. John Cush</a>
tern (@1goodtern) 's Twitter Profile Photo

Neil Stone: Nothing is wrong. Everything is fine. People concerned about Covid infections are lunatics. Also Neil Stone: MAHA are going to pin it all on vaccines. Which is it? Is nothing wrong? Or is there something wrong that they're going to pin on vaccines?

Neil Stone: Nothing is wrong. Everything is fine. People concerned about Covid infections are lunatics.

Also Neil Stone: MAHA are going to pin it all on vaccines.

Which is it?
Is nothing wrong?
Or is there something wrong that they're going to pin on vaccines?
ArianeK 💜 #Care4Complex (she/her) (@arianek) 's Twitter Profile Photo

. Kara Wada, MD isn't on X anymore but the #SjogrensSummit conference she's been hosting the last 3 years is THE BEST Sjogren's conference I've attended. They're seeking speakers for this summer! Please share + submit sessions! links.drkarawada.com/widget/survey/… #Sjogrens #NeuroSjogrens

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Rather than simply saying "Its all in your head" re neuropsychiatric or autoimmune dementia symptoms to people with systemic autoimmune diseases like Sjogrens or Lupus, MD's ought be looking into brain health w imaging. In lupus 40% of imaging can b negative. Keep ⬆️ suspicion.

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

While its great that salivary cell organoids r made for Sjogrens, imv it is in No Way a model of Sjogrens disease. Its a model of a Sjogrens salivary gland. One would need nerve & lung & kidney & brain & muscle (& etc) organoids 2b a Sjogrens model. pubmed.ncbi.nlm.nih.gov/40393919/

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Did u know statins r immunomodulatory & anti-inflammatory, decrease all cause mortality in systemic autoimmune diseases and decrease the risk for blepharitis (common in Sjogrens.) Per usual monitor for statin side effects. Here's a link re blepharitis pmc.ncbi.nlm.nih.gov/articles/PMC89….

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

This is the 1st I've heard about Novavax carrying unusual insect glycoproteins on the spike protein that theoretically could create an immune response. I've not heard of any real world implications yet. This is lab work info as opposed to real world. thailandmedical.news/news/recombina…

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Did you know mitochondria used to be free living bacteria before becoming inside our cells symbiotic? (Endosymbiotes) Dysfunction of these ancient bacteria in our cells is present in most diseases, yet we know relatively little about them. Interesting paper. Link in tweetbelow.

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Systemic autoimmune diseases are assoc'd w osteoporosis. This paper looks at role of inflammation (in elderly) & bone as well as treatments. "Chronic inflammation impairs the initiation of bone regeneration in elderly patients. This review examines...1/2 inflammregen.biomedcentral.com/articles/10.11…

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

👏👏👏 Decentralized Science/DeSci can remove parasitic medical journals, allow access (no paywalls,) increase transparency & allow scientists more control over their data and conclusions.

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Did you know mitochondria used to be bacteria that became symbiotic & live in our cells? Mito probs occur in many (if not most) of human diseases. We need to understand their healthy & unhealthy processes better. Paper link in tweet about aspects of mitochondria. ⬇️

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

X is experiencing significant performance issues today, May 24, 2025, primarily due to a reported fire at one of its data centers in Oregon. This incident, noted in posts on X, has caused a major outage starting around May 22, 2025, leading to problems...Grok

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

It appears covid turns your pathogen fighting neutrophils into cells that inhibit your T cells from fighting infections. Flu infection soes not do this. Samples were taken before vaccinations were available. miragenews.com/research-covid…

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Sjogrens has no strategy to treat to target (T2T) of remission. Below is a T2T for lupus. ~20-30% of ppl w lupus also have Sjogrens so some w Sjogrens will be put on T2T for lupus. 🤷‍♀️ who knows if it helps the Sjogrens too. I suspect its difficult to track.