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This means a lot to us Secretary Kennedy Please act quickly on this bipartisan issue that has devastatingly affected our children🙏🏻 Thanks U.S. Senator Bill Cassidy, M.D.

THANK YOU to every #LongCOVID patient, caregiver & loved one, from red & blue states, for calling, emailing & meeting with Congressional leaders to share #LongCOVID research is a bipartisan priority. Today's Senate HELP hearing testimony is a result of your engagement & outreach.

I do hope Secretary Kennedy follows thru on his commitment here to #pwME, #pwLC, #Lyme I’m sorry to hear his son is also suffering from LC. Please work with experts like PolyBio Open Medicine Foundation Bateman Horne Center to find effective treatments/cures efficiently instagram.com/reel/DJpNrP8P0…

Certainly our experience with our very severe long covid kid….. Day 756 of this particular admission….. Not one night out. Over three years since my then healthy daughter has not vomited everything she eats and drinks. Kept alive on tubes, trapped in a room in a hospital on

Tried to create an AI image for the invisible of severe ME but I think it’s not even close even if it’s terrifying. #pwme #severeme #mecfs #longcovid

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Neurologist Mom Everyone working diligently to solve #LongCovid and #MECFS has a personal involvement of some kind. I hate that his son is sick (said the same for Ron Davis/Whitney), but this is the motivation that gets things done. You only truly 'get it' when you or someone you know gets it.

Long COVID Campaign press statement applauding Secretary Kennedy FY26 #LongCOVID research testimony commitment & thanking Chair U.S. Senator Bill Cassidy, M.D. (R-LA) & Hill bipartisan champions for supporting U.S. patients at today's Senate HELP Committee HHS.gov budget hearing Senate HELP Committee GOP HELP Committee Dems

Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from The BMJ. Let's be unambiguous about this: BMJ has 1/ bmj.com/content/389/bm…

Published today! Victoria Bastos, Kerrie Greene et al found two distinct immunotypes of ME/CFS based on the cerebrospinal fluid analysis. Great collaboration with Michael VanElzakker Amy Proal, PhD and the Bragée clinic in Sweden. (1/) academic.oup.com/jimmunol/artic…

My severe long covid kid hasn’t slept in five days. She is placed in rooms next to infectious screaming babies. Part of the impact of her not sleeping is that her gut further shuts down - she has massive losses from her stoma and is likely absorbing less from the tube pumping

#longcovidkids

Recently there is a study of Long Covid in China. Scientists utilized cryo-electron microscopy to examine myocardial biopsy tissue from long COVID patients and found severe damage to the mitochondria within the cells. This organelle impairment cannot be detected through routine

My kid also would have starved if our neighbor who is a doctor hadn't helped me to keep her alive with IVs this summer when she was in severe dehydration and severely malnourished and underweight du to severe #LongCovid youtu.be/giS2H46J30Y?si…

Erin M Putrino Lab The BMJ My daughter now has pots from Covid. It’s absolutely horrific when your child is unwell-Without grown men suggesting they just need to think themselves well. Id like to know how my child is able to keep her heart rate so high when upright&normal when sitting. Magic? 🤷🏻‍♀️

I missed most of the speech at the PolyBio Symposium. Is there a recording of the meeting? I really wanted to attend all the sessions. 😔