NotRecovered (@not_recovered) 's Twitter Profile
NotRecovered

@not_recovered

We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.

ID: 1578721257708830721

linkhttp://notrecovered.org calendar_today08-10-2022 12:18:01

1,1K Tweet

5,5K Followers

240 Following

NotRecovered (@not_recovered) 's Twitter Profile Photo

Saying ME/CFS isn’t deadly is like saying AIDS isn’t. You might not die from the illness directly – but from its complications, from systemic failure, from isolation. It’s time to take this seriously! @NIHDirector @BMBF_Bund Jay Bhattacharya NINDS Tino Sorge

Saying ME/CFS isn’t deadly is like saying AIDS isn’t. 

You might not die from the illness directly – but from its complications, from systemic failure, from isolation. 

It’s time to take this seriously!

@NIHDirector @BMBF_Bund <a href="/DrJBhattacharya/">Jay Bhattacharya</a> <a href="/NIH_NINDS/">NINDS</a> <a href="/TinoSorge/">Tino Sorge</a>
The Times and The Sunday Times (@thetimes) 's Twitter Profile Photo

More than 400,000 people in England have myalgic encephalomyelitis (ME), according to a new study highlighting how those with the illness are ā€œignoredā€ by the NHS thetimes.com/uk/healthcare/…

NotRecovered (@not_recovered) 's Twitter Profile Photo

More and more countries are reporting a rise in disability — a quiet wave that keeps growing. At the same time, Long Covid has chronically sickened and disabled hundreds of millions around the world. The science is clear. And yet… barely anyone connects the two! Secretary Kennedy

Eliza Charley | Actress on Pause (@elizacharley) 's Twitter Profile Photo

It’s happening. New clinical guideline for #MECFS in Australia is underway. Right now - you can help us! Scoping survey open until 27th April - if you have POTS or Long Covid this could affect you too, read on 1/🧵 consultations.nhmrc.gov.au/clinical-pract…

NotRecovered (@not_recovered) 's Twitter Profile Photo

Germany’s Research Minister Dorothee BƤr in the country’s largest daily today: ā€œME/CFS patients don’t just need recognition – they need effective help!ā€ We strongly welcome this initiative. Let’s unleash Germany’s innovative strength and bring other European countries on board! šŸš€

Fabian Fritz (@ffhambu) 's Twitter Profile Photo

International people with ME/cfs and Long-COVID. Our group of football supporters affected by this horrible disease is growing. In case you want to connect with us: Here is our new English text on the website emptystands.me/en/

International people with ME/cfs and Long-COVID. Our group of football supporters affected by this horrible disease is growing. In case you want to connect with us: Here is our new English text on the website 
emptystands.me/en/
NotRecovered (@not_recovered) 's Twitter Profile Photo

šŸ† The double winners Double-Siegerinnen šŸ„‡šŸ† (league & cup) join the #LemonChallengeMECFS to raise awareness for ME/CFS and the suffering of those affected. They stand with many other pro clubs in Germany who’ve spoken out in recent weeks and months. Thank you FC Bayern München!

Sean O'Neill (@timesoneill) 's Twitter Profile Photo

the science around ME is at a tipping point, the government must fund further researchā¬‡ļø thetimes.com/uk/healthcare/…