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Eye Health Care Charity of the Month - Nystagmus Network Nystagmus Network buff.ly/4gLKJ0W

We heard from Vivien Jones, founder of the organisation Nystagmus Network, about learning she would receive an MBE, the history of the charity, and what comes next. Read here ➡️ ow.ly/u2ux50UMWg2 #OT

This week is #ChildrensMentalHealthWeek Our 'Wobbly Eyes' booklet is a child friendly guide to nystagmus and is a great way to start open discussions about their eye conditions. We want to empower children to self advocate. Download your copy here: buff.ly/3JmIEKb

The Nystagmus Network has launched the Richard Wilson Essay Prize, an annual competition to encourage more nystagmus research. Open to UK students, the first prize is £500 and the opportunity to speak at the International Nystagmus Symposium. buff.ly/4gyex0r

Featuring over 60 submissions, our anthology represents has themes of resilience, isolation, mental health, and the experience of ‘fighting’ for care echo throughout the anthology. But so too does the strength found in support and community. ow.ly/l82i50V7JcK

Happy #RareDiseaseDay to our SWAN UK community! Today, Genetic Alliance UK launched '#MoreThanYouCan imagine: an anthology of rare experiences' which features work from the #undiagnosed community. You can take a look at this amazing piece of work now: geneticalliance.org.uk/.../rare.../an…

Welcome to our new member, Nystagmus Network Their mission is to champion the cause of the community they support, to raise awareness of #nystagmus, its impact and the interventions needed. Welcome to the alliance 👋 Learn more on their website: ow.ly/vWym50Vah5Q

Congratulations to Gemma and Sonia.

Alzheimer's and Dementia Support Services (ADSS) The For Baby's Sake Trust Lottie Wihl Candlelighters Trust Tender The Yard BorgeAndreassen Spring Impact NSPCC Happy Baby Community Let's Talk About Loss Theatre Peckham Reach Volunteering Janet Thorne Rob Berkeley BLKOUT_UK In Improving Impact in Small Charities (0-3 paid staff), congrats to: ⭐️ Concrete Youth ⭐️ GROWmentoring ⭐️ Nystagmus Network Thanks to our facilitators at NPC & our prof judges Alex Feis-Bryce, Jill Baker & Philippa Moors. Case studies: charitygovernanceawards.co.uk/shortlist-and-…

The Nystagmus Network is shortlisted in the UK Charity Governance Awards 2025 for improving impact in small charities. First prize is an unrestricted grant of £6,000. Read our citation on the Charity Governance Awards website here: charitygovernanceawards.co.uk/short-list/n... #CharityGov2025

Join The ALLIANCE in calling for a right to communication for all. Sign up to ensure equal rights for everyone - because communication is about more than just words. Find our more about our new campaign and RT > ow.ly/lUCk50VTeYp #MoreThanWords #CommunicationForAll

📣Congrats to Nystagmus Network, which has been shortlisted in 'Improving Impact (0-3 staff)' for #CharityGov25. #Trustee Harshal Kubavat told us more about the #charity's board. w/ Partners The Clothworkers' Company Reach Volunteering NPC & Prospectus More: charitygovernanceawards.co.uk

#VolunteersWeek starts next week on 2 June. Find out how to get involved and celebrate all the volunteers who give up their time to make a difference. volunteersweek.org

Congrats, Nystagmus Network

Nystagmus Awareness Week is HERE! 👁️‍🗨️ Join Nystagmus Network as we raise understanding of this visual impairment. Follow along for facts, stories and how you can support our community. #NystagmusAwarenessWeek #NystagmusNetwork #Nystagmus

Did you know #Nystagmus affects 1 in 1,000 people? It impacts daily life, from focus to face recognition. Nystagmus Network provides essential support. Learn more this #NystagmusAwarenessWeek. #VisualImpairment nystagmusnetwork.org/awareness/

Join our #25for25 challenge this #NystagmusAwarenessWeek! Do something involving the number 25 to raise funds for Nystagmus Network. Your support makes a difference! #SeeTheDifference #Fundraising nystagmusnetwork.org/get-involved/f…

The power of community is undeniable. Our regional 'meet ups' bring people together, creating vital peer support networks. See the difference this #NystagmusAwarenessWeek. Nystagmus Network nystagmusnetwork.org/support/local-…

It's #NystagmusAwarenessDay! Don't miss our #25for25 challenge. PLUS, check out our @Nystagmust takeover on @Visionary_UK's BlueSky today! Let's amplify awareness. nystagmusnetwork.org/awareness/