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Happy to announce the establishment of #OXALMENA the first Working Group dedicated to study PrimaryHyperoxaluria, a #rare disease relatively prevalent in the MENA region IPNA Ped Nephrology Oxalosis & Hyperoxaluria Foundation 𝐉𝐨𝐬𝐞𝐩𝐡 𝐅𝐥𝐲𝐧𝐧, 𝐌𝐃 Justine Bacchetta Guidici john sayer John D Mahan

A 13-year-old's dual-organ transplant and fight against a rare genetic disease news.llu.edu/patient-care/1…

UAB named OHF Care Center for excellence in rare kidney stone disease research and clinical car - goo.gl/alerts/svAx4L #GoogleAlerts

UAB named OHF Care Center for excellence in rare kidney stone disease research and clinical car - goo.gl/alerts/JrwNHN #GoogleAlerts

Hot off thee press.... pubmed.ncbi.nlm.nih.gov/39875734/

Arbor Biotechnologies Announces FDA Orphan Drug and Rare Pediatric Disease Designations Granted to ABO-101 for the Treatment of Primary Hyperoxaluria Type 1 (PH1) and Upcoming Presentations at the 20th Congress of the International Pediatric Nephrology Association (IPNA)

globenewswire.com/news-release/2…

Calling all rare disease community members – patients, caregivers, clinicians, researchers, and advocates to join a petition . You can join the efforts by filling out the form to the right to sign the following petition. everylifefoundation.quorum.us/campaign/111750

Rare Disease Day 2025 official video youtu.be/fIvqxQPjisI?si… via YouTube

The FDA has now approved Novo Nordisk’s nedosiran (Rivfloza) injection, a once-monthly subcutaneous RNA interference (RNAi) therapy, for children over the age of 2.

UCSF Health Recognized for Treatment of Rare Kidney Stone Disease ucsf.edu/news/2025/06/4…