Australian_Amyloidosis_Network (@ozamyloidosis) 's Twitter Profile
Australian_Amyloidosis_Network

@ozamyloidosis

The AAN is dedicated to achieving the best possible care for all people living with amyloidosis in Australia

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linkhttps://amyloidosis.net.au calendar_today14-09-2020 12:13:18

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Register now for our touring Patient and Dr events kicking off soon from 6th May. Locations and Dates below. Go to aan.org.au for more information.

Register now for our touring Patient and Dr events kicking off soon from 6th May. Locations and Dates below. Go to aan.org.au for more information.
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We're off! The AAN's travelling Workshops have kicked off in Brisbane today. Here's our national patient advocate Pat Neely at the Patient Family Carer Workshop for the interactive panel session "Living with Amyloidosis".

We're off! The AAN's travelling Workshops have kicked off in Brisbane today. Here's our national patient advocate Pat Neely at the Patient Family Carer Workshop for the interactive panel session "Living with Amyloidosis".
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Our concurrent East and West Coast Oz Amyloidosis Workshops have kicked off! Melbourne’s Workshop opened by Dr Simon Gibbs & Perth’s by Hasib Sidiqi. Image from Melbourne’s Health Professional’s Workshop.

Our concurrent East and West Coast Oz Amyloidosis Workshops have kicked off!  Melbourne’s Workshop opened by <a href="/simondjgibbs/">Dr Simon Gibbs</a> &amp; Perth’s by <a href="/sidiqi_hasib/">Hasib Sidiqi</a>. Image from Melbourne’s Health Professional’s Workshop.
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“How do we best treat ATTR” being presented by A/Prof Martha Grogan Martha Grogan MD at Melbourne’s Patient Workshop. Thank you for travelling all the way from the USA to educate and support all our patients across Australia for our touring Workshops.

“How do we best treat ATTR” being presented by A/Prof Martha Grogan <a href="/MarthaGrogan1/">Martha Grogan MD</a> at Melbourne’s Patient Workshop. Thank you for travelling all the way from the USA to educate and support all our patients across Australia for our touring Workshops.
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“How do we best treat AL” being presented by our favourite French amyloidologist Dr Murielle Roussel Murielle Roussel at Melbourne’s Patient Workshop. 🙏4 delivering such carefully considered patient centred talks 4 our Australian patients. Photo with session chair Nick Bingham.

“How do we best treat AL” being presented by our favourite French amyloidologist Dr Murielle Roussel <a href="/RousselMurielle/">Murielle Roussel</a> at Melbourne’s Patient Workshop. 🙏4 delivering such carefully considered patient centred talks 4 our Australian patients. Photo with session chair Nick Bingham.
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Isabelle Lousada Isabelle Lousada of Amyloidosis Research Consortium at Melbourne's Patient Workshop. Initially a patient and architect then advocate, researcher & mother. A “gentle disruptor” who has brought patients, academia, regulators & industry 2gether to achieve real outcomes.

Isabelle Lousada <a href="/i_lousada/">Isabelle Lousada</a> of  <a href="/amyloidosis_arc/">Amyloidosis Research Consortium</a> at Melbourne's Patient Workshop. Initially a patient and architect then advocate, researcher &amp; mother. A “gentle disruptor” who has brought patients, academia, regulators &amp; industry 2gether to achieve real outcomes.
Hasib Sidiqi (@sidiqi_hasib) 's Twitter Profile Photo

The absolute highlight of our Amyloidosis workshop. 91 year old Jackie with cardiac TTR amyloid on a clinical trial drove herself down to attend. Here is her with her Haematology advanced trainee granddaughter Elly. Dr Simon Gibbs Australian Amyloidosis Network

The absolute highlight of our Amyloidosis workshop. 91 year old Jackie with cardiac TTR amyloid on a clinical trial drove herself down to attend. Here is her with her Haematology advanced trainee granddaughter Elly. <a href="/simondjgibbs/">Dr Simon Gibbs</a> <a href="/OzAmyloidosis/">Australian Amyloidosis Network</a>
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It's a wrap! Farewell 2 Martha Martha Grogan MD, Murielle Murielle Roussel & Isabelle Isabelle Lousada. 🙏 4 touring Australia & educating, advocating, empowering our whole community-Drs & patients alike. Happy Sad photo from our last Workshop in Adelaide 2day.

It's a wrap! Farewell 2 Martha <a href="/MarthaGrogan1/">Martha Grogan MD</a>, Murielle <a href="/RousselMurielle/">Murielle Roussel</a> &amp; Isabelle <a href="/i_lousada/">Isabelle Lousada</a>. 🙏 4 touring Australia &amp; educating, advocating, empowering our whole community-Drs &amp; patients alike. Happy Sad photo from our last Workshop in Adelaide 2day.
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CONGRATULATIONS to our Pat Neely for her well deserved AM. gg.gov.au/australia-day-… Founding member & recently retired Board member of the AAN; tireless advocate and friend of the Australian and International amyloidosis community.

CONGRATULATIONS to our Pat Neely for her well deserved AM. gg.gov.au/australia-day-… Founding member &amp; recently retired Board member of the AAN; tireless advocate and friend of the Australian and International amyloidosis community.
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👉🏼 gg.gov.au to see Pat’s achievements that have led to her appointment as a Member of the Order of Australia🍾

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Treatment Update: Patisiran has been recommended by the Pharmaceutical Benefits Advisory Committee for those with hereditary transthyretin amyloidosis with polyneuropathy pbs.gov.au/info/industry/…

Treatment Update: Patisiran has been recommended by the Pharmaceutical Benefits Advisory Committee for those with hereditary transthyretin amyloidosis with polyneuropathy pbs.gov.au/info/industry/…
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Hello from the Int Symposium on Amyloidosis hosted by the Mayo Clinic in Minnesota, USA. The AAN’s very own dysproteinaemic Neurologist Antonia Carroll on the podium this morning.

Hello from the Int Symposium on Amyloidosis hosted by the Mayo Clinic in Minnesota, USA. The AAN’s very own dysproteinaemic Neurologist Antonia Carroll on the podium this morning.
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Last day of ISA. AAN Chair A/Prof Peter Mollee moderating “Challenges in Amyloid” session. End of another inspiring ISA bringing 2gether specialities, labs & institutions working 2gether to improve the lives of our patients across the world Mayo Clinic Amyloidosis Research Consortium

Last day of ISA. AAN Chair A/Prof Peter Mollee moderating “Challenges in Amyloid” session.  End of another inspiring ISA bringing 2gether specialities, labs &amp; institutions working 2gether to improve the lives of our patients across the world <a href="/MayoClinic/">Mayo Clinic</a> <a href="/Amyloidosis_ARC/">Amyloidosis Research Consortium</a>
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The first of Australia’s Amyloidosis 2025 Workshop and Conference series have kicked off in Perth Western Australia today. 2 of our International experts Carol Whelan and Prof Efstathios Kastritis seen here with Perth’s AAN clinic director Hasib Sidiqi Smiles all round.

The first of Australia’s Amyloidosis 2025 Workshop and Conference series have kicked off in Perth Western Australia today. 2 of our International experts <a href="/CJWhelan18/">Carol Whelan</a> and Prof Efstathios Kastritis seen here with Perth’s AAN clinic director <a href="/sidiqi_hasib/">Hasib Sidiqi</a> Smiles all round.
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The whistlestop Workshop tour conts. Today in Melbourne with Dr Olga Motorna, Prof Stathis Kastritis, Carol Whelan & Dr Brendan Wisniowski. Sydney & Brisbane 2 go. Don’t forget about the Patient Workshop livestream Sydney Sat 10th. Register now aanworkshops.org.au

The whistlestop Workshop tour conts. Today in Melbourne with Dr Olga Motorna, Prof Stathis Kastritis, <a href="/CJWhelan18/">Carol Whelan</a> &amp; Dr Brendan Wisniowski. Sydney &amp; Brisbane 2 go. Don’t forget about the Patient Workshop livestream Sydney Sat 10th. Register now aanworkshops.org.au
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Sydney and Brisbane’s Patient Workshops occurred on Sat 10th May. Mrs Pat Neely (AM) was honoured for her work in bettering the lives of those with amyloidosis. Seen here at left with Susan Booth (AAN Patient Committee rep) & middle, Cathy Davies (AAN National Patient Advocate)

Sydney and Brisbane’s Patient Workshops occurred on Sat 10th May. Mrs Pat Neely (AM) was honoured for her work in bettering the lives of those with amyloidosis. Seen here at left with Susan Booth (AAN Patient Committee rep) &amp; middle, Cathy Davies (AAN National Patient Advocate)
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Donate >$25 aan.org.au/donate-to-the-… to enter the draw 4🍾2016 Penfolds Grange, dble pass to Aust. Tennis Open & more. Proceeds👉Amyloidosis Patient Telephone Support Service. Winners TBD at tmrw night's Brisbane's Drs' Workshop. So donate towards this great cause b4 5pm 13th May

Donate &gt;$25 aan.org.au/donate-to-the-… to enter the draw 4🍾2016 Penfolds Grange, dble pass to Aust. Tennis Open &amp; more. Proceeds👉Amyloidosis Patient Telephone Support Service. Winners TBD at tmrw night's Brisbane's Drs' Workshop. So donate towards this great cause b4 5pm 13th May
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The "Amyloidosis 2025" meetings have ended. Farewell to Carol Whelan Stathis. Special🙏Prof Yoshi Sekijima VP/President elect @ISA_Amyloidsis for dialling in to our Workshops & for providing recordings. Ur clinical pearls will improve the care of all our ATTRv patients.

The "Amyloidosis 2025" meetings have ended. Farewell to <a href="/CJWhelan18/">Carol Whelan</a> <a href="/StathisKastr/">Stathis</a>. Special🙏Prof Yoshi Sekijima VP/President elect @ISA_Amyloidsis for dialling in to our Workshops &amp; for providing recordings. Ur clinical pearls will improve the care of all our ATTRv patients.